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Help my Gimpy Ass pay some bills!!!

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Well, l it looks like it's time to start something that will makes it easy for me to communicate all these details. However, life isn't that easy for me right now. I know that there are a lot of questions, I have just as many, and most of them are unanswered. I'm hoping that in the next few weeks I will be able to share a little more insight, and hopefully a plan of attack of what comes next. The million-dollar question, what's going on? Or how are you feeling? Both of these questions are very uncomfortable questions to ask anybody you care about. Nevertheless someone who touched your life but yet you're not close enough to feel like you have the right to ask. Don't feel like you missed something, I didn't share much information. Reason being, I don't have much information to share. I can tell you what I do know, I finally feel like I have a good care team in place to begin this next journey of life. There really isn't a whole lot of things ruled out, however that leaves a lot of things left to figure out. What I have  been focusing on is that I have a few choices everyday. The first choice is my attitude, and am I going to choose to pick the best day possible, or well really there isn't another option in my world. Anyone who knows me, I know is that I'm always positive, I look at the bright side and the big picture, and I really try to see the best in everyone. The second thing is to try to feel like I've accomplished something, which some days is a harder task than others. Everyday I try to get up and at least put myself together, this girl ain't wearing sweatpants for the rest of her life, I don't even want to wear them now. However they are the most comfortable, and I can make yoga pants work now that they sell long shirts, but trying to feel like you and being sick is a difficult task everyday. But I have been diagnosed with is clonus. Clonus is a symptom that's can be caused by many things. What it looks like to the normal eye is I have a nervous foot or leg tap. Until you spend a little bit of time with me and you realize it's more like my right leg is grooving to its own beat. Sometimes it's country, other times it's rap, and some days I really have no idea what's playing. I also walk very slow, however it's not my first gimp walk, most of you know I've been a klutz all my life. But this time it's a little more obvious. Clonus is involuntary muscle spasms caused by some sort of Disconnect in the way the brain and the nerves communicate to each other. Typically most people have it in the outermost portion of their limbs, however I do one thing well in life and that's go big or go home. So it affects most of my right leg, and has now progressed into the left leg and my hands sometimes. It's hard to explain it on paper, it's a lot of little things like numbness, sensitive skin, hypersensitive skin, loss of feeling, I can't tell if things are cold or wet when I step on them. Light touch is debatable oh, and the weird thing is I can step on a bone and hardly flinch. Next thing I know is that there is no large mass in my brain, and yes there is a brain, along with no brain bleeds. I also know that in my lower back everything looks to be fine. There are no issues with the lower spine, or any thing from my previous back injury. Okay so what's next, I need to get more than a few blood tests and Imaging with an MRI. Blood work will be done on Wednesday oh, and waiting to hear when I will be able to have an MRI. Other than that we wait. Waiting is the worst part however it's giving me time to think about a lot of things, reconnect with people I haven't talked to in awhile, and some self growth. And the most important question how they've been keeping myself busy? Well-being gimpy has some , like I always have princess parking and whoever drives me probably won't have door dings. I also get front of the line passes at amusement parks, means I get to go on way more rides. And honestly it gives me the chance to take a little break, relax, and spend some time with my friends and my pops. My life has been so crazy busy for years oh, it's been a hard adjustment to just sit around. Believe me, I still don't sit still, but it's been good to actually take a good look at what I have in my house. The last couple of moves have been a little crazy, some not so planned out well, and the others well just a peer shitstorm from start-to-finish. So I'm taking the time to organize things, donate, go through boxes that I haven't been through in years, it's like Christmas, taking with me what I need. Okay, let's be real... maybe a little more than what I need, we all know that I like to shop and have too many shoes. But the biggest thing out of all of this, is that I'm really trusting in a few things my father taught me. 1. You always get what you need, and everything always works out. 2. Someone has it worse than you do, be thankful everyday. 3. Put a smile on your face no matter what, keep your chin up, and be nice. 4. Everything happens for a reason, take the positive with you and the lesson written in your heart.  5. And there are blessings in everything, sometimes you just got to stop and look. 6. Be patient and everything always works out. I will be making an entry about the time line of how things progressed. I will also update on any appointments or new information. Please feel free to reach out!   Thank you! Xoxo  Me

Organizer

Alicia Steinmetz
Organizer
Waukee, IA

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