Dee's Spinal/Hernia Surgery Travel
Donation protected
Hi, I am Deanna (Dee)! I am 6 yrs old and just graduated Kindergarten with straight A's. I love school, swimming, & camping in my VW Bus!
I have a rare disorder, Klippel Feil Syndrome or KFS. It is a disease that affects my major organs, spine, muscles, hearing, vision, and causes chronic daily pain. I have only one lung that functions properly, one kidney, Scoliosis, Autism & I am nonverbal. I recently have seen a specialist and had some testing that showed, I need live saving surgery plus two additional surgeries. I have a hernia that is intertwined in the main artery & nerves in my lower abdomen, it could rupture at any moment and I would die. My other surgery needed is to remove a 1/4 inch mass on my spinal cord. The last survey is to remove a ovary that is in my groin. We will be going to Childrens Hospital of Philadelphia for neurosurgery and possibly Baptist for Hernia and other surgeries. My insurance doesn't provide for traveling expenses, so this is to help fund my travels back and forth, for presurgery testing and actual surgery. Any help will be deeply appreciated! I will keep you posted as soon as my PCP finalizes my surgery details. You can follow me at Dee..Life With Autism & KFS on FaceBook!
I have a rare disorder, Klippel Feil Syndrome or KFS. It is a disease that affects my major organs, spine, muscles, hearing, vision, and causes chronic daily pain. I have only one lung that functions properly, one kidney, Scoliosis, Autism & I am nonverbal. I recently have seen a specialist and had some testing that showed, I need live saving surgery plus two additional surgeries. I have a hernia that is intertwined in the main artery & nerves in my lower abdomen, it could rupture at any moment and I would die. My other surgery needed is to remove a 1/4 inch mass on my spinal cord. The last survey is to remove a ovary that is in my groin. We will be going to Childrens Hospital of Philadelphia for neurosurgery and possibly Baptist for Hernia and other surgeries. My insurance doesn't provide for traveling expenses, so this is to help fund my travels back and forth, for presurgery testing and actual surgery. Any help will be deeply appreciated! I will keep you posted as soon as my PCP finalizes my surgery details. You can follow me at Dee..Life With Autism & KFS on FaceBook!
Organizer
Janey Trivette
Organizer
Lenoir, NC
