The doctors are saying “SORRY, THERE IS NO CURE”. I am only 35 years old! How can this be my future? They tell me that my time is limited and before I go there are things that I dream of doing, I also need to plan for when the time comes. The last thing that I want to do is leave behind the expensive costs of a funeral to my amazing girlfriend and my family. Living in and out of the hospital has really made my finances thin.
BUCKET LIST: Some of the things I want to do before I go include: 1. Weekend in orlando, including Universal studios
2. Mini Cruise
3. Race a exotic car on a closed track
4. meet Tim Allen
5. Tour Florida Gators Stadium/workout room/locker room
6. Go to wolf Sanctuary
7. Money to pay off various bills
Time line of the last year and a half:
January 2016- Chest Pains and 3 trips to the ER to discover I had an Orange size tumor in my chest which grew to 20cm by the time I got insurance established that was pushing on my heart and lungs making breathing difficult. Well I need surgery however I got a diagnosis and had to wait!
DIAGNOSIS- Medistinal Germ Cell Cancer (WHAT?) TREATMENT- Aggressive Chemotherapy for 4 months.
February 2016 Admitted to Moffit (5 days a week for 4 months)
June 2016- Cancer markers look better, we can do surgery. Do all pre-surgery work ups. Let’s check those tumor markers. NOPE JOKES ON ME. They are again rising and time for more chemo. 3 more months of this lovely drug but hey I am still alive I GOT THIS!
November 2016- I CAN FINALLY HAVE THE SURGERY to remove the tumor. They open my chest to reach my heart and remove a 16 cm tumor (THAT IS THE SIZE OF A SMALL MELON).
December 2016- I HAVE A NEW TUMOR….. Are you kidding! MORE CHEMO and now RADIATION. During this time I start having chest pain so another scan now shows I have not 1 but 5 tumors.
DIAGNOSIS-THERE IS NO CURE and they say I will more than likely die within 6 months.
I proved them wrong! I was not taking that for an answer. I meet with the doctors and we decide if I do weekly chemo I can extend that time for a year maybe.
January 2017- May 2017- Weekly Chemotherapy One day a week, which shrunk my tumors but will NEVER cure them.
May 2017- I got chosen to be a part of an experimental treatment called Immunotherapy. I start doing this weekly (3 Days a week in the hospital). I had horrible side effects and almost got removed. The option was continue and maybe die or end it and die for sure. I continued the misery in hopes that this was my MIRACLE.
July 2017- Finally got another scan. Hoping and praying that the tumors were smaller or gone. NOPE they are bigger!
DIAGNOSES- THIS REALLY WAS OUR LAST SHOT! WE ARE SORRY! WE CAN CONTINUE MAINTENCE CHEMO TO GIVE YOU AS MUCH TIME AS WE CAN.
Thank you for taking the time to read this and thank you for any donations that can be given to help make my dreams come true in the limited time I have. If you can take a moment to share this I would really appreciate it. I don’t know how much time I have left but I promise to live each day like it is my last. THANK YOU. Much love to everyone
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