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The Walker Family

$21,862 of $30,000 goal

Raised by 291 people in 2 months
Created April 14, 2019
The Walker Family
on behalf of George Walker
George’s words express this best:

Some wonderful news! And some not so wonderful news...
As some of you know, our newborn baby girl Amelia DeLacy Walker was born on March 31st 2019. 7lb 2oz. She is incredibly healthy, alert, and absolutely gorgeous. It’s not just daddy talking, the photos tell it all;) The day after the birth Megan had to get an MRI taken. The doctors discovered a large brain tumor in her front left temporal lobe. We were then transferred to Stanford University Hospital for further tests and a biopsy. We will know more about what our next steps will be after we hear from the results. I have take time off from work to take care of Megan and Little Miss Amelia. I am incredibly thankful for all of our family that have given us their help and support, especially Patricia (Megan’s mom) and Anna (Megan’s sister) two amazing mothers that have given time out of their lives to stay with us and help spread out responsibilities around the house, with Baby Amelia, and with caring for Megan.

I will post updates every now and then. I probably won’t respond to all who may leave a message, but we will read them, and we appreciate any support.
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From George:
UPDATE: We are still very blown away by all of the support that has been coming our way. Both in caring words and with financial support. It has certainly help ease our journey. We couldn’t be more thankful for how large our family has grown over the years. I am especially grateful that our Little Amelia is born into such a caring community.

I hadn’t done an update for that last visit in Stanford a couple of weeks ago. Megan, Amelia, and I have been spending some good time at home just us for the first time. A couple of weeks ago Megan had a Functional MRI. That’s where they run scans while Megan completes some physical and cognitive tests: Wiggling her fingers and toes, solving math problems, and word association tests. This type of MRI maps out exactly where Megan’s functions are located in her brain. So, in case if surgery, the doctors know what parts of her brain to avoid. Our Neuro oncologist said that he doesn’t think that surgery is needed and that he hopes that the Tumor board will agree that only medication and Chemo is necessary. Surgery isn’t ruled out quite yet, but it seems to not be the direction at this moment. The tumor is large and complex, and surgery may not be possible in the part of her brain where the seizures are located. If that is correct then surgery will not be beneficial. So we keep our thoughts and prayers that the less invasive plan is the plan we will take.

Megan will have another visit up to Stanford from June 2nd through the 12th. She will under go monitoring to locate exactly where the focus of her seizures are in her brain. This could take 3-7 days of monitoring. And then she will have another MRI that will make a 3D map of the tumor in relation to the functional parts of her brain. They will also compare this scan to the previous MRI to check on the growth of the tumor. And then the doctors will discuss with Megan what the Surgery options are. Which we hope and pray will still think surgery is not needed.

What is most important right now is to get Megan’s seizures under control, so that her time with our Little Amelia can be less stressful. The Medications have helped, but still hasn’t kept the seizures completely at bay. The Oncologist is hopeful that her seizure will be stopped by the medications. They are just figuring out what the right medications and at what dose is right for Megan.

https://www.gofundme.com/7h8n4-the-walker-family?utm_source=facebook&utm_medium=social&utm_campaign=fb_dn_cpgnstaticsmall_r
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The update is from George.
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UPDATE:
Thank you all for your support and financial help through go fund me. I cannot tell you how overwhelmed with gratitude we are.

Megan is becoming more stable with her seizures after our last visit to Stanford. We met with the neurosurgeon and with the neuro-oncologists. They said that the tumor is large and complex, but it is a very Low Grade Glioma. It means that it is Benign, but it is large enough and complex enough that the pressure from it is causing the seizures. In fact the pathologists said that they could barely believe how low grade it is for its size. Perhaps it’s has been growing since her teens.

The oncologist wants surgery to be the last resort. One: the complex geometry of the tumor makes it difficult for surgery to get all of it. And two: He feels that the tumor may be treatable through medication and Chemo therapy. The most important thing right now is to keep the seizures under control so that Megan’s quality of life is good enough to be a part of Amelia’s care.

We go back to Stanford next week for a functional MRI to locate exactly what parts of Megan’s brain that Tumor is affecting and to locate which parts of her brain the seizures are coming from.

Again, grateful is an understatement to how we feel about the support we are getting. I had no idea how large our family is.

Thank you thank you thank you....

https://www.gofundme.com/7h8n4-the-walker-family?utm_source=facebook&utm_medium=social&utm_campaign=fb_dn_postdonate_r
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$21,862 of $30,000 goal

Raised by 291 people in 2 months
Created April 14, 2019
The Walker Family
on behalf of George Walker
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