Donations for Dalton
Happy Sunday Y’all we are hoping all works out so that we may ALL attend church’s evening service. I’m hopeful cuz he knows we need it!
Please say a Lil prayer for the Hanna household ✨♥️
As you know Dalton became very sick at home which lead us to Hospice for him to become stable. He was able to receive relief rather quickly after they hooked him up with a PCA(pain pump) which he then decided he’s not quite ready to stay here and would like to go home for as long as the Lord has planned. The doctors felt as long as he remained stable and was able to keep his oral meds such as nausea meds, a steroid etc down without getting sick that he could go home on the PCA that will continue to better manage his pain.
The 3rd day we were here or so I can’t remember exactly , he seemed to get this burst of energy and was up for 12 hours straight in great spirits, eating and drinking. So, Steve and I thought what the heck is going on that’s when he became emotional at bedtime and told us he wanted to try going back home. That’s when we decided if that’s what he really wanted we’d speak with the doctors about it.
He is still stable but has regressed since that day and has went back to sleeping much of the time and only eating and drinking very little unfortunately, ugh I’d be lying if I said that for the very first time, I’m actually a bit uneasy with the decision of going home. Just because I never want a repeat of last Monday night...
So, I am currently doing our laundry and preparing our bags to go home. Steve unfortunately started to feel like he may be coming down with something so he went to stay at his parents as he didn’t want Dalton to catch it so I have DC here to keep me company tonight:) he’s bored but I’m very thankful he’s here with me:) he’s such a sweet boy! Please pray that things remain peaceful and comfortable for Dalton as we make our trip back home. This kid has absolutely zero quit in his heart ♥️, he is the strongest person I’ve ever known and we are so very proud of him and to be his parents...
#prayfordray #DSRCTSUCKS #morethan4
He’s unable to keep food and water down which means no pain meds.
We are almost to KC Hospice at NKC Hospital to get him some relief. We don’t imagine we will be leaving without him
Please respect our privacy at this time, send lots of prayers and I’ll keep you posted.
He’s fought the good fight and while it breaks our heart... needs his rest
I’m sure many of you have thought or continue to think to yourselves ...
I couldn’t imagine if that were my child.. To stand beside your child as they fight against a disease that’s trying to kill them, to then watch them suffer through the harmful side effects from the poison that’s given to treat the disease....when in fact the treatment is actually killing them as well. Much of the time it’s a lose/lose...
You may also often find yourself wondering, how do they do it...we do it because we have to...no other choice were we given? And if it were to ever happen to your child... you’d do the very same. It’s just one of those unless it happens to you...type of situations.
So in a nutshell...watching your child die is just as horrendous as it sounds and what I’ve found is even worse than one could ever imagine.
You are forced to watch them deteriorate...slowing dying a little more with each passing day... and it’s heart shattering again, no other choice.
We went to the clinic as a family last Thursday to have a quick visit with his team , we gave them their gifts of Thanks, he needed to have his ports flushed and while they were at it had labs drawn. The labs weren’t for any specific reason, we were just curious to what the results would reveal about the functioning of his body.
Rewinding a little,,,we had started noticing all these superficial like veins all over his abdomen and chest. And as time had went on was only getting worse....starting to mirror onto his back as well. Pretty alarming to see so I eventually decided to contact his NP. It looked to her like distended collaterals which is an alternate route around a blocked artery or vein. Therefore these minor vessels try and help keep the blood flowing, they reroute as a way of the body protecting itself by keeping the blood circulating to whenever it’s needed. The human body is crazy amazing what it will try and do to survive.
The veins look really dark and much bigger than normal compared to never having seen some of them before, you can feel some of them as they actually poke very little out of his skin...being the more prominent ones than the others. Most likely the blockage of the blood flow is due to the progression of his liver disease. Either the tumor(s) may have blocked the portal vein which feeds the liver the majority of its blood supply or maybe a clot has formed , know way of knowing. ♀️
His Onc, by examination could feel progression of the liver lesions. She said she’d guess they have grown in size by a couple of centimeters. His liver enzymes were also much higher. Due to all the factors mentioned above it would indicate that his liver is failing
The worst part of it all and what has been the most difficult for me to watch is Dalton Ray struggle mentally. Since his liver is failing it’s no longer able to filter and rid his body of toxins/ammonia. This would be called Hepatic Encephalopathy(HE) ..His blood ammonia levels were 3x’s the normal range . What I still find a little strange is that we’ve yet to notice any jaundice, yellowing of the eyes and/or skin...♀️
So anyhow....the ammonia and other toxins are backing up into his brain causing, confusion, slurred speech at times, disorientation, forgetfulness, not able to pick things up etc.
I can attest that many of his symptoms are that of an Alzheimer’s/Dementia patients behavior/symptoms. It’s tough as you can see the disappointment , discouragement , confusion and embarrassment etc...all over his face and hear it in his sweet lil voice every time he realizes that he has had no idea what he’s been talking about.
He even referred to himself as stupid the other day I would have rather had someone rip my heart out and stomp all over it than to hear him say that about himself, I assure him several times a day that none of this is his fault nor does he have any control over it, when he gets irritated with himself.
Dalton is prideful and very smart so for him to be off of his game is frustrating for him. Many times we just go with whatever he says, just agreeing with him unless it’s something that could harm himself.
He’s unfortunately almost stopped eating completely, sometimes one meal a day but it’s not much more than what would be a handful for most of us. We have biscuits and gravy every.single.night ♀️
The one good thing that has helped in getting him by a little longer for now is that he’s been drinking Ensure Plus’s like water....so at least he’s getting nutrients in some way.
He’s still sleeping a lot, probably 20 hours a day or more. So the signs are there that he is indeed moving forward in this transition ...
It’s just feels so odd for the lack of a better word right now as I need to schedule Davin a dentist appointment and typically this is something that I would schedule for he and Dalton together but now I will only make the appointment for one:(
I suppose all the “firsts” will be difficult but what panics me most if I let myself think about it long enough is just how many “firsts” we will come across even daily for a while. We’re not just talking holidays... but even the smallest of things will ache deeply...
My heart somewhat already aches as we haven’t had a “normal” day for several weeks now. We spent so much time together considering the circumstances we were under ,
I suppose, I just don’t know how to explain it other than ...
I’m just really missing my friend...
#prayfordray #DSRCTSUCKS #morethan4
I am heartbroken for you all. I wish there was some way to make all of this go away. We continue to pray for you all and please know that Dalton really means so much to Sophia...I am very happy that they are good close friends!! Just wishing good thoughts..no matter how small. Keep fighting!!
God love all of you. I wish I knew of an answer to help, but I don't. I had you all put on our prayer chain at Old Union Church in Lawson last Sunday. Who knows maybe someone will come up with something. My heart hurts for all of you. In all honesty, it sounds like Hell on Earth! Praying in the mean time, that seems to be all we can do. Its such a helpless feeling.'
I’m trying to find words for you and your family and I’m at a loss. I simply can not imagine what, as a mother, you are feeling. I’m so very sorry. I also have a son named Daltyn, but the tables are turned a bit for he is watching me battle stage 4 pancreatic cancer. please tell Dalton he is not alone in his feelings and to remember that everyday we are here is another day for an amazing memory and it simply means that we still have a purpose whether we know exactly what that is or not. praying for all of you!
God love all of you!!! My heart hurts SO for all of you.
Blessings for our Dalton!
We are praying so hard for D Ray!!!!!!
It was so nice to see Dalton for Prom Pictures. I got a couple of really good pics! He is always in our prayers and will be praying extra hard tomorrow!!!!! Love, Sophia and Amy Ivy :)
As always your continued prayers and support are greatly appreciated! Seems we have all gone through this journey for a while now! And here we r on yet another. D-Ray continues to amaze me! Our lives have become such a roller coaster these past few years. Your donations have helped more than u will ever know as New York is not a cheap place to stay. And always helps with his more natural medications that are not covered under insurance. There is no donation that "is not much" as they
Again I would like to thank everyone for ur continued support to the Hanna family concerning my Grandson D-Ray. He is truly an amazing young man! Ur kindness,prayers and support are deeply appreciated! God bless each and everyone one of U! We will ALWAYS continue to fight, as U r doing along with us!
Thank you to all for your continued support and many prayers for our family as we continue to fight for Dalton’s complete recovery.
Thank U once again for all your love,support and prayers for D-Ray and family! Your donations are so greatly appreciated and needed as always. I'm so proud of the FIGHTER that he is and the family also. Bless each and everyone of U! D-Ray's Nana
I just want to say THANK YOU,all so very much!!, this is so so kind or you all, with the loving words the paryers, we greatly need it and apperciate it all, every little bit helps, there for this is only the begining and all the support is so wonderful," Faith makes things possible, not easy",,please keep d-ray in your prayers as well as the family,, we the hannas thank you so much!! have a great day, and may god bless us all..THANKS AGAIN!!! support,love, cant say thank you enough...xoxo