CURING KIDS CANCER MARATHON II 6/07/2014

$1,690 of $50,000 goal

Raised by 11 people in 55 months
The DHAAST. Bernadette Organization is a not-for-profit 501(c)3 organization which primarily focuses on the organization of sports programs for our community.  Our civic purpose is to foster community service amongst the youth in our area.  With our greatest efforts, we also try to strengthen and ultimately empower our children's sense of civic engagement and nationalism as they progress through adolescence.  In order to promote these qualities in our children, the Knights Organization continues to sponsor community events during each sports season to raise money and goods for various causes. 

From 2006-2012, through several different fund raising events (and your generosity), the Knights have successfully raised money to contribute to many wonderful causes in our community. These funds were donated to our military heroes through the Children of Fallen Soldiers Relief Fund and Breast Cancer Research through the American Cancer Society .  In 2013, we held our first Curing kids cancer marathon which benefited the Olivia Boccuzzi Foundation.  The marathon raised $ 47,000.00  that was put towards pediatric brain cancer research. 

This year will be no different as we will strive to again raise money for the Olivia Boccuzzi Foundation.   Our marathon will be held on Saturday June 7th , on 12th Avenue, starting from 9:00 a.m. and ending at 11:30 a.m.  It will mark our eighth annual kid's marathon. 

Here is story and mission behind the Olivia Boccuzzi Foundation

Olivia Marie Boccuzzi was born on the 17th of October 2009. She was the younger sister to our son James who was nearly 2 at that time. Olivia was just perfect. Frank, James and I could not have been happier. From the moment Olivia was born, we knew she was destined for great things. She amazed us with how independent and smart she was at such a young age. Olivia met all her milestones early. She walked at 10 months, spoke in sentences by 12 months, ran by 13 months, sang songs and climbed stairs at 14 months and so on. Olivia had a great passion for life. She was determined to squeeze as much laughter and adventure into each day. She loved to dance, paint, do puzzles, read books, make a mess, explore and run free. She loved her stuffed animals and her baby dolls, which she referred to as "friends". She loved her big brother James and they played and laughed and loved. She loved her dada and adored her mama. Olivia completed our family. We spent her first 23 months of life in total happiness. Each and every day was filled with fun and no real worries. Olivia was a very healthy child. We had no reason to suspect that anything was wrong. She never had a cold, never fell and passed her well visits with the pediatrician with flying colors. We were so thankful for this beautiful girl who constantly made us laugh and love. What an amazing kid! Every single day with Olivia was a blessing.

On September 21, 2011 life as we knew it ended. That morning, Frank and I noticed that Olivia was falling a bit at home and was somewhat clumsy. This was completely out of character for her since she really never fell. She walked so early and was very steady on her feet. We assumed that the falling must be associated with her age. She was only 23 months and kids fall right? Who thinks the absolute worst in this situation? Within a few hours, we noticed the right side of Olivia's face was droopy and her right arm and leg seemed weaker. Suddenly I noticed that her left eye turned in. It turned in and went back to midline. I ran to the pediatric ER at Maimonides Medical Center beside myself with worry that something awful was happening to my baby. They took blood, ran tests, and took scans. I assumed it was virus attacking her body and causing these symptoms. We needed to figure out what it is and give her the right antibiotics I thought. But what happened shortly therefore was something no parent could ever prepare themselves for. News that crushes you and takes your ability to stand upright and breathe. A CT scan of her head revealed a mass. We were told that our beautiful, amazing, smart little girl had a brain tumor. What? What are you saying? She is so healthy. Are you sure? There must be a mistake, we thought.

We transferred Olivia to NYU Medical Center that same day. An MRI was done which confirmed that she had a tumor in the pons of her brainstem. The brainstem is the center of the brain and all vital structures for survival are there. We were told that these tumors are usually highly aggressive and the prognosis was grim. We were advised that Olivia needed to start radiation therapy immediately. This was really happening. Saying that we were beside ourselves is an understatement. James just started Pre-k and Olivia and I just started a moms and tots program for 2 year olds. Life as we knew it in the Boccuzzi household would never be the same. We cried, and cried and cried some more. Literally overnight, our world was destroyed. In an instant, my sweet little girls' life was going to drastically change.

Olivia was diagnosed with a PNET (Primitive Neuroectodermal Tumor) of the brainstem. She was given a 20-30% chance of survival with much treatment. We never gave up hope. We were determined to do anything, and everything to cure her. I believed with every ounce of my soul that Olivia was going to be cured. She was going to defy the odds. From the moment of this diagnosis, I frantically researched, sent scans, and consulted with Neuro-Oncologists from the world's leading pediatric hospitals to seek out the "best" treatment.

Olivia's treatment consisted of 30 sessions of radiation therapy, which required daily sedation since she was so young. She underwent 3 brain surgeries including a 9-hour sub-occipital craniotomy and 1 spinal cord surgery. Olivia received 5 cycles of aggressive chemotherapy, which made her lose her beautiful hair, made her nauseous and vomit, and made her neutropenic and require blood transfusions. Along with this came a constant stream of blood draws, shots, MRI's, spinal taps, clinic visits, too many hospitalizations, physical therapy and so many other grueling medical procedures. Despite it all, somehow, Olivia was so amazing. She was so very courageous. She laughed. She played. She rarely complained. She still loved reading books, dancing, exploring and being with her family.



Despite surgery, after surgery, and trying different combinations of chemotherapy, the tumor was relentless. On August 17th, we were told the tumor was progressing and we had no other real options in regards to treatment. We started yet another experimental chemotherapy with the hopes that the tumor would respond and stop growing. But Olivia was getting weaker and the chemo was not working. We knew our baby was really sick but we never stopped praying for a miracle. Despite every effort to save our daughter's life, Olivia earned her angel wings on August 20th after an 11month battle. Our hearts will always carry the pain of losing our precious beautiful baby girl. Our souls long for the day when we will be reunited with her in heaven. Until then, Olivia will forever live in our hearts and minds as the most beautiful little girl to ever touch this earth.

As our family has learned, Childhood Cancer does not discriminate. It is the number one disease killer of children in the world. Olivia fought this horrible, cruel disease with everything she had and lived her entire life full of courage, laughter and much love. As her mama, I made her many promises. I told her I would make the boo-boo go away. I told her to keep fighting and mama was going to make it all better. Unfortunately, despite my hardest attempts, I did not succeed. But I will not stop fighting for her until survival rates improve, better treatments options are available and one day, a cure is found. We, as a family, are determined to carry on her name and press on for other children facing this gruesome disease and help find a cure for brain tumors.  We hope to be in a position to actual hire our first researcher in 2014.  We thank you for your love and support.  We are also looking for sponsors to donate to this cause and help us reach our goal. 
Please consider making a tax deductible donation today.

Enza Boccuzzi


If you are interested in running for such a great cause, please register online at www.knightsaa.org.   If you have any questions, please call me at 917-675-1476.

Thank you.
Sincerely Yours,
Peter J. McCarthy
President - Dyker Heights Athletic Association
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We are two months away from our Curing Kids Cancer Marathon II . On June 7th 2014 about 500 kids will run down 12th Avenu ein Brooklyn two miles to raise awareness and funds for Brain Cancer research and hopefully research treatments for this horrible cancer .
Help our kids reach their goal. Please donate today

Thanks Pete
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Hello everyone , please help us hit our goal
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DHAA St. Bernadette Curing Kids Cancer II wil take place on June 7th 2014 - please help us reach our goal for the Olivia Boccuzzi Foundation. We are almost able to hire our first researcher.
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Read a Previous Update
Riza Paulino
26 days ago

My name is RIZA PAULINO I want to sincerely appreciate PA OBA for bringing back my ex boyfriend back to me today, my ex boyfriend left me for over five months now and decided to search for a solution online and I saw many good work of this PA OBA. I contacted him on his email and whatsapp, I was so happy PA OBA cast a returned spell on him in just 3 days my boyfriend came back to me and apologize to me for what he has done to me. Today will are living peacefully and we both are preparing for marriage right now, all with the help of PA OBA. If you have a similar problem and you are confused and you don't know what to do or where to go,you can contact PA OBA right now on his email: obastarspell@gmail,com or you can message on whatsapp or viber: +2348144748581 he will help you out of that your heart broken problems.

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Bob Odia
10 months ago

Hi,please join me to say a big thanks to Pa Oba for helping me to get my ex partner back to me. Hey friends, you can email him on obastarspell@gmail,com or visit www,obastarspell1,webs,com and you may find a help to that your love and your ex problems

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Oriel Martins
36 months ago

God bless Dr. Osas for his marvelous work in my life, I was diagnosed of HERPES since 2012 and I was taking my medications, I wasn't satisfied i needed to get the HERPES out of my system, I searched about some possible cure for HERPES i saw a comment about Dr. Osas, how he cured HERPES with his herbal medicine, I contacted him and he guided me. I asked for solutions, he started the remedy for my health, he sent me the medicine through UPS SPEED POST. I took the medicine as prescribed by him and 14 days later i was cured from HERPES, Dr. Osas truly you are great, do you need his help also? Why don't you contact him through doctorosasherbalhome@gmail.com whatsapp him on +2348112252378 DOCTOR OSAS CAN AS WELL CURE THE FOLLOWING DISEASE:- 1. HIV/AIDS 2. HERPES 3. CANCER 4. ALS 5. Hepatitis B 6. Diabetes

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Jack Allen
40 months ago

Its a pleasure for me to write this testimony about this wonderful thing that happened to me last week on how i got my HIV aids cured, i have been reading so-many post of some people who were cured of HIV, but i never believed them, I was hurt and depressed so I was too curious and wanted to try dr.Ariba then i contacted him on his email on dr.aribaspelltemple@outlook.com, when i contact him, he assured me 100% that he will heal me, i pleaded with him to help me out, its a great success that he healed just as he promised, he told me that in three days time that i should go and check on my HIV status, I was floored that when i went to the hospital to check of my status that i was HIV negative, i never thought possible that dr.Ariba can do miracles, i never really believed in magic but I played along with a little hope and and faith and after everything but dr ARIBA changed my life and made me a true believer you can contact him on dr.aribaspelltemple@outlook.com, or draribaspelltemple@gmail.com so he can help you out

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Gurcharan Kaur
49 months ago

I am Gurcharan Kaur from New York. I was in trouble when doctor told me that I have liver cancer.. I though about my children and my husband, I know my children will face a serious problem when I gone, I lost hope and I wept all day, But one day when I was surfing the internet I found Dr. Oraede's contact number. I called him and he guided me. I asked him for solutions and he started the remedies for my health. Thank God now everything is fine, I'm cured by Dr. Oraede herbal medicine, I'm very Thankful to Dr. Oraede and very happy with my hubby. email him on dr.oraedespellhome@hotmail.com dr.oraedespellhome@gmail.com, call him on +2349038604218

+ Read More

$1,690 of $50,000 goal

Raised by 11 people in 55 months
Created February 19, 2014
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JH
$25
Juli Hencoski
52 months ago

Go Torrillo Kids!

HG
$20
Hannah Grill
52 months ago

Good luck kids!

FF
$100
Frances Farinola
52 months ago

We love you very much and think of you every single day!!!

DF
$500
DeLuca Family
54 months ago

Speechless. May God continue to watch over the Boccuzzi family as well as their little angel. I lost my angel "childhood sweetheart" last year to cancer. Stay strong. Xoxoxo

Riza Paulino
26 days ago

My name is RIZA PAULINO I want to sincerely appreciate PA OBA for bringing back my ex boyfriend back to me today, my ex boyfriend left me for over five months now and decided to search for a solution online and I saw many good work of this PA OBA. I contacted him on his email and whatsapp, I was so happy PA OBA cast a returned spell on him in just 3 days my boyfriend came back to me and apologize to me for what he has done to me. Today will are living peacefully and we both are preparing for marriage right now, all with the help of PA OBA. If you have a similar problem and you are confused and you don't know what to do or where to go,you can contact PA OBA right now on his email: obastarspell@gmail,com or you can message on whatsapp or viber: +2348144748581 he will help you out of that your heart broken problems.

+ Read More
Bob Odia
10 months ago

Hi,please join me to say a big thanks to Pa Oba for helping me to get my ex partner back to me. Hey friends, you can email him on obastarspell@gmail,com or visit www,obastarspell1,webs,com and you may find a help to that your love and your ex problems

+ Read More
Oriel Martins
36 months ago

God bless Dr. Osas for his marvelous work in my life, I was diagnosed of HERPES since 2012 and I was taking my medications, I wasn't satisfied i needed to get the HERPES out of my system, I searched about some possible cure for HERPES i saw a comment about Dr. Osas, how he cured HERPES with his herbal medicine, I contacted him and he guided me. I asked for solutions, he started the remedy for my health, he sent me the medicine through UPS SPEED POST. I took the medicine as prescribed by him and 14 days later i was cured from HERPES, Dr. Osas truly you are great, do you need his help also? Why don't you contact him through doctorosasherbalhome@gmail.com whatsapp him on +2348112252378 DOCTOR OSAS CAN AS WELL CURE THE FOLLOWING DISEASE:- 1. HIV/AIDS 2. HERPES 3. CANCER 4. ALS 5. Hepatitis B 6. Diabetes

+ Read More
Jack Allen
40 months ago

Its a pleasure for me to write this testimony about this wonderful thing that happened to me last week on how i got my HIV aids cured, i have been reading so-many post of some people who were cured of HIV, but i never believed them, I was hurt and depressed so I was too curious and wanted to try dr.Ariba then i contacted him on his email on dr.aribaspelltemple@outlook.com, when i contact him, he assured me 100% that he will heal me, i pleaded with him to help me out, its a great success that he healed just as he promised, he told me that in three days time that i should go and check on my HIV status, I was floored that when i went to the hospital to check of my status that i was HIV negative, i never thought possible that dr.Ariba can do miracles, i never really believed in magic but I played along with a little hope and and faith and after everything but dr ARIBA changed my life and made me a true believer you can contact him on dr.aribaspelltemple@outlook.com, or draribaspelltemple@gmail.com so he can help you out

+ Read More
Gurcharan Kaur
49 months ago

I am Gurcharan Kaur from New York. I was in trouble when doctor told me that I have liver cancer.. I though about my children and my husband, I know my children will face a serious problem when I gone, I lost hope and I wept all day, But one day when I was surfing the internet I found Dr. Oraede's contact number. I called him and he guided me. I asked him for solutions and he started the remedies for my health. Thank God now everything is fine, I'm cured by Dr. Oraede herbal medicine, I'm very Thankful to Dr. Oraede and very happy with my hubby. email him on dr.oraedespellhome@hotmail.com dr.oraedespellhome@gmail.com, call him on +2349038604218

+ Read More
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