David J. Bryson Treatment Fund

$13,165 of $50,000 goal

Raised by 109 people in 28 months
CB Clausen
on behalf of David Bryson
 YORK, PA
8/20/2016    Update time!   David is doing well with his sense of humor fully intact!   He recently underwent an outpatient procedure to have his abdominal feeding tube placed.  It will help him gain some lost weight and keep him strong.  His oxygen level is good and he uses a cane to steady himself, but has been advised that a walker may be more helpful.  Those legs just don’t always want to cooperate. He begins physical therapy next week and continues to meet regularly with the ALS clinic and his doctor at Hopkins along with regular alternative therapy appointments.  David’s speech has continued to decline and he uses texting to communicate.   The thing is, if you’re not physically around him (and perhaps are on the receiving end of any of his sometimes hilarious text conversations) you would have no idea there’s anything wrong. That’s part of the torment of this disease. David is the same guy, but without the ability to communicate spontaneously.  He can’t join a conversation, order a burger at the drive through (or eat one), tell the lady walking her dog to have a nice day (or go for that walk), and so many other little things we all take for granted.  With more good days than bad ones, he’s handling his demanding physical and mental challenges with supreme grace and continues to find humor in his situation.  His spirit is strong and his heart is so full of love and gratitude.  This guy, I’m telling ya.

Now I come to the challenge that originated this GoFundMe page.  Only a percentage of expenses are covered.  His alternative therapies are not covered at all.  There are some resources for equipment, if it’s available, like the “borrowing closet” with the ALS Association, but these resources are limited. If you’re interested, 'ALS Worldwide' has articles that give startling insight into the cost of ALS.

The generosity of contributors both financially and in kind is so very much appreciated.  A very special THANK YOU! to all who have given.  If you know someone who may not have seen David’s page, please share.  There are many ways to help other than financially too.  Stay in touch with him, offer a service if there’s something you’re able to give; your kindness, good vibes, prayers, and love are also very much appreciated.  It all means the world to him and Christine.

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Original Post:  
We are seeking donations to help defray the medical expenses of my brother, Dave Bryson, who was diagnosed with Amyotrophic Lateral Sclerosis (ALS) in October of 2015 at age 53.  The medical costs for care, medications and assistive equipment are overwhelming since only a portion are covered, and for some needs, not at all.    

ALS, also known as Lou Gehrig's disease, attacks motor neurons in the brain and spinal cord which transmit signals to the brain to control muscle movement.  Dave's symptoms can be traced back as early as spring of 2015 and he has been unable to work since October.   His speech, ability to swallow, muscle weakness and other symptoms are apparent and already quickly deteriorating with his bulbar onset form of ALS.  

If you know Dave, you know him to be one of the most hard working, kind, caring and generous human beings we have the privilege to know and love.  He is devoted to his family and friends, and generously gives of himself on a daily basis.  He gives the benefit of doubt to anyone in any situation, offering genuine respect and thoughtfulness to everyone.  True to the gentle soul that he is, has taken this crushing turn of events with grace and hope, standing strong for his family and friends as he searches for answers and lives with the progession of this socially isolating, devastating disease.   In addition to the physical and emotional challenges he is confronting, the medical costs are a burden beyond his reach.

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Please consider a donation to the David J. Bryson Treatment Fund to help Dave get the care and equipment he needs.   Your entire donation will be directed to medical/assistive expenses and to maintain quality of life for Dave.  Your generosity is most sincerely appreciated.

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We will be posting updates, but in the meantime please feel free to contact us and share this page.  Thank you.
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Hi All,
If you are following Dave on Facebook, are in contact with him by email or visit him, you know he's currently at York Hospital recovering from complications of the last few weeks. You will also know that communcation has become a serious challange for him. His friends have started a campaign to purchase equipment to keep the lines of communication open for him. Please note that funds donated to this site to date can only be accessed by him directly and have been used for out of pocket expenses since his diagnosis in October of 2015. Please read on for David's words (which took him literally 3 days to write using only one compromised thumb) and visit the website his friends have set up for him. As always, the support and love you have shown him and continue to give him are appreciated more than can be said.

From David:
Communicating to others when you have ALS can be frustrating on several levels.
As I type this with my thumb, my ability to do so is fading rapidly. The coordination and mobility of my left arm and hand are gone. Stage props if you will.
My right arm has limited movement, and coordination is noticeably weakening faster the last few weeks.
The worst part for me is, my brain is firing on all cylinders, and is actually in hyperdrive. I've got so much to say, so communication is my last connection to the world. It's one of the last gifts I can give to anyone.
I've always been a creative person and never a big reader, but I've found writing a creative outlet. I see it as gift given to me where other abilities have been taken away.
So here goes...
While at Hopkins ALS Clinic, Speech Therapy showed us a variety of assisting communication devices. They basically were shown in the order of disease progression. Last of which was called Eye Gaze Technology. I think I first saw this on an episode of Star Trek as s youngster. Funny how a few writers of a TV show came to be a reality. Not the first, and certainly not the last.
It's basically a PC that is calibrated to my retinas, which gives me full control of all programs simply by looking at them. While there that day, I had the opportunity to test drive it and kick the tires. I gotta tell you, it's pretty cool.
My ability to stay connected on Facebook, continue to entertain, impart words of
wisdom (aka wise-ass-dom), and of course, the occasional heartfelt thoughts running through my head.
I'm writing this reluctantly.
Those of you who know me, are aware I hate asking for help. I will do everything I can to find a way to get it done. Don't get me wrong, I ask for help, but only when I've exhausted the other options. Not in a stubborn way (admittedly, maybe a little), it's more of a determination/pride thing. Divide and conquer when necessary, but work as a team in the end. It's how many of us were raised.
So many of you contributed to the GoFundMe campaign early last year which was a phenomenal success! Thanks to all that participated in giving, it really helped to offset the out of pocket expenses and was much appreciated. That said, those funds were used for a variety of things.
A couple of friends got together and wanted to ensure my continued communication was quick and attainable, so they did the research and have put together a new campaign with a very specific purpose in mind.
I'd appreciate it greatly if you would go to our YouCaring page and see how easily we can solve this challenge.
Thanks for all the love so far, and for what's still to come.
Nothing but love,
Dave

Click here to support Help Dave Bryson to Continue His Narrative https://www.youcaring.com/davidjbryson-773923

Dave Bryson always has been a gifted narrator of his own condition and the world that swirls around him. He's defined by his humor and intelligence. He's…
WWW.YOUCARING.COM
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Update time! David is doing well with his sense of humor fully intact! He recently underwent an outpatient procedure to have his abdominal feeding tube placed. It will help him gain some lost weight and keep him strong. His oxygen level is good and he uses a cane to steady himself, but has been advised that a walker may be more helpful. Those legs just don’t always want to cooperate. He begins physical therapy next week and continues to meet regularly with the ALS clinic and his doctor at Hopkins along with regular alternative therapy appointments. David’s speech has continued to decline and he uses texting to communicate. The thing is, if you’re not physically around him (and perhaps are on the receiving end of any of his sometimes hilarious text conversations) you would have no idea there’s anything wrong. That’s part of the torment of this disease. David is the same guy, but without the ability to communicate spontaneously. He can’t join a conversation, order a burger at the drive through (or eat one), tell the lady walking her dog to have a nice day (or go for that walk), and so many other little things we all take for granted. With more good days than bad ones, he’s handling his demanding physical and mental challenges with supreme grace and continues to find humor in his situation. His spirit is strong and his heart is so full of love and gratitude. This guy, I’m telling ya.
Now I come to the challenge that originated this GoFundMe page. Only a percentage of expenses are covered. His alternative therapies are not covered at all. There are some resources for equipment, if it’s available, like the “borrowing closet” with the ALS Association, but these resources are limited. If you’re interested, 'ALS Worldwide' has articles that give startling insight into the cost of ALS.
The generosity of contributors both financially and in kind is so very much appreciated. A very special THANK YOU! to all who have given. If you know someone who may not have seen David’s page, please share. There are many ways to help other than financially too. Stay in touch with him, offer a service if there’s something you’re able to give; your kindness, good vibes, prayers, and love are also very much appreciated. It all means the world to David and Christine.
+ Read More
The bowling event for Dave held on April 16th was a huge success. Thank you to everyone who came out! Below please find an update in Dave's own words.

Hello everyone and thank you for coming to support me through this challenging time. If you do not already know, I was diagnosed with ALS, otherwise more commonly known as Lou Gehrig's disease, in October of 2015.

Here are some facts about ALS:
- every 90 minutes someone is diagnosed with ALS
- approximately 6,400 people in the U.S. are diagnosed with ALS each year
-the onset of ALS often involves muscle weakness or stiffness
-ALS is NOT contagious
-it is a progressive disease as it will take away many vital abilities (walking, writing, speaking, swallowing, and even breathing)
-ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries
- some people, through various treatments have had symptoms reversed
- some people have lived 20 or more years since being diagnosed

I am being treated by one of the top three clinics for ALS in the country, Johns Hopkins Hospital, more specifically, Dr. Nicholas Maragakis. There are now two FDA approved drugs for the treatment of some of the symptoms related to the disease, and I've been taking them for nearly 6 months now. The progression of speech loss, chewing food and swallowing even liquids has become increasingly more difficult. My weight loss is the main concern of my doctor, and after my last appointment, he has suggested a gastric feeding tube.

Being that there is no known cure, in addition to the treatment at Hopkins, we are trying other alternative means to help with this disease - from stem cell therapy in Mexico, to drinking the nastiest stuff you can imagine (quite literally I might add), to even acupuncture injections. Currently the injections, Deanna's Protocol, Reliv and Lunacin have shown some improvements in appetite, speech and swallowing. The stem cells I received may be a factor as well, as they said it may take 3-6 months to begin realizing the benefits of this treatment. We are very encouraged, to the point that if I continue to put weight on, I may hold off on the feeding tube. Encouraged is an understatement.
Insert Smile Here!!

Christine and I will be together 16 years on September 1st, and she has been amazing through all of this (again, major understatement). We lost her father, John, in February 2014 and she's now dealing with my health issues and constant care. My sons Tyler and Spencer, their better halves Jen and Mary, my sister Cyndy, Mom and Forrest, Dad and Mimsy, and so many other family members continue to be there for support and encouragement. Larry Barker needs a special shout out as well fo his ongoing generosity and support; not to mention John and everyone at Doceo have made the transition so easy from being at the office every day to being at home to enjoy the finer things in life. I am truly grateful. I've made a 32 year career of helping others with their problems, and now that the tides have turned everyone is helping me fix my problems.

I want to thank each and every one of you. I am truly blessed to have each of you in my life.
Dave

P.S. I am an Oriole fan - have been my entire life and always will be. The Lou Gehrig #4 pinstripes are the ONLY ones you'll EVER see me in! :)

Below are links to some really good information about current treatments, both traditional and alternave.
http://www.alsa.org/
http://www.alsuntangled.com/
http://answerals.org (Dr. Maragakis is a contributor to this site)
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$13,165 of $50,000 goal

Raised by 109 people in 28 months
Created January 15, 2016
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KS
$100
Kim and Scott
9 months ago

So great to see your smiling face recently- your strength and humor are truly inspiring. Love you, friend!

$100
Janis Waldrop
14 months ago

Love you David

BD
$100
Bert T Dixon
15 months ago

Keep up the fight David! Thoughts and prayers are with you daily. - Tom Dixon

RM
$100
robin mcneal
15 months ago

David: You are blessed to have your sister in your corner. She is an angel. I have been blessed to have her in my life for 25+ years. Sending good thoughts your way.

$100
Anonymous
16 months ago
$100
Anonymous
17 months ago
$50
Anonymous
18 months ago (Monthly Donation)
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