I am the Aunt of the very special and wonderful Elizabeth Hanalai Guy. Elizabeth is a bright, cheery and energetic, six-year-old with Lennox Gastaut Syndrome (LGS) who lives in Brandon, Mississippi. Elizabeth is physically growing and developing in size normally; she is attending Kindergarten to learn colors, shapes, numbers and social skill development. LGS has significantly impaired her gross motor skills (walking, bathing, feeding), fine motor skills (grabbing, coloring, pointing), and verbal capacity (less than 50 word vocabulary) that "normal" children enjoy daily.
LGS is the rarest form of Epilepsy characterized by both tonic and atonic seizures, multiple times during the day and night, that are difficult to control and require lifelong medical treatment. Elizabeth has been blessed with a Vagus Nerve Stimulator (VNS) implant (pacemaker to control seizure frequency), but there is no cure for the disease and it will continue to impair her into adulthood.
As Elizabeth continues to grow and become heavier, caregivers will rely upon a wheelchair to transport her to school and medical appointments. Elizabeth's parents are financially stretched with her medical bills and specialized dietary needs. Mom works all the hours available at her full time job and Dad is on a part time status after taking time off to care for Elizabeth at home. The Guy family also has two other children.
Our goal is to raise $5,000 as a down payment for a reliable, Wheelchair Accessible Van for the Guy family by Christmas 2016. The van will improve not only Elizabeth's quality of life negating mobility obstacles, but that of her Mom, Dad, Sister and Brother so they can travel together and spend quality time as a family. Any help you can give-whether it is $5 or $50 or $500-will be appreciated. Thank you for your time and consideration of becoming one of "Elizabeth's Emissaries" and supporting this wonderful family.
Epilepsy.com LGS Page
Elizabeth's Emissaries, your unwavering generosity is reflected in the $920 raised in the last 24 hours!!! Thank you to all who have contributed either financially or through sharing and praying. 100% of donations go toward a van that will hold "Big E's" special medical equipment and protect her from extreme weather conditions that cause seizures and potential further brain injury.
We are still $2,000 short of our $5,000 goal. Get Excited! Get Motivated! Spread the Word!!!!
Please share with as many people as possible through Facebook, email, and chatting with friends, family or co-workers. Add your personal message and encourage others to read Elizabeth's story on her Go Fund Me page. Remember-not everyone is able to donate; extra shares and prayers for Elizabeth are graciously accepted! Thank you all for your hard work and dedication to "Big E" and The Guy Family.
"But the fruit of the Spirit is love, joy, peace, patience, kindness, goodness, faithfulness, gentleness, self-control; against such things there is no law." -Galatians 5:22-23
We are still around $3,000 short of our $5,000 goal toward the van down payment. Please keep sharing and telling Elizabeth's story to support this loving family. They pay 100% of uncovered medical and equipment expenses out-of-pocket since they do not receive State Assistance.
Did you know that Elizabeth was born without the ability to sweat, and the hot, Mississippi temperatures cause her to over-heat and have seizures? Because of your kindness Elizabeth will be a happier, healthier Kindergartner with an air conditioned vehicle!
The contract on the van is not final until next weekend, so there is still time to come up with the down payment. We only have $1,255 of the $5,000 the Guy family needs. Please donate if you are able, please share and spread the word if you cannot! Thanks all and have a great week!
We cannot thank you all enough for helping us have a down payment for the van! It is SO much easier to get the stroller and other equipment into the back of the van and to get Elizabeth into her car seat! This has also given us peace of mind not worrying about the car breaking down in the hot Mississippi heat. Your support is truly appreciated!