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Things to see, before I can't see

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Hi!!!  I am Alex's science teacher.  I have had the greatest opportunity to get to know Alex over the last several years and a few months ago, Alex had come to me regarding his eye doctor visit.  Alex has two eye diseases;  retinitis pigmentosa & rod and cone dystrophy, of which there is no cure.  I knew his visit was to determine if he could get his driver's license.  When I asked him how his appointment went he had shared that he will never be able to drive, and he is having a hard time adjusting to the idea  he will need to depend on others for the rest of his life once he completely loses his eyesight.  

This past year, his eye sight has significantly deteriorated and his greatest fear is to wake up one day blind.  His doctor could not give him a specific timeline, but could be anytime between a month from now to a year or two from now.  In my attempt, to cheer Alex up I stated, "a positive is that you have an advantage  of being able to see, where many have not."  He responded with such a powerful statement, "Mrs. Palermo it's more like a bitter sweet.  It is sweet that I know what so many things look like, but bitter because I know at the deepest level what I am missing."

Alex is one of the most kind-hearted individuals I have ever met.  I could tell the weight of his diagnosis was putting a toll on his optimism.  I had asked him to come up with a bucket list and we called it "Things I want to see, before I can't see".  I was absolutely taken away by what a seventeen year old boy wanted to see; Rocky Mountains, Grand Canyon, turtles hatching on the beach, the Adirondacks, and the Northern Lights.  I was expecting a famous band, motorcross, nascar, or a celebrity.  His list of things to see are so humble, meaningful and inspirational.  

To give everyone an idea of how kind-hearted Alex is:  he played a lead part in our school play as a villain.  My daughter, who is four had seen the pre-show and was absolutely terrified of the costumes and some of the characters.  After the show, Alex asked if my daughter had enjoyed it, of which I told him -she had to leave during the show.  Unknown to me, he had gathered several of the actors to talk with her after school.  With genuine care he knelt down and reassured her she did not need to be afraid.  That night we attended the full show and  the entire time she kept saying "Mommy, I'm not scared Alex is playing Clayton, but Alex is nice, he is just pretending".  I have never known a teenage boy to show such empathy.  Alex is so kind and exudes every day determination, optimisn, and an overall genuine kindness for everyone.  

I would love nothing more than to provide Alex and his family this once in a lifetime opportunity to see all the places or things he can before he becomes completely blind.  Please help me in this deserving opportunity!!!  
I have made arrangements personally for him to make it to the Adirondacks, but I need help in raising enough money for him and his family (brother, and parents) to go to the Grand Canyon and the Rocky Mountains.

Thank You!!!
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Donations 

  • Stephanie Vangesen
    • $10 
    • 9 yrs
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Organizer and beneficiary

Chrissandra Hayes-Palermo
Organizer
Campbell, NY
Paula Lehman
Beneficiary

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