#Battling4Brianna (Beat Leukemia!)
Luckily, Brianna has insurance; however, we all know that the out-of-pocket expenses will get very high. Duke University Medical Center recently estimated monthly out-of-pocket expenses for cancer patients to average $1,266 a month. On top of co-pays, deductibles, and medication, Brianna's parents will be missing out on pay for taking off time at work to be with their daughter.
I started this page to help out our great friends, Nina and Aaron (Brianna's parents), in taking one thing off their plate right now.... the concern about money. We hope you will give generously to help this family be able to spend more time with their daughter during this time and be able to keep up with this expensive treatment. We are asking for $25,000 in this first round of funding, and if we could get 1,000 people to give just $25, we can make this happen for her!!
For updates on how Brianna is doing, please also visit and like the Facebook page we set up for her at:
Please help us in #Battling4Brianna!!!!!!
Thank you for your support!
It has been a long day!! We started at clinic at 9:30 this morning. Brianna got her dose of chemo and we headed to same day surgery for her port placement. Aside from a little tears before surgery, the procedure went well and Brianna's port was placed and is working without issue. Even better her picc line was removed, she was so happy about that. The
surgery lasted about an hour and 20 minutes and following recovery we headed home just before 5pm.
She ate as soon as we got home, she hadn't eaten in like 13 hours, so she was starving!! She is having some pain at her port site, which is totally normal! She is a little groggy from being under so long. She is frustrated because she is having trouble finding a comfortable position to sleep. All of this is very temporary. I suspect by the end of the week she will feel 100% better.
Today began the phase of her treatment called consolidation. In this phase she will go to clinic once a week. During these visits she will have a lumbar puncture so they can inject chemo into the spinal fluid. She will also take chemo, in pill form, every night for 28 days. The doctors have told us that she should have more good days than bad days in this phase of treatment. We are looking forward to that! .
"She feels like poo!" (She loves that emoji) But tomorrow is a new day...
The results finally came in!!!! We are STANDARD RISK!!! Woohoooo!! Thank you, all, for your continued prayers and kind words. This is definitely a victory!
Standard Risk means there is no detectable leukemia left in her blood. She will still continue her phases of treatment over the next 2 years. However, the acuity, or intensity of the chemo is less than it would be with high risk. The other nice part is that she will not have to have anymore bone marrow aspirations unless they suspect there's a reason to. I will be able to get a schedule, of treatment, that goes out a couple months. That's such a big deal for me as I will be going back to work soon and I need to plan.
We will be heading to Children's, tomorrow, for her port placement. She's going to get her picc line removed as well. She is beyond excited for that!! I talked with them today about taking it out while she's under anesthesia so she's doesn't have to suffer through the dressing coming off her raw skin. They agreed that would be best. I am so relieved by that!
A million thank you's to all who have thought of Brianna. To all that have held her in prayer, thank you for your faithfulness. I've said it before, but I'm going to say it again..we have never felt alone through all of this! We are forever grateful for and humbled by this experience. ❤️
Upon finding out she was standard risk
(I captured her reaction to the news)
Well, unfortunately, my fears about this morning's dressing change came to fruition. It was pretty awful. Brianna's poor arm was so raw and irritated. We used a different solution to clean it, hoping it wouldn't sting, but with the condition of her skin it didn't matter what we used. She suffered through it and we finally got a different dressing on. I despised every second of it, for her, and am so grateful that the picc line will be coming out on Tuesday.
She did bounce back a little in the afternoon. She sat with a couple visitors for a little over an hour. She laughed and joked with them...music to my ears . She just finished up some spaghetti and meatballs for dinner and I'm hoping she will go to sleep early tonight.
Tomorrow is the big day for test results!!! Hopefully I should have them by mid morning.
As promised, I am including Bri in these updates. When I told her what I was thinking she looked at me like I was crazy. But, I think it will be good for her! When I asked her what she wanted her first message to be...
" I feel fine, that's it!"
Short, sweet and to the point! Said with a little sass...that's my girl
I am so happy to report that Brianna has had a fantastic day! First, she slept through the night and did not wake up until 6am. She took pain meds at that point and went back to sleep until 10am . She needed that!! She spent a good portion of the day coloring, playing games and socializing! She had quite a busy day with visitors and she was able to keep up! Today was the first day, in a long time, that she has really felt like being active.
The pain control plan that the docs came up with yesterday seemed to make all the difference today. She has not suffered at all today!! We have been able to stay on top of the pain. I don't have the words to express how grateful I am for that!!
As it nears 8pm, I am starting to think about tomorrow, and what that brings. She has a home care visit, which means a picc dressing change, and I am nervous about this one. She has developed a rash or irritation to the skin at her dressing site. I am just fearful that it will make tomorrow's dressing change that much worse. I know she is dreading it too. Deep breaths...
I hope everyone has enjoyed this soggy Saturday..we sure have made the most if it!!
I would like the overlay for my profile. Thank you. Also always praying!!!
I would like the overlay for my profile please.
Dear Lord, I thank You for Your enduring love and boundless mercy for all of us. I come to You today with heavy sorrow and a burden on my heart. I pray of You, oh merciful Lord, to rid little Brianna's body of leukemia. To end the scourge of the leukemia in her body and to bathe her in the light of Your goodness and grace. To send her illness into remission through the power of Your cross, Lord Jesus. Sustain Brianna and all her loved ones with Your love and light, oh Lord. Give her the strength to win this battle, as You faced Your own torment on the cross. In Jesus name I pray. AMEN!