Nevaeh 's Battle with Bone Cancer

$74,895 of $10k goal

Raised by 1,467 people in 28 months
Amber Griffin  SUTERSVILLE, PA
Please help raise money for our daughter Nevaeh she is 8 years old and was diagnosed with osteosarcoma (bone cancer) in her right lower tibia on may 6,2014 after she fell on it at her schools movie night.She has been threw 7 rounds of chemo as of July 22 2014.

One week before surgery that was scheduled for August 6th ,the oncologist in formed me they found a spot on her lung. They were going to do her surgery only two days after her limb salvage surgery which involves taking out her entire knee and half of her tibia and replace with a metal bone and knee. Surgery went well and but very painfull for her . Her lung surgery was schedualed for today August 8th but she had a fever last night and today and her lungs have fluid from laying down and also from being on tons of pain medications. But all in all she's good.

Threw all if this she has her beads of courage necklace which she so do proud of them because it reminds her of everything she acomplished so far. Shes always thinking of the other children here. She wants to start making beads of life for all the children here in need for some courage with her clay at home !!

Also her favorite activity here is playdough and they have donated their share of playdough to Nevaeh. She wants to donate in return a lot of playdough!!

We also have met a few other families while our time here and she's always asking how everyone is doing! She has such a big heart.

This cancer is rare But my baby is a fighter and we are raising money not just for her but for those she wants to help too!! She does say she wants a nicer car than mom and dad's when she is 16 ! We laugh because shes only 8! She has a extremely long road ahead of her but she stays strong threw all of it.
Please help make my daughters wishes come true by helping her help others! We are fortunate enough and are getting by ok financially so far. So all donations will go to her and other children in the hospital! Giving back is one of the greatest qualities a person can have! So please help out my daughter nevaeh by donating!!
If you are interested ordering Team Nevaeh shirts , keychains or bracelets go Iike her Facebook page Nevaehs Battle with Osteosarcoma and message me!!! Thanks!!

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Update 9
Posted by Amber Griffin
15 months ago
6
6
our angel gained her wings and won her battle we miss you fly high butterfly
you will always be remembered we will pass out you 10000 cans of play doh that's left in the next few weeks you will make so many more children happy
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Update 8
Posted by Amber Griffin
17 months ago
It breaks my heart to let all of you that Nevaeh s chemo pills did not work so there for they could not do stereotactic radiotherapy on her lungs. Our journey in California looking for a treatment has ended. We are headed back to Pennsylvania in hopes of getting into a new immunotherapy trial in Maryland. We are going to travel and see they country for two weeks. We plan on leaving July 15th. Her tumors in her lung and growing and there was also new growth. Please pray for a miracle for my baby girl.
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Update 7
Posted by Amber Griffin
20 months ago
So unfortunately ot.looks like bone cancer came.back in Nevaehs leg in two spots. They are coming in today (the whole team) to talk about it. They want to do bone biopsy but if.they are 90%sure it is what it is we are not doing biopsy and just want to amputate. We dont want her to.be in pain just to have it removed. I seen the x ray and I myself had looked at my daughters scans and.researched this cancer for a entire year. I no it is local reaccurant osteosarcoma. I feel.like a horrible.mom because we did not chose to amputate in the first place. Nevaeh on the other hand is thrilled to have he leg off she never has fully had a normal walk most likr because of the tumor eing around.her knee. I dont no how this was missed.in January. It maybe just has grew this much since then. We dont no. But she will most likely have above knee amputation. So please pray for good news. I am.just so scared they will tell me today that surgery wont be worth it be disease will spread and.chemo.does.not work for her. They will put her on a chemo pill after she heals from.her.leg surgery. Why my baby why this almost incurable cancer. I am just ao destroyed by this news.
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Update 6
Posted by Amber Griffin
21 months ago
Ok guys so.I no long post suck but I no you all are wondering about our second opinion on hyperthermia and radiation... welll here goes ... we got a email from a friend about a great hypertheria clinic. We turned around on our way to bircher and went to get a second opinion. We have had a odd feeling about bircher since we arrived but when thats all the hope you have to save your baby you do what you have to do. They had review her scans and concluded that neither their hyperthermia or bircher cancer institute will take away her.tumors in her lungs. If it reoccued in.her leg or spine or any other place but her lung hyperthermia would workd but aince it was in her lungs her ribs would be receiving all the hyperthermia and radiation. We were devistated. But miraculously we happen to be in the same 8 story building in santa monica as a great sarcoma doctor! People.fly from all.over the world to see dr.chawla. he has access to the newest trials he has worked with sarcoma for 30 years ahe worked at md anderson and worked specifically with osteo for 10 years. The hyperthermia dr walked us down to see him and.they saw.us right then.right there. What are the chances of us getting a second opinion and they cant help us and then finding out one of the best dr.in sarcoma are right below us . We had a long talk and he feels he has a treatment that will work. Its ifosfamide but not the way most hospitals administer it. Not in high dose which is bad for bone marrow. Its on drip that she will be on for 2 weeks on 2 weeks off then 2 weeks on 2 weeks off no hospital stays or anything. Then they will do a scan to see if tumors have stopped growing then will do surgery followed by same prior.to surgery protocol. I talk to dr maurer today at chp and he cant offer that protocal at pittsburgh. He is.looking.into this treatment for her.before we make a decision. But he thinks so far it a good idea. She only weighs 44 lbs and cant take high dose anything anymore. So more good news even.with all her go fund me.money in our bank they still approved her for medi cal . Bc thus treatment and surgery will cost hundred of thousands ... and now with the go fund me and benefits we are able to live her while treatment is happening and not have to wirry about us working and most importantly spending time as a family and enjoy nevaehs company every second of the day. They will do scan before surgery to see if chemo is working. And if not we are driving straight home to be with family. But dr chawla truly believes he can help her. I want to thank everyone who is praying for her. I want to thank everyone who donated clothes, money and time putting her benefits together for her its helping us afford to live in this crazy expensive place and most of importantly not stressing about non important things and being a family thank all of you from them bottom of my heart god bless you all I think everything happens for a reason. I believe that now!
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 3.6K total shares
Ashley Thompson
15 months ago

I am so deeply sorry. I wish I had seen my updates sooner to be able to send you love around the time of Nevaeh's passing. Her battle really touched my hear and also, my 8 year old daughter Nevaeh's heart. When we first heard about Your daughter, we were setting up and account for my papaw to help fund things he needed and my grandma for his future treatments and things he needed to make life easier. My daughter donated $20 of her money and wanted to help in some way. The other connection I felt was she started chemo on my birthday and she reminded me so much of my daughter. So strong. She fought hard and was such an inspiration to so many. My heart and prayers go out to you ♥

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Christine Allen-Bennett
15 months ago

A true Princess Warrior! Your strength and courage amazed us. Your smile, contagious!

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Edson Escoto
15 months ago

See you later lil Angel.

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Bev Stanton
15 months ago

so sorry to read this. you all have been an inspiration.

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Diane Marie
15 months ago

Although I did not know Nevaeh I was truly inspired by her. Sending love and light at this sad time.

+ Read More
Mike Kebelbeck
15 months ago

From the moment I first heard her story I have followed. I am so sorry to hear the news tonight and my prayers go out to the family! I am happy to know she is in a much better place.

+ Read More
Claudia Smith
15 months ago

My heart breaks as I read this last post, but Nevaeh's strength is an inspiration. I am so sorry.

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Charlene Marsh
15 months ago

The courage of Nevaeh and her family are such an inspiration. I have been so impressed with your gusto for life and thoughts of helping others even in the midst of your own struggle. My deepest condolences for your loss. My God bless you and keep you all safe in His arms until you are reunited with Nevaeh in heaven.

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Héctor Sánchez
15 months ago

We want to give the family our condolences, there are no words to comfort your pain. May she rest in peace. God bless!

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Christine Allen-Bennett
17 months ago

Stay strong Amber. Embrace your family and cherish every moment. Saying prayers from a mother's heart to our gracious God! Miele prayers every night for God to put His healing hands on Nevaeh. You and our family are always on our minds and in our hearts. And I am here for you.....c

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Debbie Dupont Lahn
17 months ago

I am so dearly sorry that your baby girl has to go through all of this. I can't imagine how hard it must be on all of you. I hate cancer!! Keep the faith and know that others are praying for you. God Bless!!

+ Read More
Dawn Escott-Wilkins
19 months ago

Don't beat yourself up over your initial decision not to amputate. I think the trend is to go with limb salvage and that seems to be the initial push. Our daughter had a limb salvage after being dx with Osteo, then a 2 local recurrences before we finally were advised to amputate. She went with a rotationaplasty but shortly thereafter we found that it had returned in both lungs. She had specific issues with the rotationplasty. She passed away a year later. I play it back. All I can conclude is there is never one right answer; you have to go with your gut. You are dealing with a monster. I tried to make decisions that were based on survival and quality of life. Good luck and best wishes for your daughter and family.

+ Read More
Michelle McNatt- Gillen
20 months ago

I donated so many months ago...and pray every day for your daughter and family. I'm reading this update and crying myself because I would be crying too...if my daughter was going through what yours is. Sending so many more prayers your way.....

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Emmy Lemke
21 months ago

I'm so sorry to hear about your cancer, you are so beautiful and strong and you most certainly don't deserve any of this heart ache! Your just a child , a child shouldn't have to worry about some of the things Nevaeh has struggled with! May god bring you nothing but blessings and happiness! My prayers are with you and your family girl! Your such an inspiration for other children with cancer ...My mother passed away when i was only 17 from lung cancer. They misdiagnosed her in her 3rd trimester thinking it was lung cancer...but than re diagnosed with stomach cancer and than pelvic. She was so strong and had so much more life to live! But god knew he could help her more, an that she didn't have to suffer anymore. I miss her everyday but i have so much faith your in amazing hands with the doctors that care for you! My aunt I came to live with after my mom had passed was just diagnosed with lung cancer. She fought her hardest and she beat it! She still has to do treatments to stop the blood flow to the tumor but she is doing excellent , so i know the hard ache of this terrible illness.. I will pray for you every night because you deserve nothing but happiness!! I know there is light at the end of the tunnel!!

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Jamie McNeil
21 months ago

someone needs to get this story to Fox and Friends and get this gofundme going. i think its a shame when a pizza delivery guy gets taken for a 7.00 tip and ends up with over $350,000 in 2 days on gofundme. im heartbroken for this family.

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Margie Pyle
21 months ago

Sounds like things are looking up. So glad to hear you and the doc. have plans. I'm glad you are here in California with the better weather. I'm hoping our warmth will ease some of her pain. Good luck with the treatments. Keep us posted. We care about your precious baby. Peace ofr the Lord be with the family. Eight year olds shouldn't have to hurt like this.

+ Read More
Erica Zenarosa Gomez
21 months ago

I am so sorry for what you are all going through. But I'm so glad to hear that there's at least something to keep you all hoping. I am also glad you guys can be together during this time. I can't imagine not being with my family while going through what arguably is the worst thing parents could possibly go through. What is more important than family after alI?! I will pray for Neveah and for all of you. May you have continued blessings and keep us updated on Neveah's progress. xxxx

+ Read More
Dawn Puccinelli Mulder
21 months ago

Thanks for the update! Still praying!

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Gerrard Milner
21 months ago

A TESTIMONY FROM A PATIENT I never knew cannabis oil was indeed wonderful and very effective in the treatment of cancer “if not by the government and so called rules to regulate cannabis dad would still have been alive. Thanks to the new policy of legalizing cannabis in my state and have even lost my wife’s kidney cancer, and it was really shocked and surprised when I see a lot of documentary on how the cannabis oil had helped many people to whom His family thought they never could do next undergoing several “Chemo” from the department of my heart, and I have to say a word of appreciation to Dr. Gerrard Milner for timely intervention in the lives of my wife suffering from kidney cancer. As I write this testimony in this blog my wife is so strong and healthy even though you have not completed the total dosage “for cannabis and medical consultation opportunity and get in touch with him if you are a cancer patient through their email: (drgerrardm@outlook.com) so you can ask for more details

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Trish Binney
21 months ago

Hi there I'm. In UK My son was diagnosed with osteosarcoma in Aug 2011..he has a titanium femur. .he relapsed in Oct 2014 with metastic sarcoma on his lung..After surgery was told he was in remission ..2 weeks after he was told he had relapsed again..he has now been told he us un curable. .We are no awaiting radiotherapy in 2 weeks. .then who knows what's next..I'm fund raising to make memories. .so good luck with ur fund raising. . X

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$74,895 of $10k goal

Raised by 1,467 people in 28 months
Created August 07, 2014
JA
$30
jason austin
15 months ago
$10
Anonymous
15 months ago
$25
Anonymous
15 months ago
$50
Joyce Bradley
15 months ago

I'm so very sorry that you have lost your little Nevaeh. Just isn't fair that such a sweet little girl had to struggle so much. But every picture she was always smiling. She looked so courageous and I'm sure she's in heaven and waiting to watch over her baby brother and all her family.

RB
$50
Ron B
15 months ago

I have been praying and following Nevaeh since many months ago and i honestly am in tears. I pray for her and her entire family. Gods speed little angel. You have touched my heart and soul forever. And to her parents, your little one has made such a positive difference in so many lifes. She will always be remembered.

TK
$50
Tyson Keslar
15 months ago

Keep an eye on us baby girl. Until we meet again. .

$15
Anonymous
15 months ago
JD
$10
John Dziak
16 months ago
$50
Anonymous
17 months ago
$50
Anonymous
17 months ago
Ashley Thompson
15 months ago

I am so deeply sorry. I wish I had seen my updates sooner to be able to send you love around the time of Nevaeh's passing. Her battle really touched my hear and also, my 8 year old daughter Nevaeh's heart. When we first heard about Your daughter, we were setting up and account for my papaw to help fund things he needed and my grandma for his future treatments and things he needed to make life easier. My daughter donated $20 of her money and wanted to help in some way. The other connection I felt was she started chemo on my birthday and she reminded me so much of my daughter. So strong. She fought hard and was such an inspiration to so many. My heart and prayers go out to you ♥

+ Read More
Christine Allen-Bennett
15 months ago

A true Princess Warrior! Your strength and courage amazed us. Your smile, contagious!

+ Read More
Edson Escoto
15 months ago

See you later lil Angel.

+ Read More
Bev Stanton
15 months ago

so sorry to read this. you all have been an inspiration.

+ Read More
Diane Marie
15 months ago

Although I did not know Nevaeh I was truly inspired by her. Sending love and light at this sad time.

+ Read More
Mike Kebelbeck
15 months ago

From the moment I first heard her story I have followed. I am so sorry to hear the news tonight and my prayers go out to the family! I am happy to know she is in a much better place.

+ Read More
Claudia Smith
15 months ago

My heart breaks as I read this last post, but Nevaeh's strength is an inspiration. I am so sorry.

+ Read More
Charlene Marsh
15 months ago

The courage of Nevaeh and her family are such an inspiration. I have been so impressed with your gusto for life and thoughts of helping others even in the midst of your own struggle. My deepest condolences for your loss. My God bless you and keep you all safe in His arms until you are reunited with Nevaeh in heaven.

+ Read More
Héctor Sánchez
15 months ago

We want to give the family our condolences, there are no words to comfort your pain. May she rest in peace. God bless!

+ Read More
Christine Allen-Bennett
17 months ago

Stay strong Amber. Embrace your family and cherish every moment. Saying prayers from a mother's heart to our gracious God! Miele prayers every night for God to put His healing hands on Nevaeh. You and our family are always on our minds and in our hearts. And I am here for you.....c

+ Read More
Debbie Dupont Lahn
17 months ago

I am so dearly sorry that your baby girl has to go through all of this. I can't imagine how hard it must be on all of you. I hate cancer!! Keep the faith and know that others are praying for you. God Bless!!

+ Read More
Dawn Escott-Wilkins
19 months ago

Don't beat yourself up over your initial decision not to amputate. I think the trend is to go with limb salvage and that seems to be the initial push. Our daughter had a limb salvage after being dx with Osteo, then a 2 local recurrences before we finally were advised to amputate. She went with a rotationaplasty but shortly thereafter we found that it had returned in both lungs. She had specific issues with the rotationplasty. She passed away a year later. I play it back. All I can conclude is there is never one right answer; you have to go with your gut. You are dealing with a monster. I tried to make decisions that were based on survival and quality of life. Good luck and best wishes for your daughter and family.

+ Read More
Michelle McNatt- Gillen
20 months ago

I donated so many months ago...and pray every day for your daughter and family. I'm reading this update and crying myself because I would be crying too...if my daughter was going through what yours is. Sending so many more prayers your way.....

+ Read More
Emmy Lemke
21 months ago

I'm so sorry to hear about your cancer, you are so beautiful and strong and you most certainly don't deserve any of this heart ache! Your just a child , a child shouldn't have to worry about some of the things Nevaeh has struggled with! May god bring you nothing but blessings and happiness! My prayers are with you and your family girl! Your such an inspiration for other children with cancer ...My mother passed away when i was only 17 from lung cancer. They misdiagnosed her in her 3rd trimester thinking it was lung cancer...but than re diagnosed with stomach cancer and than pelvic. She was so strong and had so much more life to live! But god knew he could help her more, an that she didn't have to suffer anymore. I miss her everyday but i have so much faith your in amazing hands with the doctors that care for you! My aunt I came to live with after my mom had passed was just diagnosed with lung cancer. She fought her hardest and she beat it! She still has to do treatments to stop the blood flow to the tumor but she is doing excellent , so i know the hard ache of this terrible illness.. I will pray for you every night because you deserve nothing but happiness!! I know there is light at the end of the tunnel!!

+ Read More
Jamie McNeil
21 months ago

someone needs to get this story to Fox and Friends and get this gofundme going. i think its a shame when a pizza delivery guy gets taken for a 7.00 tip and ends up with over $350,000 in 2 days on gofundme. im heartbroken for this family.

+ Read More
Margie Pyle
21 months ago

Sounds like things are looking up. So glad to hear you and the doc. have plans. I'm glad you are here in California with the better weather. I'm hoping our warmth will ease some of her pain. Good luck with the treatments. Keep us posted. We care about your precious baby. Peace ofr the Lord be with the family. Eight year olds shouldn't have to hurt like this.

+ Read More
Erica Zenarosa Gomez
21 months ago

I am so sorry for what you are all going through. But I'm so glad to hear that there's at least something to keep you all hoping. I am also glad you guys can be together during this time. I can't imagine not being with my family while going through what arguably is the worst thing parents could possibly go through. What is more important than family after alI?! I will pray for Neveah and for all of you. May you have continued blessings and keep us updated on Neveah's progress. xxxx

+ Read More
Dawn Puccinelli Mulder
21 months ago

Thanks for the update! Still praying!

+ Read More
Gerrard Milner
21 months ago

A TESTIMONY FROM A PATIENT I never knew cannabis oil was indeed wonderful and very effective in the treatment of cancer “if not by the government and so called rules to regulate cannabis dad would still have been alive. Thanks to the new policy of legalizing cannabis in my state and have even lost my wife’s kidney cancer, and it was really shocked and surprised when I see a lot of documentary on how the cannabis oil had helped many people to whom His family thought they never could do next undergoing several “Chemo” from the department of my heart, and I have to say a word of appreciation to Dr. Gerrard Milner for timely intervention in the lives of my wife suffering from kidney cancer. As I write this testimony in this blog my wife is so strong and healthy even though you have not completed the total dosage “for cannabis and medical consultation opportunity and get in touch with him if you are a cancer patient through their email: (drgerrardm@outlook.com) so you can ask for more details

+ Read More
Trish Binney
21 months ago

Hi there I'm. In UK My son was diagnosed with osteosarcoma in Aug 2011..he has a titanium femur. .he relapsed in Oct 2014 with metastic sarcoma on his lung..After surgery was told he was in remission ..2 weeks after he was told he had relapsed again..he has now been told he us un curable. .We are no awaiting radiotherapy in 2 weeks. .then who knows what's next..I'm fund raising to make memories. .so good luck with ur fund raising. . X

+ Read More
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