We're almost there. I can't believe how hard this is. There is so much involved in making these arrangements. I've never had to do this before. I'm only 42 and Sean was only 48. I shouldn't be having to make these arrangements yet. Please help in any way you can!
Sean's memorial service will be held on Saturday, July 26, 2014 at the central assembly of God in angleton, Texas at 7 pm. All are welcome and we would love to hear you share some fond memories with Sean.
Thanks again for anything and everything you have done and will do to help.
I come to you this evening a broken woman. My wonderful husband, Sean passed away this morning at 11:15am. Needless to say we had no life insurance because no one will cover someone with that many health issues. Plus all the medical bills that had drained our savings ad infinitum. His cremation and memorial service will cost $2500.00. They won't even cremated him until we pay in FULL. But at least we don't have to raise $20,000.00 for postransplant medications anymore and he can run. He can hold our beloved grandson Travis in his arms again and his legs don't hurt anymore. That means more to me than anything. Thank you SO much.
What a day today has been already. I was on the phone again with Sean's prescription case manager and even talked to the hospital about prescription help. We are stuck paying cash for his meds now until the $4500 donut hole is met. The hospital social workers said that we cannot qualify for free or reduced meds until AFTER the transplants. Frustrating to say the least. My husband is waiting to die or get a phone call to save his life, just not fair but we've given it to God and believe things will be sorted out soon. I can't believe what a patient man I married.
Yesterday was a rough day to say the least. I contacted Sean's Medicare prescription person and she said we will remain in a donut hole until we pay another $4500 out of pocket. The post transplant meds will still be $3500 or more because they ARE NOT covered.
God did bless us yesterday when my daughter was talking to a coworker who happened to use the same insulin Sean did and had a couple of extra pens. She was generous to donate them to us, such a blessing.
The need now is only getting greater so I ask again that this be passed around and shared as much as possible. We go to Sean's doctor tomorrow and unless we can somehow cover the donut hole, it's possible he will have to be admitted to receive all of his meds that are quickly running out.
Some good news is that Sean was able to drop 6 lbs of excess fluid overnight, so he's back in transplant range. He has to maintain a weight of 218 or below and is usually 200-205 on any given day.
PLEASE WATCH the Fox News coverage as it shows our needs and has an interview with Sean's heart transplant doctor. We even learned something new that we didn't know. The prognosis isn't good.
PLEASE SHARE Fox news Houston. MyFoxHouston http://t.co/PkixFa0NWA. I hope this works. We still need many prayers and thoughts, plus hopefully this
will be shared many, many times. God Bless you all for the support.
Sean finally had his story covered by the news media last night on Fox news Houston. MyFoxHouston http://t.co/PkixFa0NWA. I hope this works. We still need many prayers and thoughts, plus hopefully this
will be shared many times. He is doing good today but has retained more fluid overnight. He's to double his fluid pills for the weekend and see what happens. God Bless you all for the support.
Sorry, there was a typo in the address.
Sean finally had his story covered by the news media last night on Fox news Houston. MyFoxHouston http;//t.co/PkixFa0NWA. I hope this works. We still need many prayers and thoughts, plus hopefully this will be shared many times. He is doing good today but has retained more fluid overnight. He's to double his fluid pills for the weekend and see what happens. God Bless you all for the support.
Sean lost a few pounds in excess fluid overnight but the horrible cramping is back, this time in his hips and legs. He doesn't sleep at night, or can't I should say and the last couple of days breathing has been very hard. He's in a lot of pain so please, pass this page around and pray. We are relying on God's continued blessings for donations because we believe, trust and know it will be done. God Bless all of you, our supporters, family and friends.
We hope everyone had a fun and safe 4th of July. Sean has been getting some really intense dizzy spells the last couple of days and has become more exhausted. He's always tired, can't drink enough water, which is causing fluid retention, and a call to the doc in the morning is necessary. He's also been very depressed and not joking or smiling as much as he normally does despite all of his worries.
The news media has called and canceled a couple of interviews but say they will call in a few days. Thank you again for the help y'all are giving. This is the worst time of the month for us. Please keep passing this along and praying if you do.
First, Thank you for all of your thoughtful and much needed prayers and donations.We were finally in a position to buy our 4 and 5 yo grandsons some underwear and t-shirts, that fit! We have had 3 news channels seem interested is getting my story and our family's struggle out there. I'm supposed to get the chance to talk about losing our car, which was to be paid off on the 15th of this month, All of the costs associated with meds before and after transplant surgery and the cost of eating a healthy diet. Please pray as it's a new month with new bills, needs etc...
As you already know, my husband, Sean, needs a heart and liver transplant desperately. He is 48 years old, and is honestly the best man I've ever known. He was born with a congenital heart defect that couldn't be fixed as a child. We chose to marry September 29, 2013 because Sean's bucket list was to be married to his best friend before he passed. We desperately need help with parking fees, gas, hospital bills, doctor bills, etc. I have had to quit my job to take care of Sean, which only makes the financial burdens worse. He is able to do some things but needs me for everthing else like cooking all his meals, helping him shower and dress. I love this man with all my heart. Please try to find it in your heart to help us in ANY way. He's always in pain and having panic attacks. I just want him to be happy for as long as possible. Our children and 5 grandchildren need their PawPaw. Thank you for reading.