Please help Ashley beat Lyme + Co

$12,788 of $40,000 goal

Raised by 316 people in 45 months

Friends near and far, fans, family and strangers,
This is the absolute hardest most humbling shaky scary message I've ever had to write and I've been debating it for longer than I should have. Asking for help isn't something that I have been raised to do or know how to do. I have been raised to be quiet and endure. I think most people are.
I am going through the hardest thing I've ever had to go through. I've been sick for 14 years with a 'mystery neurological illness'  which was never resolved, though it was liveable. This initial illness displaced most of my memory, my ability to see colors correctly, my eyesight and my ability to sleep without being shocked in and out of sleep. Again though, it was liveable.
About 3.5 years ago, it became more acute after a very traumatic experience, which left with my eyebrows falling out and a very complicated case of shingles that left painful scarring on my left ribcage. The stress of that time and the initial virus left my already compromised immune system permanently inundated and my adrenals so fatigued that my entire endocrine system slowly started malfunctioning as it became more and more out of balance. It began with exhaustion and over the course of the last 3.5 years has become so bad, I currently have hypopituitary, secondary adrenal insufficency, and hypothyroid.  
Further & to add insult to injury, I was diagnosed with nuerological lyme's disease and its coinfections when I was working on getting my endocrine issues sorted through an incredibly flawed medical system.  
I have seen allopathic doctors which led me very quickly to better doctors: naturopaths, energy workers, acupuncturists, herbalists, reiki practitioners, cranial sacral therapists, shamanic healers, mayan healers, ayurvedic healers, functional medicine doctors, fill in the __________. 
I wish my story could just stop there and get better, but it doesn't. With the plethora of testing I received naturopathically and via a functional medicine doctor, finally last year, I was also diagnosed with what is called mold toxicity when I came back as positive for having a lethal dose of black mold in my own system. We discovered my apartment and childhood home - a place i'd spent the bulk of my life (on and off) had black mold and aspergillus freely growing in a wet and dark basement. This adds something to the body called 'neurotoxins' which essentially, just like lyme, poisons your nervous system, damaging it and slowly disabling it. 
All of these things together, slowly and overtime left untreated, caused me to develop an autoimmune disorder much like MS or Lupus. For brevity sake, an autoimmune disorder is an immune response to something the body detects as an infection or 'foreign' and over time, with an unresolved infection or toxic exposure, the body stops having a normal immune response, becomes overworked, confused, and is too inflamed and begins attacking itself kind of through an overzealous misfiring of itself to get whatever it is out of you. My body has developed such a severe immune response to almost every food, drink, etc, even crashing in sunlight from being so inflamed that the heat is so much I have an autoimmune 'crash' | Typically during these crashes, my respiration cuts out and I end up in a hospital with an IV in my arm and them monitoring my heartrate. 
I wish my story could just stop there and get better, but it doesn't...
When the body is immunocompromised, from lyme or mold or any other infection that poisons the nervous system, you just start taking on infection after infection from lack of immunity. This is when things begin to really spiral.
In the last year, from being so immunocompromised at these exposures and in such end stage systemic exhaustion, I took on yet another infection which damaged my kidneys. Doctors didn't decide to treat for 7 months because of a flubbed lab report and in that time, it not only extensively damaged my kidneys and adrenals, but moved up into my lungs and heart, thyroid and finally my brain. Needless to say, I have been largely homebound since. Who wouldn't be I guess?
Unfortunately, I was also mostly alone in that time. Much of the last year has been spent in a bed or on a couch, laying, developing shaking and unable to support my own body weight. 
At this point when I stand up I am so tachycardic I cannot stand up without risking something incredibly serious. I am unable to take walks most days and the farthest I can make it is out to the yard. Like most people with chronic infection and mold toxicity, I am highly sensitive to EMF, not made better by living in the heart of a city.
I have not been able to do anything on my own for over a year. This is so humiliating that usually I try to do so, even when it risks my life. This has been especially hard because being a teacher and photographer had me traveling nearly 24/7 the world over and photographing/editing in every waking moment, all things I heartily enjoyed.
In the last ten months, I have not been able to take a full breath more than a few times, having what is known as 'air hunger', my lungs are so swollen that they hurt, and my neurotransmitters are so out of whack that nothing is regulating my mood, breathing, sleep, etc.
My digestion has been so damaged from poisoning and infection that I am not absorbing my food and nutrients and ulcers have formed, further disabling my ability to properly eat. The last 4 months my nervous system started being eaten into as well as my myelin sheaths and I have stopped being able to control swallowing, lifting my arms at certain times of the day, and squeezing my stomach as I become more and more oxygen deprived and toxic, causing poisoning and oxidative damage to my very mitochondria, the energy cores of the entire body on the cellular level. I am very close to the diagnoses of ALS at this point, which is typically fatal according to allopathic medicine. A mitochondrial disorder is also something that can take your life. 
A month or so ago, they found lumps on my pituitary. I also have lumps throughout my stomach. lungs, pelvis and breasts. Because these were not cancerous, nor has any of my bloodwork been too out of range, I have continued to slip and slip through the cracks of the medical system with no solid treatment plans, even wheelchaired out to a curb from an ER on several occasions, when I was nearly unconscious and couldn't walk.
All people who have ever gone through *chronic* lyme or its coinfections know that western medicine doesn't believe in, nor will treat it. They know absolutely nothing of nutrition beyond a few hours of training and they know absolutely nothing on how to treat mold exposures. 
Lastly, perhaps the straw that broke the camels back, my relationship ended under the strain of such endless prolonged illness, leaving me alone to take care of myself about 2 months ago for the first time in years and back in the house where mold poisoned me and is still growing in the basement. It was quite the transition.
These are not the kind of molds that friends can come over and clean up. And trust me, we all considered it.
They require hazmat suits and professional equipment. They will hurt anyone that breathes them in for any amount of time at all. 
I've been here for two months trying to figure out what to do while watching my health decline even further. I cannot sit here and do that any longer. I cannot pretend that taping the vents will protect me from mold already in the house and I have  no energy to clean even a countertop.
Presently, half of my days, my body will no longer adjust to outside air. The regulatory signals in my body are destroyed. Noone yet even really knows what causes this so it's just labeled 'damage' and I am sent on my way. Obviously this is terrifying, especially for someone who was so rooted in nature.
What I have today, because of all of the above, is referred to as an infectious brain injury. Many have heard of traumatic brain injuries, which leave people in wheelchairs and disabled, with strokes or paralysis, from things like car accidents. Mine is no different, except caused by massive infection and poisoning and no treatment for it.
I feel so alone the last months, more alone than I have ever felt. 
I have cried so often these months in the dark, alone in corners, not wanting to bother anyone. My best and closest friends have convinced me that I must reach out, even if it ruins my career. 

I can't tell you the journey it is to be a person who has gone through this or watching partners and family, become so traumatized through hospitals and late nights, that one day their eyes begin glazing over as they watch a loved one slowly die, not having any idea where to go or what to do.
I can't tell you how many people in this world have to go through autoimmune disorders where doctors send their patients home to die, not truly understanding the real underlying cause.
I can't tell you how many people have to do this that have lyme and its coinfections or mold exposures being sent home to do the same.
My family and friends and especially myself, have exhausted all of our funds and abilities, both in manpower and financially. 

We have spent nearly 70,000$ dollars out of our pockets, I have seen more doctors than are countable. We have exhausted the options in MN. I don't have a house that is safe to breath in. I don't have enough medical support here. My heart is breaking under the weight of this illness and from the loss of so much. But my spirit is not broken and I am opening myself to the world.
I always, always, try to remain strong & positive, but I'm afraid and I'm opening myself.
******I want to live****** | This is an important part, that I still choose to live . I feel sometimes even, that choosing to live is a key to doing so. I have faced death a handful of times in these years,  tilting my head at it and considering if it was just time & came back thinking "no" - I want to live.

I loved my life & I love this world. I was running on scottish hillsides when I began to notice I truly wasn't myself anymore. I was in the middle of a bookdeal that had to fall through when concentration in writing it began to cause my body to crash.

So in entirety, this campaign is for 'expenses', but specifically the following:
1:) A place to live (We have even considered building one of those 'tiny houses' in the back yard with our own hands) -- Any amount of any mold hidden anywhere can trigger more immune responses and start the cycle all over again. I have moved many times into many other houses, all with enough mold hidden somewhere where I continue to be sick) | Many people with mold involvement end up moving to a coast in mold free areas and living in a tent for 6 weeks, such as arizona where the air is an ill match for mold growth.
2:) help with moving there
3:) Getting to the doctors that treat 'fringe' cases like mine. This will likely mean getting me into an inpatient clinic (we are presently speaking with several clinics on separate coasts), that are *functional medicine* doctors extensively trained in IV therapy, such as UVBI, ozone, intravenous antibiotics and who are also extensively trained in infectious brain damage / injuries and those who know how to heal environmental illness' and late stage neuro lyme.
4:) Food support while I heal. This is more important than it seems. 

I have been very very hesitant to run a GoFundMe for a variety of reasons. I thought the name itself sounded almost ungrateful and so presumptuous that strangers are expected to 'fund' me. This is of course just semantics but I felt strongly about it and wanted to mention.
Additionally, I don't like asking for help from people the world round that no doubt have their own limitations, illness', and problems. 
But, with a lot of coercing over the weekend from many closer friends as well as strangers, I have decided one thing is more important than all of my trepidation of bothering others, being judged or not getting 'funded' and that's LIVING. I love living. Oh god, I love living. I *loved* my life.
Getting to live, getting to heal, getting to remember my life and getting to live again is just about all I ever want, in any given day or moment.

I am very, very weak and I don't know how much longer I actually have. I wanted to get this going now since many of the right clinics have waiting lists that are already months away at the earliest. This fund will also help in supplemental support and home treatments long enough that I might make it to the day that an inpatient clinic finally calls and says 'we finally have a bed for you'. At that point, we will immediately get in a car and drive.

I'm needing all the help of the world or I don't think I'm going to beat this. It's just too progressed. I have truly fallen through the cracks of medicine, while I had the time to do this in a better way and believe me I used those hours at 100% of what I could've done. I have not had a day off in 3.5 years but I promise, as I have been, I will continue to fight every day and every night, the ins & the outs. I will not rest. I have too much left to live and to give others.

They say that people shouldn't need anyone in this life, that we all should only have ourselves to rely on.
And I'm sorry, but people who say that have never ever gone through life threatening illness. While it is true we are all complete inside, that my soul is steady and should I heal, my path is clear...For now, if my body is to live, I most definitely need the help of others. Probably *many* others.

I need you guys. I need you now more than ever.
I just can't do it alone anymore. I am throwing pride aside. This is my opening up.

I can't handle any more weekends alone in a bed questioning if I'll make the weekend while the world spins along outside my window. 

From the bottom of my heart, I am asking my entire network (and grateful if that could be extended and extended, shared beyond my own) to mobilize and help me get out of this house #1, and #2, get me out of this state and to a clinic that can help save my life. That's all I know to ask for.

****Please also if you know inpatient clinics that help people with Lyme, Mold, Heavy Metal / IV therapy, please message me as we are looking at absolutely all options.

Lastly, Briefly: Since 2006, I have dedicated my life to being a creative and to teaching and sharing that you MUST first find your path and then follow your path. I hope I've inspired my network of friends and fans enough through my life message and through my writing and fine art, that you can help me continue that.  

I have a warrior spirit and promise with my whole heart, that if I live, I will live well and in service to others.
With my extensive knowledge of spirituality, herbal medicine, regular medicine and my journey in creativity, I will dedicate the rest of my life to coming to your houses and hugging you, holding you and helping you find that path to doing whatever it is you want to do with your 'one wild, precious life.'

That's my only mission I've realized in all of this and I promise to follow it through. 

We didn't know a number to ask for in this campaign. These clinics are astronomical and not covered by insurance. I took the median number of all of them & came to this 'goal'.
The number I have set is a rough and absolute guess decided with friends and family in knowing what is needed and for how long while still wanting to be attainable. 

I hope that instead of the goal needed, you might just ask yourself 'what can I do if I can do anything' and consider your good deed done even if you think it's nothing. To me, it'll never be nothing. We had to also bear in mind that 5% goes to this site for hosting.
If you cannot give anything, please do share.

I love you all. May my life be my message, as I have tried these years to impart in person and through my fine art & teaching.

And may the stars align for this and for my healing.
I have a long road ahead.
Please light candles, send reiki, say hello. 

With grace in my heart,
Ashley

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Hello Friends, I will write a proper update soon.
Today I wanted to ask you to remember I am still right in the middle of this and sharing at this time would be so helpful and so appreciated.
ash x

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Hello everyone,
It's been a long while since I posted a proper update and figured year's end was a good opportunity to do so.
Google says it's been 104 days since I left Minneapolis on the journey west to heal. In that time, so much changed through this experience of being here, so much acquired knowledge in me and around me. I am forever & ever changed. There's nothing more to report from tonight.
For now, I'm simply and finally on my way back home to the Midwest (I mean who can handle these huge and gorgeous foggy PNW mountains and trees anyway? Volcanoes are so obstructive to one's view, etc. ;) | I sure am looking forward to kissing my dog's graying head and being around good friends for the next several months as healing continues.
We will save up again, when and if I assess at some point, that a return to Sophia would be a necessary step.
I'm so grateful to each of you for taking interest in my story and for the support from those of you who followed this and checked in on such a continual basis, especially to those who continued following when it was no longer the story of the day. I look up to the people who found it in their hearts to check in on mine. Whether we have ever met or not, I'm eternally grateful for the support I've received. I wish each of you, wherever you are and wherever this finds you, a Happy Christmas or Happy {whatever you celebrate here} & a warm and safe New Year from a very gratefully beating human heart.
I/we love you all,
Ashley x
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Friends,
This will be a raw and honest update from a hotel bed in Bothell, Wa.
Treatment continues and is truly grueling. Everyday there is a large part of me that considers going home born of sheer exhaustion.

I began my fourth week today.
It has become clear pretty quickly that two weeks here was not nearly enough time to put a dent in a 14 year long illness.
My heart and kidneys are struggling and the treatments sometimes crash me pretty substantially as they stir up a storm within me.
After diagnostics were done by two separate doctors, I was actually quite surprised, even saddened, because I wasn't sure how I was still alive with what they found. This process is overwhelming, usually on a daily basis. It's emotional. It's warrior, it's soul work.

In addition to finding Lyme + the many coinfections in someone that presently has no immune system, I was surprised to find that I had heavy metal toxicity to the degree that I did/do.

I am on eastern and western meds, on IVs during M-F, in acupuncture, doing Rolfing, Qi Gong & every kind of intensive detox method you can imagine. In experiences like this, you kneel fully. ...Your pride dissolves, you lose your privacy and boundaries change.

It feels a bit like I'm on of those gigantic balloons on the top of a car dealership that is forced to move in the wind and can stand really tall but falls to a shell without the gust. Totally at anothers mercy.

Today we began chelation of aluminum and Mercury. I was injected something like 25 burning times into various organs before 3 IVs.

At the end of each day, I eat, I take meds, I fall asleep missing Eric and Indigo & the life before this happened.

What I wanted to briefly touch on tonight is that we ran out of money over a week ago and I know deep in me that I need to stay longer but we don't know how to do that. If anyone has any ideas about how to promote this journey of mine further than I have known how, you have my full permissions to get creative.

I also wanted to wrap this up by saying the following four things:
1) that I have hope. I have the strength to do this. I am praying this universe will provide. I am a warrior.
2) i am so grateful to everyone who has picked up their hands and hearts in this journey that was my own - by sharing, donating, messaging. anything I have left out, that too.
3) in illness (especially in long ones in which your identity is shifted and challenged) there is one thing that is so crystal clear:
Love each other. Accept each other. Help each other.
4) give thanks to your body. It tirelessly keeps you without complaining and when it does complain ... Think of how long it waited before it spoke up. It is your best friend.
Give. Thanks.

Lastly, I have in the last year felt like a bit of a ghost in this world, one foot in it and one foot out of it, watching both. You begin to see things for what they are : what is broken in society and what is beautiful. You begin to roll your eyes at things like Facebook walls that post about this lipstick and the latest breakup or people who use their time for things that don't serve them....namely because it takes people away from the vitality of their life, which is a short, short time.
My message tonight would be to live your life, feel your lungs, feel your life. And plz for me, who is stuck in this place, please use that time wisely.

As always, I love you all.
Me x


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Friends, just a quick update from a very quiet room outside of Seattle. I think this may be the last night I can post for about a week & depending on treatment intensity - maybe longer. We drove across the country for 3 full days (1600 miles) and arrived exhausted. The next morning I met with my new Dr. at Sophia. I have been at the clinic now for 2 full days, meeting doctors and sorting through 14 years of questions & misdiagnosis after missed diagnosis. I have found out so much in two days here that I cannot believe all medicine isn't this thorough and all inclusive of body, mind & spirit. I know that I likely cannot fathom what I'll learn in 2-3 weeks if the goal is met & im able to stay. The clinic is honestly totally overwhelming and the treatments are about to start getting heavier and heavier. My Dr (Sarah) has made it clear my case is very long and complicated, which I've known for ages, but no one at this place has indicated that it's unbeatable.
(Thank you lucky stars)
For those who are following this and who want to follow my story further, close friends of mine are printing this campaign locally & writing its URL at the top of the print out page & pinning it to public bulletin boards in Minneapolis. And I'd like to ask those who feel called, the world over, wherever you are, to do the same. If u know of a bulletin board or coop that this could sit, please sit it there with URL at top. E & I did a quick printout and it seems to have worked well. Nothing fancy - I think it's just the intention that brings it back in. x
I realized today maybe through treatments and also just in bed last night hearing the wind and feeling the cold of the ocean and fall, how much I'd forgotten about the west after I got so sick & I had to move home. The restorative land, the ocean wind, the reverence for nature. It was a good moment and I laid there and laid there in it. No tv, no company, no internet, just the silence of 2 am & me, in a big bed and a dark room. Life is beautiful and I put my trust in the universe that what I need will find a way to me & that I will always have within me somewhere the will to keep pushing. healing. pushing.
Always.
Me, x
Ocean Water IV began my treatment
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Read a Previous Update
Tessa Mulders
45 months ago
2
2

DR. MARTIN MULDERS - Call, skype, do what you have to. My dad was a mainstream doctor until my mom got Lyme in the 90s. They were about to put her in a mental hospital because they thought she was crazy until my dad tested her for Lyme. Now he completely operates out of mainstream medicine and has devoted his entire career to Lyme, bartonella, and babesia research and treatment, neurofeedback, diet changes for wellness, etc. He works with ozone, UV, IV, and many other cutting edge alternative treatments. This past year I was diagnosed with bartonella and it completely debilitated me in many of the ways I saw mentioned in your story and I had to drop out of school. I am finally getting back on my feet with his extensive knowledge of tick-bourne illnesses and FINDING THE CAUSE instead of just medicating for symptoms. Please please please give him a call in his open phone hour. It's free and you could see if it's a good fit for you. I really believe he can help you. You are not the first in this situation that he has been able to help. This is not an advertisement for my dad, it is a heartfelt message from one Lyme sufferer to another. http://drmulders.com

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Mary Sue Abernethy
34 months ago

Hi Ashley, I too have lyme and co-infections and have done a lot of research about clinics that work with the tougher cases. The two I found and hope to get to myself if I can raise the money ( I need to set up a go fund me page but it seems overwhelming), anyway the two clinics are : http://www.sophiahi.com/ and http://sponauglewellness.com/ I hope this is helpful. love and healing to you my dear.

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Steve Peisner
41 months ago

Hi Ashley; I have followed your photography site for some time but only recently became aware of your health struggles. I recently retired as ND/Phd with integrative health practice in Denver. I have had lots of experience with these issues, particularly Lyme and co-infections, adrenal fatigue, and heavy metal toxicity. I have been successful with several cases similar to yours and I also have some great contacts who are still practicing. Dr. Michael Karlfeldt, in particular, is a great friend of mine in Boise and very smart practitioner with these issues. I am sending you now prayers and positive energy for the resources and contacts to help you find a full healing and recovery. If you would like to just talk or ask questions I would be happy to visit or share with you from my experiences in these areas. Just contact me via Facebook. Peace.....

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Sonja Um-Siri
43 months ago

So hard. Thank you for the update even though it's so hard. Much love.

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Sarah Allegra Ashley
43 months ago

Oh no. I'm so, so sorry that you have to leave the clinic so soon! I sincerely wish I could fund your whole treatment single-handedly. If I could, I absolutely would. May I ask, did it turn out to be Lyme that you're suffering from? That was the impression I got but I didn't want to assume the wrong thing. This must be so disheartening. I know this will not be the end for you; you have far, far too much to do in this life! Somehow, you will be made whole again. I'm sending all my love and support, and I knot that tons of other people are too. You are very, very brave and strong for going through all this, from just asking for help to enduring the treatment. You are a warrior. ♥

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Sonja Um-Siri
44 months ago

Ashley, sweetheart! I am reaching out to friends and family to let them know about your situation. You are indeed a warrior! A Warrior Princess, even! Much love. You are plumbing the depths. I know it sounds feeble, but you have my solidarity, and my vision for a beautiful, healthy outcome for you.

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Sonja Um-Siri
44 months ago

Ashley, sweetheart, I just knew you guys had gone, I didn't know any of the specifics. Thanks for the information. You have my prayers, and those of my family.

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Raquel Raye
44 months ago

This recently popped up about a business name change and thankfully I caught it. You are strong and you are brave and you've changed my world with your beautiful art. I even used the same make-up artist but by no near could I produce the magic in your photography. The last 3 years I backed off photography and went to train in MMA. Earlier this year, I was air lifted out out Walker, MN to Fargo, ND where they thought they had it all figured out. I went 5 months with the wrong diagnosis. I have a ways to go and tomorrow I'll be out doing something I love. Photography. Stay strong. XOXO Raquel Leeper

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Krista Weisz
44 months ago

I am secondary adrenal insufficient as well....I sent you a message on FB....I hope you are getting properly treated for it....the medical community at large does a horrible job with adrenal insufficiency and even worse with secondary....I am so sorry!! Please check your messages and I would love to chat with you....you won't get anything else better if your body isn't getting enough steroids!!

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Meredith Burns Amarando
45 months ago

I suffer from a load of disorders that maybe you should look into... Chiari Malformation (I have Type 1 most common) Incurable brain disorder/malformation Ehlers Danlos Syndrome (I have type 3) connective tissue disorder Postural Orthostatic Tachycardia Syndrome (POTS) autoimmune disorder All these disorders are very rarely known esp to most drs... look into them see if any of the symptoms are you... I wish you well and hope you find answers at the facility you are going to... I know how frustrating it is when drs want to put u in the grave and you try so hard to fight to live.... stay strong!!

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Natasha Aggio Daniels
45 months ago

Also Olive leaf extract kills borellia, and many other infections, incase you did not know. Taking too many supplements thrown at you, by all the naturopaths also depletes your immunes strength, we found many treatments only made us sicker, poorer immune system from it, and became toxic of over supplementing, by naturopaths orders, making us sicker. xxx

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Natasha Aggio Daniels
45 months ago

You need to be tested for the MTHFR gene mutation, this is what so many people have that have poor immune systems and end up with so many infections, like Lyme.1 in 2 people have it, and you can have different variations of the gene, causing some people to become sicker than others. You need someone that specializes in treating the MTHFR genetic mutation. To get your immune system up and running again. Me and my daughter have had similar issues with our health, also including lyme borellia, mold, the MTHFR gene, also which is in combination with that gene can be Hemocromotosis, which is the absorption of too much iron, leaving the body toxic, unable to detoxify and leading to a struggling immune system, we have that also, as well as Epstein barr virus. Have your Zinc levels tested, very important, as the main thing thats has got our immune system functioning better is Zinc, but the Mentholated type by Thorne Research. Zinc is extremely important for the body to function and for the immune system to be strong. The thyroid problems can be a direct link with the MTHFR gene, my eye brows have been disapearing also. It is a blood test by the way for Mthfr. Every one should be tested for it. This gene mutation involves deficiency of B vitamins, and other deficiencies, some B vitamins can repair damaged brain cells. We too have spent close to 50,000 dollars on our health troubles, we are doing well at the moment. My daughter became a touretes victim, but she has been reversed, and now starting to flourish. You need to have your heavy metals tested, hair analysis, and porpherines urine tests, more than likely you have low Glutathione, which is needed for your detoxing system, and immune sytem. Please, dont treat this message like any other, if you do these things you will get answers and be able to connect the dots, and find the missing pieces to your health puzzle. We have been to hell in back in the last 6 years, and finally we are getting there, been so hard. And one more thing, take the time to watch Bruse Lipton, the new biology, on u tube. As boring as it seems it really makes sense in the end, and that will help your body and mind become strong to over come this. I wish you all the best. You will get there in the end, buy a tent, get out of that house, live in the back yard in a tent... xxx

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$12,788 of $40,000 goal

Raised by 316 people in 45 months
Created August 24, 2015
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Tessa Mulders
45 months ago
2
2

DR. MARTIN MULDERS - Call, skype, do what you have to. My dad was a mainstream doctor until my mom got Lyme in the 90s. They were about to put her in a mental hospital because they thought she was crazy until my dad tested her for Lyme. Now he completely operates out of mainstream medicine and has devoted his entire career to Lyme, bartonella, and babesia research and treatment, neurofeedback, diet changes for wellness, etc. He works with ozone, UV, IV, and many other cutting edge alternative treatments. This past year I was diagnosed with bartonella and it completely debilitated me in many of the ways I saw mentioned in your story and I had to drop out of school. I am finally getting back on my feet with his extensive knowledge of tick-bourne illnesses and FINDING THE CAUSE instead of just medicating for symptoms. Please please please give him a call in his open phone hour. It's free and you could see if it's a good fit for you. I really believe he can help you. You are not the first in this situation that he has been able to help. This is not an advertisement for my dad, it is a heartfelt message from one Lyme sufferer to another. http://drmulders.com

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Mary Sue Abernethy
34 months ago

Hi Ashley, I too have lyme and co-infections and have done a lot of research about clinics that work with the tougher cases. The two I found and hope to get to myself if I can raise the money ( I need to set up a go fund me page but it seems overwhelming), anyway the two clinics are : http://www.sophiahi.com/ and http://sponauglewellness.com/ I hope this is helpful. love and healing to you my dear.

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Steve Peisner
41 months ago

Hi Ashley; I have followed your photography site for some time but only recently became aware of your health struggles. I recently retired as ND/Phd with integrative health practice in Denver. I have had lots of experience with these issues, particularly Lyme and co-infections, adrenal fatigue, and heavy metal toxicity. I have been successful with several cases similar to yours and I also have some great contacts who are still practicing. Dr. Michael Karlfeldt, in particular, is a great friend of mine in Boise and very smart practitioner with these issues. I am sending you now prayers and positive energy for the resources and contacts to help you find a full healing and recovery. If you would like to just talk or ask questions I would be happy to visit or share with you from my experiences in these areas. Just contact me via Facebook. Peace.....

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Sonja Um-Siri
43 months ago

So hard. Thank you for the update even though it's so hard. Much love.

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Sarah Allegra Ashley
43 months ago

Oh no. I'm so, so sorry that you have to leave the clinic so soon! I sincerely wish I could fund your whole treatment single-handedly. If I could, I absolutely would. May I ask, did it turn out to be Lyme that you're suffering from? That was the impression I got but I didn't want to assume the wrong thing. This must be so disheartening. I know this will not be the end for you; you have far, far too much to do in this life! Somehow, you will be made whole again. I'm sending all my love and support, and I knot that tons of other people are too. You are very, very brave and strong for going through all this, from just asking for help to enduring the treatment. You are a warrior. ♥

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Sonja Um-Siri
44 months ago

Ashley, sweetheart! I am reaching out to friends and family to let them know about your situation. You are indeed a warrior! A Warrior Princess, even! Much love. You are plumbing the depths. I know it sounds feeble, but you have my solidarity, and my vision for a beautiful, healthy outcome for you.

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Sonja Um-Siri
44 months ago

Ashley, sweetheart, I just knew you guys had gone, I didn't know any of the specifics. Thanks for the information. You have my prayers, and those of my family.

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Raquel Raye
44 months ago

This recently popped up about a business name change and thankfully I caught it. You are strong and you are brave and you've changed my world with your beautiful art. I even used the same make-up artist but by no near could I produce the magic in your photography. The last 3 years I backed off photography and went to train in MMA. Earlier this year, I was air lifted out out Walker, MN to Fargo, ND where they thought they had it all figured out. I went 5 months with the wrong diagnosis. I have a ways to go and tomorrow I'll be out doing something I love. Photography. Stay strong. XOXO Raquel Leeper

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Krista Weisz
44 months ago

I am secondary adrenal insufficient as well....I sent you a message on FB....I hope you are getting properly treated for it....the medical community at large does a horrible job with adrenal insufficiency and even worse with secondary....I am so sorry!! Please check your messages and I would love to chat with you....you won't get anything else better if your body isn't getting enough steroids!!

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Meredith Burns Amarando
45 months ago

I suffer from a load of disorders that maybe you should look into... Chiari Malformation (I have Type 1 most common) Incurable brain disorder/malformation Ehlers Danlos Syndrome (I have type 3) connective tissue disorder Postural Orthostatic Tachycardia Syndrome (POTS) autoimmune disorder All these disorders are very rarely known esp to most drs... look into them see if any of the symptoms are you... I wish you well and hope you find answers at the facility you are going to... I know how frustrating it is when drs want to put u in the grave and you try so hard to fight to live.... stay strong!!

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Natasha Aggio Daniels
45 months ago

Also Olive leaf extract kills borellia, and many other infections, incase you did not know. Taking too many supplements thrown at you, by all the naturopaths also depletes your immunes strength, we found many treatments only made us sicker, poorer immune system from it, and became toxic of over supplementing, by naturopaths orders, making us sicker. xxx

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Natasha Aggio Daniels
45 months ago

You need to be tested for the MTHFR gene mutation, this is what so many people have that have poor immune systems and end up with so many infections, like Lyme.1 in 2 people have it, and you can have different variations of the gene, causing some people to become sicker than others. You need someone that specializes in treating the MTHFR genetic mutation. To get your immune system up and running again. Me and my daughter have had similar issues with our health, also including lyme borellia, mold, the MTHFR gene, also which is in combination with that gene can be Hemocromotosis, which is the absorption of too much iron, leaving the body toxic, unable to detoxify and leading to a struggling immune system, we have that also, as well as Epstein barr virus. Have your Zinc levels tested, very important, as the main thing thats has got our immune system functioning better is Zinc, but the Mentholated type by Thorne Research. Zinc is extremely important for the body to function and for the immune system to be strong. The thyroid problems can be a direct link with the MTHFR gene, my eye brows have been disapearing also. It is a blood test by the way for Mthfr. Every one should be tested for it. This gene mutation involves deficiency of B vitamins, and other deficiencies, some B vitamins can repair damaged brain cells. We too have spent close to 50,000 dollars on our health troubles, we are doing well at the moment. My daughter became a touretes victim, but she has been reversed, and now starting to flourish. You need to have your heavy metals tested, hair analysis, and porpherines urine tests, more than likely you have low Glutathione, which is needed for your detoxing system, and immune sytem. Please, dont treat this message like any other, if you do these things you will get answers and be able to connect the dots, and find the missing pieces to your health puzzle. We have been to hell in back in the last 6 years, and finally we are getting there, been so hard. And one more thing, take the time to watch Bruse Lipton, the new biology, on u tube. As boring as it seems it really makes sense in the end, and that will help your body and mind become strong to over come this. I wish you all the best. You will get there in the end, buy a tent, get out of that house, live in the back yard in a tent... xxx

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