Andi Jos Seizures and Sandifer synd
I'm trying to raise money for my 5 week old baby girl named Andi Jo. Andi was only two weeks old when I saw something happen to my baby that no mother should have to experience. I watched my precious baby have a seizure while all i can do is hold her close and tell her that we are here . After three terrifying weeks and many horrible test, we were told that she has Sandifers syndrom caused by pain that came from acid reflux. Which was infant G.E.R.D. This syndrom only happes in one percent of babies dianosed with G.E.R.D.... It was so hard to get the diagnosis because it is so rare. There are special bottles, beds, seats, reflux wedges,and home remedies that we could be using for her syndrom to help ease some of her pain and discomfort but the thing is her father and I can't afford to get her all of these thing , as parents we feel like we have let her down in so many ways, that it hurts to know that only money can help her not us a partents the ones that are supposed to be able to protect her from the harsh things that can harm her! We feel so helpless and awful watching her go through this,it brakes are hearts everyday. Please help us spread awareness of this syndrom so other parents can get a head start on the long race that they have been chosen to run. We appreciate any kind of help and will listen to anything that may help us help our daughter Andi. We ask of you to help us so we can buy the things that are needed to help reduce the symptoms and pain that she is in everyday. Help Andi to move forward and grow they way we all are meant to. To adapt to our new life style as a family. Andi is our fifth child. She has three sisters and one brother who are also going through the emotional and stressful matter with her!!+ Read More
Posted by Rachel Adkins
34 months agoShare
Andi Jo is now almost 1.She is such a happy baby and after all the things she has gone through and the things she will still have to face has made her so strong but has not stopped her from smiling nor enjoying her life here with us... My baby Andi I love you so much and I hope you know your mommys hero. You have taught me so much more then I have in my home life in just this pasted year. I'm so very sorry your first year has been a rough one but please know daddy and I have and will always be here today everything we can for you and will never stop., we are here for you, from the beginning to end and we wouldn't have it any other way. We want your first birthday to be something that you will love and a reminder of what you have done and gave us.. Our sweet baby Andi you mean so much... Times may still get rough and at times will seem as if the the rough is behind us Sven if they are still to come.. But Andi just know we want to thank you for coming into our life and touching us so much!!! You have forever gave us the best thing that anyone could ever ask for and thats your love...
Posted by Rachel Adkins
38 months agoShare
Hello there I'm Andis mom Rachel My daughter was diagnosed with sever GERD at two weeks old. I had took her to several doctors and three hospitals because they turned me away saying my daughter was only colicky.. I knew its was way more then that. Every doctors and hospital visit I told them my daughter was having seizures and I even video taped her episodes and I showed everyone of them and they still sent us way. I was so scared and felt so helpless all I could do is cry and hold my baby! I didn't take no for an answer and as soon as she started having another seizure I took her back to the ER and I made that doctor hear me and within 5 mins they had my daughter air lifted out to the closest children's hospital. After a long stressful and extremely scary two weeks she was diagnosed with GERD, sandifers syndrome, sleep apnea. My daughter Andi Jo is now on continuos oxygen and an apnea monitor. There is such an over whelming feeling and anger that comes with this syndrom . So I just try and remember that I am my daughters voice!!! We have to speak for are babies and do what ever we have to in our power to take care of them. We have to be strong for our children because no one else will. After several meds and different doctors And many many hours on the Internet I decided on no meds for my baby not one of them are ment for a long term use. I found this company that has made more progress and relived my daughter of her pain and discomfort by almost 100%. After all that my daughter, my family, and myself had to go through, I now feel I owe everting to this company that I now work for! Go to http://www.naturalrefluxrelief.com look at the AR pillow and many other products that are avaliable and if you feel that it's something you want to try I will give you a 10% discount on your order. The code is AndiJo! Please tell anyone about this company and the products. My 10% discount code AndiJo is for everyone to use!
Posted by Rachel Adkins
43 months agoShare
Loving my baby more and more everyday.. The last two week have definitely been rough but every morning I get to wake up with her is a blessing. I finally got a second opinion, it took s min to find s doctor but he was able to get us a referral to see a GI specialist and he gave me some blood work test that I adked for.. Which is a lot more then her regular doctor did for us. Now we have to save every little bit of cash/ change we can to drive to loma linda to the children's hospitals because that's where the GI specialist is at. In the mean time trying to stay positive because We can't brake down now, we have five kids who depend on us and need is more then anything. We where able to pay this months rent but still owe for may! Still I can't complain really I have my family and that's all that matters!! I love everyone of you!!!