*Annamaria's Angels helping with bills

$2,565 of $45k goal

Raised by 45 people in 40 months
Annamaria Johnson  PALMDALE, CA
Due to a delay in treatment, I am living with the late stage of a disease that could have been treated. I hate the fact that I have to ask for help, but my (incredible) husband had to leave his job years ago to take care of me, and the savings have nearly run out. Money has become a huge stress in my (our) life. There just isn't enough to pay for daily living expenses with the mounting medical bills. All the stress actually causes the symptoms to flare up even more. Nasty bill collectors calling at the crack of dawn is not the way anyone should have to start the day! PLEASE take a moment to read my story and SHARE with your friends. THANK YOU!

For 5 years I told my Dr that SOMETHING was wrong and she LITERALLY called me a hypochondriac. Even after 2 tumors were removed from my Maxillary Sinus in 2003 and that Dr saying I needed a chest CT to confirm his suspicions, my primary refused to order one.

A few months later, in Feb 2004, a trip to the urgent care resulted in an ambulance being called because we were told I was dying and the urgent care didn't know why! 3 weeks in the hospital and several scans, MRI's, ultra-sounds later .... we were told that they thought I had Non-Hodgeskins Lymphoma because of how enlarged my lymph nodes were and because of the blood results that were run.

They did a biopsy to confirm but it came back with something they were shocked to see. I had an advanced stage of SARCOIDOSIS. Normally it can be treated easily BUT because my primary did nothing for 5 years, the disease just ran rampant.

Now, 10 years later, I have been in the hospital too many times to count, I have had 6 surgeries to my face to remove tumors. (The last one was just April 22nd.) I have had to have my gall bladder removed, a COMPLETE hysterectomy because of a soft ball sized tumor, liver biopsies, spinal taps, etc, etc, etc.... The list of surgeries, biopsies, scans, tests, etc is endless.

The MRI of my brain shows lesions, the scans and ultra sound of my kidneys and liver also show lesions. My lungs are compromised and my heart shows the beginnings of CARDIAC SARCOID.

This disease is not very well known and we don't know how I got it, except that my Mom had Systemic Lupus and passed away in 2005, and this might be related. I am not following the text book symptoms and they have written an article about me in the ENT Medical Journal because I am an anomaly!

I am by nature a positive person. And I know that my positive attitude has gotten me through so far. But it's getting tough. We also take care of my precious grand daughter part time, and she brings me joy, even on days when I can barely get out of bed. Even the smallest gifts add up, so if you can spare anything, I'd really appreciate it!
+ Read More
Update 11
34 months ago

Thank you everyone for the warm notes and kind words that appear every day in my inbox. They mean the world to me and help keep my spirits up. Lately the disease seems to have a stronger foothold and some days feels like it's winning this battle but then I get your words of encouragement and I find the strength to fight harder than ever.

As of right now, my equilibrium is way off and I find myself falling every now and then but luckily no major damage. I'm doing well with Physical Therapy and we are keeping an eye on the mass under my left arm.

My Primary feels like she can no longer properly care for me as the disease progresses BUT I am so comfortable with her, with her honesty and her willingness to learn all she can about Sarcoid that I hate to switch to someone who may or may not have more "book smarts" with this disease. I don't follow any "normal" symptoms anyway and have been told I'm an anomaly so why travel more than an hour away, to a facility I'm not familiar with and see a Dr that doesn't know me well? We'll see how things go.

For now, I'm proud to say that I have managed to stay out of the hospital now for about 2 months so for that alone I am Thankful!! Your Prayers truly help and I want to again say THANK YOU for spreading my story around, for your kind words, well wishes and your generous donations. The constant co-pays for the hospital, Dr visits, medications, etc add up. I can't imagine how this would be without your kindness. THANK YOU!

Love to you all ~ AJ
+ Read More
Update 10
35 months ago

Thank you everyone for the continued Prayers. The latest update ... I was back in the ER again so they upped the prednisone, again :( Unfortunately, this also started to bring on the weight to the tune of about 7 pounds but I'm working very hard to get them off (in addition the 60 still left to go LOL). The good days come and go but just the fact that I wake up every morning is a Blessing so I will take whatever life throws at me. The mass under my left arm is still being "investigated" because as I may have mentioned, NONE of my tumors have EVER shown up on an MRI, Ultrasound, PET Scan ... nothing ... EVER. I have to start physical therapy for the left shoulder because whatever the mass is, it's messing with that side so they hope PT will help. Little by little, the disease is manifesting itself in new and unusual ways so my primary thinks it's time she turns me over to a specialist. It means the 90 minute - 2 hour drive but if that is what it takes to keep the inevitable at bay ... I'll do whatever they say! I keep you all in my Prayers and as always, I urge you to make sure you stay strong and voice your concerns and to be your own health advocate! The life you save may very well be your own! Sending much Love ~ AJ
+ Read More
Update 9
37 months ago

So here is the latest update .... Because of the lump under my left arm pit that we have been dealing with for a while now, I was told to have a mammogram. It was a digital one and I was told that it would take 7-10 business days to get results. I was called in 2 days. Seems that it came back abnormal with an unidentified mass in my left breast. GREAT ...!!! Sheese, just trying to catch a break here. Tomorrow it's yet another trip down to Panorama City Hospital for another mammogram followed by an ultra sound. Both of these will be done by the actual radiologist as opposed to a technician, hence the hospital rather than up here.

Thank you for always keeping me in your Prayers, I could really use them tomorrow. Thank you for sharing my story and for getting the word out about being your own health advocate.

Much Love to you all ~ AJ
+ Read More
Update 8
37 months ago

I want to start off by saying THANK YOU to everyone that has helped both with donations and also words of encouragement. The cards I have received in the mail and the messages in email, Facebook and here are so Heartwarming and mean the World to me! Here is the latest update ~ The results of my scan shows that shadows are in BOTH kidneys and they are about the size of a small child's fist. The silver lining is that they are believed to be CYSTS vs TUMORS for which I am Thankful. The Dr did say however that because of my compromised health, things can take a nasty turn at the drop of a hat so I will be closely monitored. One other thing that he was concerned with was my bladder since it was showing shadows also and the blood in my urine. Turns out I have some scarring from the botched surgery years ago when I got my tubes tied. Yes, a simple out patient procedure turned in to a nightmare when my bladder was sliced open. Like I needed yet one more thing to add to the list, right?? I ended up having a complete hysterectomy after all of that so they are not sure why there would be bleeding because it is obviously not from a "cycle". They performed a cystoscopy in a hospital setting and so far everything looks GREAT ... YAY!!! Now, again like with everything else, it's a wait and see attitude. Unfortunately with this late stage of my disease, ANYTHING can happen and change from one day to the next. I also had a new digital mammogram because of the lump under my armpit. Results should take a few days.

I want to say THANK YOU again because for the first time, I was able to pay my portion of all of the medical procedures at the time of service instead of asking to be billed and worrying about how I was going to pay it later. Just to let you know, there is a separate bank account just for your donations and they are only used to pay down the past and help pay for the current medical bills. Your generosity has been overwhelming and again THANK YOU for everything and for sharing my story with your friends. Hopefully soon they will be able to do more research on this disease so others don't have to go through this
+ Read More
Read a Previous Update
Help spread the word!
 484 total shares
Be the first to leave a comment on this campaign.

$2,565 of $45k goal

Raised by 45 people in 40 months
Created May 16, 2013
Annamaria Johnson  
$20
Lucy Lonning
33 months ago

Random act of kindness from one of my members - so I matched it! : )

AW
$20
Amy Wernicki
35 months ago
KF
$50
Karen Falk
35 months ago
EM
$50
Elaine McDougal
35 months ago
$10
Anonymous
35 months ago
JT
$20
Janice Tippett
35 months ago
$25
Jeannie Johnson
37 months ago

Many thoughts and prayers go out to you from SD!

SH
$50
Sheila Hamlin
37 months ago

Wishing you better days and continued love and prayer

$200
Joannah Yu
38 months ago

I only saw this today....From the mouse, Shawn and me....

DW
$10
Daniella Wilde
38 months ago

Here's to your health Annamaria

Be the first to leave a comment on this campaign.
  Use My Facebook Account
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now
 Share on Facebook