Bernadette's Cancer Journey

$20,260 of $20,000 goal

Raised by 188 people in 54 months
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Bernadette was diagnosed with a stage three Neurblastoma (bigger than a very large grapefruit) pretty much wrapped around her aorta in late September of 2014 at 9 months.

She underwent 4 round of chemotherapy at Phoenix Children's Hospital and was set for a resection (removal) of her tumor in January of 2015.
Her surgeon there called last minute to tell us that it was not-resectable; he didn't feel he could safely remove it without damaging her vital organs. We sought a second surgical opinion with a doctor at Memorial Sloan-Kettering in New York City. He agreed to the surgery. It was routine for him; there were very few  risks, despite the location. We arrived in NYC for the surgery and left our baby girl on February 13th in the hands of all the doctors. After an almost 12 hour surgery, her tumor was out but there were unexplained complications. She had to have some of intestine removed that connected to her stomach (in a Whipple procedure). She went to the PICU and we were told she was very, very critical and very unstable. She was on a ventilator and 4 blood pressure medicines among many others. We were told she wasn't going to live. The next morning she underwent another surgery, things still were not looking good for sweet baby, Bee. They put more drains in her. She made it through the weekend though, thankfully. On February16th she was back in the operating room needing more of her intestine removed. There were many little unexplained clots in her system. They asked for genetic testing to be done to try to get to the bottom of why she went from a very successful removal of her tumor to critical in a matter of minutes. She currently has an ostomy bag. And they are not sure of the state of her pancreas, so she goes off and on insulin. She needs to have her stomach reattached to her intestines still (the Whipple needs to be completed) though they cannot do that until she is off all her pressure medications. She is doing a bit better and they are labeling her stable now. However, she has much more healing to do and needs at least one more surgery. We will be staying in New York City, 2,000+ miles away from our home while she finishes out her ICU and subsequent in-patient stays here. We miss our baby girl's smiling face and can't wait for her to be playing with her best friend, her big sister, Adelaide. 
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We have been back at Phoenix Children's for a few days now. Bernadette is doing as well as can be expected. She's on a relatively stable insulin regimen and is still on TPN (IV nutrition). But they have discussed her going home soon! Thank you all for helping us get through the most difficult time in our lives. Your love, support, prayers, etc. truly helped us out. Without all of you, this road would have been very rough for us and we are eternally grateful for everything you have done.
Much love,
the Sanchez family
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We went down to the scan and it was the best possible outcome in regards to a leak. It's very, very small and will be hopefully fixed with just rest so her body can heal itself. It shouldn't deter us from being able to be transferred to Phoenix Children's sometime soon. Thank you all, as always.
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We're on our way to a scan this morning. Please keep Bernadette in your prayers. It appears food was found in her JP drainage bags. They think there is a bowel leak and will know more from the scans. She is NPO (meaning she cannot eat by mouth) and they stopped her feedings through her J-tube. This is a bump in the road but we will know more soon. Thank you all, as always, for your love, support and prayers.
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Bernadette has been put on a clear liquid diet for the first time in 2 months! First food other than the lollipops! A big step in the process to go home!
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Read a Previous Update
Peggy Tompkins
54 months ago

Your daughter and your family are in my prayers

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Benjamin Robles
54 months ago

It was great to see this princess today with her eyes wide open and looking at me like I was "one of them" (the nurses/doctors) :) God is doing an amazing job of restoring her health and the joy of seeing this miracle unfold right before our eyes leaves me speechless! Hang in there Danny and Kate!! We're right here with you! Love ya (our church members and family say "hi - we're praying!")

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Cathy Pregmon
54 months ago

Consider helping this little girl. She is the granddaughter of a friend and her family has relocated to NYC from Arizona to help keep her alive. Thanks for all you do.

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$20,260 of $20,000 goal

Raised by 188 people in 54 months
No Longer Accepting Donations
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Created February 19, 2015
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$1,570
Anonymous
52 months ago (Offline Donation)
AO
$25
Amelinda Olson
52 months ago
1
1
JB
$50
joe breslin
52 months ago
$20
Anonymous
52 months ago
BB
$25
Betty Black
52 months ago

The little one is in my prayers. Also, for you, Kate, as you face another bump in her road to recovery.

JG
$100
Jean Gilronan
53 months ago
CS
$20
Carolina Smith
53 months ago
JF
$50
John J Fiscaro
53 months ago
$232
Anonymous
53 months ago
JB
$50
Jennifer Bommentre
53 months ago

My thoughts and prayers are with you and your family.

Peggy Tompkins
54 months ago

Your daughter and your family are in my prayers

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Benjamin Robles
54 months ago

It was great to see this princess today with her eyes wide open and looking at me like I was "one of them" (the nurses/doctors) :) God is doing an amazing job of restoring her health and the joy of seeing this miracle unfold right before our eyes leaves me speechless! Hang in there Danny and Kate!! We're right here with you! Love ya (our church members and family say "hi - we're praying!")

+ Read More
Cathy Pregmon
54 months ago

Consider helping this little girl. She is the granddaughter of a friend and her family has relocated to NYC from Arizona to help keep her alive. Thanks for all you do.

+ Read More
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