Bezalel's PDA Heart operation
I was 5 weeks pregnant when I got infected with this so called childhood sickness, which I never thought would ever happen to me... It caused a devastating effect on our son, who was born with cataracts (both eyes), profound hearing loss (both ears) and the most crucial organ was also affected, the heart. He was born with 2 Congenital Heart Defects: PDA & VSD. All pointing out to Congenital Rubella Syndrome.
A VSD (Ventricular Septal Defect) is a hole found in the wall separating the left and right ventricles of the heart.
A PDA (Patent Ductus Arteriosus) is when the Ductus Arteriosus did not close when baby took his first breath. We all have a Ductus Arteriosus, but it closes as soon as we take our first breath.
Unfortunately, Bezalel's patend ductus is still open even when he took his first breath. And we only have limited time for it to be closed because once the pulmonary pressures rise, it will become irreversable thus, we won't be able to have a chance to have his PDA closed by that time. The Pedia Cardio told us it will take years for the pressures to build up, but when this would be, we are uncertain and we are not taking risks on delaying it more especially when his growth is very much affected.
Our journey to having his heart mended started when we first knew about his heart defects after he had his 1st 2D Echo at 5days old. Since then, it felt like the world crumbled upon us. Decision making was between life and death for our son, which was really quite hard. Especially when he is born at 1.3 kilos (2lbs & 14oz) and whenever the doctors would see him, we were always told about the risks. His maintenance had been quite expensive for us, especially when I gave birth to him through C-Section and he stayed in the NICU for 2weeks and 3days. We're doing our best we could to provide for his needs, setting aside the lack of resources we come across each day. We have been to charities and we just ended up being rejected because we cannot defend, “What quality of life will the baby have?” they ask once they will do the needed heart operation. To start, he was never born quite like other babies are. He is SPECIAL. And it hurts that this repeatedly becomes the reason why he can't have free surgery for his heart because he is different.
But we refuse to put our hope on the ground and leave him be as he is, because we have seen his struggles. Even at the very 1st of his heartbeat, he has already been fighting to live, and though I was bleeding at my pregnancy, he made it through that, and even when there are more uncertainties we could count of when he was born, he surprised us though very tiny, he breathed on his own. I wish I could include all the details I could think of of Bezalel's journey to life, but as much as possible I wanted all to know how much he fought strong and still manage to smile and laugh and be happy.
That's why we continue to fight for him and thus we are raising funds even just for his 1 heart defect that would be done through Close Heart Operation to close his PDA so as he could grow much better and his heart would not be burdened too much because of these 2 holes.
Please help us raise the necessary funds Bezalel needs, and to continue to march on this journey we walk with him. He will be turning 2 years old on December 5, 2014. Hopefully, we will be able to raise his needed funds and have his surgery done by January next year.
Thank you, and God bless!
I may not be able to mention everyone's name to thank you all, and to let you know how grateful our family are, but I know God will be the one to repay you for all of your kindness.
Bezalel's PDA was huge. It was scary to know it only after the procedure. The doctors were surprised too, that they have to replace the device for a bigger one to be able to close his PDA. Bezalel was able to recover really well after the procedure. He was also progressing a lot and I am happy to let you know that he is now gaining strength and will soon be able to walk. Bezalel is now able to walk a few steps, while I hold him with his hands. The impossible things, are now slowly becoming possible for him.
In a few days, we will be celebrating his 3rd Birthday. I can't ask for anything else. I just want to thank you all, for your never ending support for Bez.
Also, from the X-Ray, his heart is enlarged (normal is 2.6, Bez' is 3.7). He NEEDS the surgery ASAP to close the PDA which actually the one causing problem most especially in his weight gain/ growth.
The pedia cardio mentioned using heart catheterization ( http://www.aboutkidshealth.ca/…/patent-ductus-arteriosus-pd…) and a device inserted through the catheter to close the PDA. This will cost us P250,000.00 (Converted, it is $5682 for an average conversion of $1 = P44.00) included in this quote is emergency operation just in case device will be detached due to the rising blood pressure most especially after operation if ever he will cry out of discomfort. Also, the doctor suggested he will be sedated for 24 hours to prevent detachment of the device after the operation.
Currently our funds are at P140,000.00 We still need P110,000.00 to complete Bezalel's needed funds for his surgery. We also do not have any funds yet for our plane ticket to fly back to Manila and our pocket money (to buy food, etc. while in Manila).
Please, please, please help us achieve his needed funds. We wish to have his surgery this December. If only our funds will be complete by that month.
Please help us give Bezalel a chance to life. He's been fighting to strive ever since his 1st heartbeat. He showed to us how much he really wanted to live. Please, to those who wish to make a donation, or buy our goodies (brownies & pastillas), please check for the details from the pictures below.
PLEASE HELP US SAVE BEZALEL'S HEART
God bless you all!
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