Susan's Medical Fund
A brief word about who I am and why I am here: I am a naturopathic doctor and Susan has been in my care for 5 years. During that time, I have watched her struggle with her declining health, and everything we were able to accomplish for her was too little, almost too late. She now has no job (and unable to work), no money, and nowhere to go. She has been living with her parents who are just beginning to grasp the seriousness of how ill she is. In addition to Lyme disease, she has mold illness and multiple chemical sensitivities. She experiences excruciating headaches daily, and fights dizziness, brain fog, heart palpitations, hives, and even anaphylaxsis, for which she has been hospitalized four times in the past two weeks.
The worst part? I believe her health can be greatly improved and restored if she only had a bit of help. That bit might involve several thousand dollars, but as a formerly productive person with a real drive to provide for herself, one of the hardest things for her is to ask for help. That is where I volunteered to step in. I personally don’t have the financial resources to do what she needs, but I can help her ask the good people, like you, to help.
She has many details on her specific health challenges, but the bottom line is: she seriously needs help and every little bit helps. Please help her get to a place where she can live a productive, non-life threatening existence.
I have been on the desensitization drops from the LaCrosse allergists since mid-December 2016. Further testing showed that I also have chemical sensitivities to petro chemicals. This includes things as seemingly benign as Vaseline (white "petroleum" jelly - a petro chemical). So, a second formulation of desensitization drops for that group of substances has been added to the daily allergy drops routine for molds and formaldehhyde.
I moved back to the spare room at my parents house in mid-April due to ongoing mold problems at my brother's house causing constant sinus / ear infections for which I cannot take antibiotics (because the ones best suited sinus / ear infections are made from molds, which I am anaphylactically allergic to).
Just like allergy shots, the allergy drops will take time (years?) to desensitize me to the problem substances. Once an allergy / chemical sensitivity has evolved to the point of causing anaphylaxis, it's a long slow process to get it turned around.
My face continues to heal from the cancer and reconstruction surgeries. The scars are barely noticeable, although the incision areas are still numb. I am scheduled to meet with the Mayo cancer surgeon in August where he will see how things are healing, and a dermatologist to check for any new suspicious spots.
Thanks again to everyone who has donated and to all of you for the positive thoughts.
Susan's elevated B12 levels that were retested by the hematologist / oncologist on Oct. 31st, came back at 1500, as compared to the 1400 that the primary care doctor found a month earlier (normal range is 200-900). Since another month had passed since the initial oncology appt so, the oncologist decided to do a CBC with differential to look for other clues for the elevated B12.
Susan also had her appt with the Wisconsin allergy specialists on Nov. 28th. She was tested for allergies to seven species of mold as well as formaldehyde. Due to the allergic history that she described, the doctor decided to use an antigen solution that was 125x weaker (!!!) than what they typically use to test patients... so as not to end up putting Susan in the local ER with an anaphylactic reaction to the testing. :)
Within 10-15 minutes, Susan's arm had whealed up at the spots where each one of those antigens was injected. She is incredibly allergic to each of the seven molds that were tested, as well as formaldehyde (which is literally in everything and nearly impossible to avoid coming into contact with). Many pharmaceutical antibiotics are made from various molds, which would explain her antibiotic allergies. Formaldehyde can be found in such things as: dental materials, vaccines, particle board, textiles, fabric, paper towels, adhesives, paints, dyes, cleaning fluids, cosmetics, detergents, car exhaust, etc etc etc. It can cause immediate or delayed anaphylactic reactions. That explains a lot, doesn't it? :(
Doctors also drew blood for labs and are waiting on results from those labs. At which time, they will formulate and ship the desensitization protocol and schedule follow-up appts for 2-3 months out, when they will do further testing for other chemical sensitivities.
I can no longer tolerate all of the symptoms that are generated by living in my parents house. A few days ago, I moved into a room at my brother's house a half mile down the road. The brother's house is much older and definitely has mold issues (to which I am also allergic) but, this appears to be the lesser of the evils for my physiology at this time.
One of the first things that I noticed is my heart rate, which typically has run between 90-120 bpm at my parents (and has been as high at 160-180 bpm on occasion), dropped to a consistent 75 bpm within 30 minutes of being in my brother's house. This alone has to be better for my health. I have also noticed decreased swelling around the surgical incisions in my face from the cancer removal. I am definitely getting a better night's sleep here. Any health effects from the mold exposure will have to be dealt with as they arise.
Still waiting to hear back from the oncologist... looking forward to the allergy specialist appt in Wisconsin (although getting there will be a challenge, considering that I often have reactions to vehicle smells).... and the face continues to heal.
Your continued prayers and support are greatly appreciated.
Oncology appt went well. More blood work done to recheck B12 (to make sure the original test was accurate) and to see how the body is utilizing B12. Apparently what looks like an elevated level can actually end up being a deficiency, depending on how B12 is metabolized. Waiting to hear back from the oncologist. I had hoped for more specific cancer type testing but, I suppose this is where doctors must start as required by the insurance industry.
Susan, I have been following you on this difficult journey. It's hard to find comforting words in the face of such painful challenges. The post of July 1 was hard to read and see.....hearbreaking in a word. Your strength inspires me. It seems that you have a good team supporting you in this difficult decisions. I'm sending you healing wishes and praying that you get a break.
Susan, so sorry to hear of yet another issue....my heart and hope are with you as you travel this difficult road. Life seems so very unfair that I have to think that we are not seeing the whole picture. That in the end it will all make sense. This is the theory I use to give me the strength to keep going and face my challenges. I send you healing wishes.