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Help Joey, help Sarah J

$52,912 of $55,000 goal

Raised by 475 people in 6 months
Created November 19, 2018
Joey got injured whilst having a horse ride. Without going into the nitty gritty, anyone who knows his Mum will understand why I am starting this page.
Step up and lend Sarah a hand.

The response has been so outstanding, THANK YOU to everybody for helping out at this time of need.
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Can’t believe it’s been another fortnight! We have had another cracker, with Joey taking a few more steps and standing with support....He has been trialling new wheelchairs and ‘rollators’ (because walkers are for old people!!!!) in preparation for our NDIS submission to see how much they will provide for Joey going home. We’ve had Occupational Therapists and builders out to home to plan home modifications (bathroom, toilet, ramps and handrails) and hopefully we’ll have a report submitted in the next week or so to find out what the NDIS is prepared to cover. Thanks to so many amazing family, friends and complete strangers we will have the ability to cover the shortfall with fundraising money. Speaking of Fundraising if anyone is in the Mareeba-Chillagoe area this weekend please have your Pom-Poms out to cheer on the ‘Costa Coyotes’ who are competing in the Great Wheelbarrow Race 140kms and be sure to support their sponsors who have donated thousands of dollars to Joey’s cause. A massive Thank You to the Costa’s crew, Carolyn Tomerini, Ben & Shannon Turner and everyone else that has has contributed to pulling this together. We’re off to Hydrotherapy this morning and then Speech and OT in the arvo. He has school every morning for a couple of hours each day and is loving the interaction with the other kids, is starting to write some letters of the alphabet and even a managed to write his name on a ‘Mother’s Day’ Card last week that means more to me than all the presents in the world.
Our days may be numbered on the QCH Rehab Ward, which I know is a great thing as Joey has come so far he doesn’t need the care and attention of Medical staff (or more importantly there are others that need it more). We will soon have to move into a ‘Transition Room’ which is self-contained and Michael and I will provide full care for a maximum of two weeks as an inpatient and we’ll then all move back into at Ronald McDonald House Bris for a further six weeks to complete the Outpatients Rehab program...and then with any luck home!!!! As was our move from the cocoon of Townsville PICU to the Townsville Paeds Ward it is with great trepidation that we move from Room 3 on the Rehab ward at QCH but the lure of home with the hopes, dreams and prayers of so many coming to fruition makes the daunting prospect a little less scary ❤️
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I’m starting to sound like a broken record....we’ve had another amazing week. Joey is now off all major meds. They did another x-ray of his left elbow as it has been giving him some discomfort now that he is starting to dress himself and gets himself into all sorts of twists and knots. He was initially diagnosed and treated in Townsville for Heterotopic Ossification (HO) Dr Google explains...is the abnormal growth of bone in the non-skeletal tissues including muscle, tendons, or other soft tissue. When HO develops, new bone grows at 3 times the normal rate resulting in jagged, painful joints. When we got to Bris we were advised that he did not have HO. The x-ray on Wed revealed that he does have HO so he will go back onto an anti-inflammatory and possibly need surgery down the line. Other than that he is going gangbusters, going to the toilet now (fully supported), standing and taking a few steps on his walker (refused to use the one with the seat because it’s for ‘old people’.) Physios have been great implementing fun play as a distraction to the task at hand... you will see attached photos of the only way we could get him to stand and use walker was with a NERF gun. And he stood for a good 30 mins at table making a volcano. Short term memory is not good but more of his long term memory is returning and therefore the Joey of old. He’s very anxious and hates new things but hopefully that will abate in time. ❤️
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We've had a couple of cruisy weeks since my last update, I flew home for the afternoon Sun 7/4 (Thanks again Jetstar for the free return ticket) for Joey's fundraiser at the Bungalow that his magnificent Aunty Kerry and band of beautiful helpers pulled off...it was an amazing turn out and a mind blowing success with funds raised most likely to go towards a wheelchair friendly car when we get Joey home. Medical Team are talking another couple of months in Brisbane and then we'll look at coming home providing all the bathroom/toilet, ramps and wheelchair modifications have been done. Joey's had a good couple of weeks, the fairytale of having Billy and Joey together for the holidays didn't really come to fruition. Billy being Billy jumping, spinning and climbing sent Joey into panic attacks that he was going to fall over and hit his head so we had to occupy Billy elsewhere the majority of the time. One of the nurses organised a staff only bake stall at the QCH with proceeds going to Drought Angels in honour of Joey. They raised over $1200 which was amazing. Joey was asked to lay the wreath at the QCH Anzac Day Ceremony on Tuesday and was very reluctant but bulled it off with a bit of help from Peter Kelly Deputy Director General of Education Queensland. He's had a visit from Andrew McCullough (Hooker - Brisbane Broncos) who was a really nice bloke, and said he would love to come and visit Joey again. So all in all he's been very social and progressing nicely with sitting independently but still not real keen on standing or taking steps. Hopefully it will all come with time. ❤️
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Joey has had another amazing fortnight. Still very reluctant to stand and taking 45 minutes to get him onto the tilt table on Tuesday with screaming, tears and absolute panic stricken fear being his over riding emotions when any movement is involved. Once he’s there he’s fine (as you can see from The Delta Dog ‘Chase’ visit). Instead of referring to it as a Taxi we go in ‘Neale’s bus’ to the RBWH for Hydrotherapy sessions once or twice a week. And as much as he hates the ride to and from he Loooooves the water. He’s moved onto a no restrictions diet and is feeding himself pieces he can pick up and put in his mouth, a bit too early for utensils yet. His stomach and brain are not yet telling his mouth when he’s full and has had a couple of over full vomits. So we just have to keep an eye on that as his tastebuds are working overtime and he saw an ad on the TV with a Maccas burger and said ‘Yummy’ . His conversation has come a head in leaps and bounds and is answering most questions correctly. We had a visit from a friend from home and he managed to recollect a story from a couple of weeks before the accident correctly. Not great on names just yet but we’re flat out keeping up to the dozens of nurses and Doctors that are clucking over him. He’s going to school for an hour a day now and absolutely loving it. Not quite able to participate academically but loving the social interaction with the other kids. Bilby is coming down with Dad mid-week and he is really look forward to that! Joey received an award on parade this week and it took everything I had to not burst into tears. To think 4 1/2 months ago we were told there was a 90% chance that he would never breathe on his own again to looking at this amazing little man before me receiving an award on parade.....Joey’s courage and willpower combined with the determination of the QCH Rehab team are achieving amazing progress. ❤️
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$52,912 of $55,000 goal

Raised by 475 people in 6 months
Created November 19, 2018
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