Caley's last wishes & funeral Services
She Inspired Thousands with her Journey & mission of Spreading awarness of Cystic Fibrosis. Caley was 12, a hard working honoroll student. She loved Creating Art, Writing stories and playing with her 2 puppies. Caley had many dreams of traveling and seeing the world! A true Artist at heart to see and create art for everyone to enjoy! Caley spent thousands of hours on breathing treatments and years in the hospital. Caley was always indoors and when she could be outside she wanted to see everything and go everywhere!
A few weeks before her passing we were talking about life. That's when my Caley turned and looked at us in a serious but nervous voice she asked us, "Mom, Dad if something goes wrong can you please take me with you where ever you go. Please spread my ashes in the 7 seas so I can swim with the Dolphins and enjoy the amazing places I couldn't go." I felt a cold chill go down my spine and had to fight back the tears. I knew in my gut my daughters disease was getting worse. I had no idea Caley knew in her heart her time was coming. Fighting back the tears with all my heart and with my eyes tearing up I said, "Caley, my Love i will make your wishes come true! I love you Pretty eyes!"
a few weeks later my Baby girl is gone......
Caley was my brave child with a tough Life! Please help us make my daughters wish come true! Portions will also go toward Funeral services.
God Bless and Thank you for your support!
As I lay here not wanting to face the day.....wondering what today would have been, what today should have been. I should be preparing your 15 gifts for your 15th birthday. Would be getting ready for your quince or would we begin to plan your sweet 16? Both taken and neither an option from the most kind hearted human I ever knew. In your name and memory, Caley I will continue to grant wishes through BFC foundation and help create smiles through the pain (a statement I've mastered). Happy 15th Birthday my angel. I love and miss you with every fiber of my being.
Posted by Teresa Camarillo
I am so sorry for the loss of your precious daughter. Your written words are filled with the grief you are living and I pray that God will give you peace, knowing that your daughter is with Him and she is not longer sick. She is healthy and loving her freedom. She wants you to celebrate the life she lived and the freedom from sickness that she is living now. I pray that God will give you peace, knowing that your daughter is happier and healthier than she could ever have been here. I pray that God will help you release the sadness and hopelessness that are still controlling you. Your precious baby is home and waiting for your reunion.
Dearest Teresa, Please know that no matter what you are feeling, its ok. I have 5 kids, and I cried uncontrollably reading this to my hunny. I can't tell you how badly I want to take it away.. I told Trev that as selfish as it sounds, I would rather take care of a sick kid, than remember one who has passed before me. I have no idea what you are going through. I'm sorry I have no magic words to help you. I do have prayer, and you and your family are in my daily prayers, DAILY. Just keep talking to her; I swear it helps me in regard to my dearly departed loved one. Even when I get angry about it.. You are in my heart...
I feel every word you type to the core. I hope for better days ahead for you, for me, and for anyone who's lost a child. It is by far the worst pain imaginable. We are thinking of going away this year for the holidays. Last year was our first round and it was tough, I think it might be easier not to be home? Good luck and God Bless!
I'm currently recovering from a major surgery, and not working, other wise I would donate right now. I lost my best friend to CF as a kid, and I have always followed CF research and advancements to this day. I was saddened to hear your story, as a father, as a nurse, and as a man who still has the boy who lost his best friend, Laura, 25 years ago. My family sends yours much love and light.
My daughter has cystic fibrosis and is a patient at UofM in AnnArbor, MI. Her doctor is amazing!! They have a fantastic program there. Dr. Nasr is the BEST, head of peds pulmonary. If you can travel to Michigan, I strongly recommend them. -Julie McCaffrey
This is really sad, indeed Caley was a wonderful girl with full of dreams and she will always remain in our heart and prayers :)
So tragic! Sorry for the loss! RIP Miss Caley! She will always be an angel!
So tragic...may God bless your family and lift you all up to get through this.
I'm so sorry ,,,,RIP Miss Caley. We will keep you in our hearts…!!!
:( I am so sorry that your child ( and you ) are going through this.I hope that you will find someone who is able to help her.
Have you looked at UCLA? Dr Ardehali specifically. I'm 35, have CF and ha a double lung transplant 10yrs ago there. I live in Sacramento and attention time of my transplant, I had 13% lung function and was declined by my insurance for the procedure. Dr Ardehali is amazing an pioneered an ameno acid "wash" of the donor lungs that helped my body accept them. It's something worth looking Into. I saw you're looking at Texas and Philadelphia but UCLA is a great facility. Just a thought. If you want to intact me for more info my email is email@example.com. Happy to provide any info I can and assist in any way possible.