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Sensory lighting for max.

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max is 6, he has williams syndrome which has left him with learning disabilities, cardiac defects, visual problems inc spatial issue and a double squint & no 3d vision, hyper sensitive hearing, hip problems, delayed speech, ENT problems, feeding issues, sensory processing disorder and autistic traits. 
he is currently unable to access a park like other children and use the play equipment as he struggles with mobility (he's only been walking 2yrs) and cant see things clearly, he has problems with his vestibular sense which simulates the feels of vertigo and finds motion very scary.  all the noises from everything around him can overwhelm him, upset him and reduce him to tears. anxiety is a huge issue for people with williams syndrome.  he can hear everyone around him like they are right next to him so struggles to focus on 1 thing. 
he also can't keep himself safe, and can't be left alone. he will also just run is spooked by something but have no concept of dangers like roads etc.  he requires constant supervision when he's awake. 
at home he is much calmer and settled, his favourite thing is his ipad watching bing bunny or mr tumble or mayday videos on youtube!
what we would like to do is create a safe calm area at home with sensory lighting, tactile sensory toys, soft play mats and shapes etc so he has somewhere to chill safe and happy. 
we have been on the rompa sensory website and found a bubble light & fibre optic kit, with wall mirrors and corner safety stand to secure the bubble tube, however its a lot of money.
so i thought ago fund me page would be a good idea. 
this is not luxury equipment like an xbox etc this is essential for his sensory processing and relaxation. he doesn't understand how to play with most normal toys so misses out on going out to play with friends or play at a friends house.
i feel he deserves it after all he has been through medically, and faces. 
thank you for reading this.

Organizer

Sonia Rees
Organizer

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