Jonny's Lyme fight

$7,773 of $25,000 goal

Raised by 94 people in 36 months

My name is Jonny Mead. I am 26 years old and I have Lyme disease. I have had Lyme for six years, but I was only diagnosed this year after my symptoms got so bad that I was unable to guide fishermen on the Rogue River in Southern Oregon, which is how I made my living. One day a few months ago, on the river, my arms locked up and I was unable to row or steer my boat – and that was the last trip I guided, after I took my clients ashore halfway through the morning. I have joint and muscle pain all the time. My stomach, arms, and legs, twitch violently, I often get lost and disoriented, and my ability to concentrate has declined. I have severe headaches, drenching night sweats, and am unable to sleep more than a couple of hours. These symptoms occur every day with no reprieve. Lyme disease is a very lonely and isolating disease because sufferers often do not “look” sick. Hardest of all, I am losing my independence.

My body and brain have become infested with the bacteria Borrelia burgdorferi along with two co-infections (Bartonella and Babesia) caused by the tick bite. Unfortunately, Lyme disease is poorly understood by the medical community and there is little agreement about how to treat it. Thus, insurance companies don’t pay for the treatments. Here in the United States the typical treatment for Lyme involves copious amounts of antibiotics, which cost my family upwards of $1000-$1,500 every month. I am also allergic to the antibiotics and I am not getting better.

There is hope, however, because in Germany they have been treating Lyme disease successfully with ozone therapy. This therapy kills bacteria and viruses, and the Germans have been using it for 60 years to battle Lyme and many other diseases. Ozone therapy consists of an oxidation process wherein the toxins from the Lyme are broken down into carbon dioxide and water, which are easily eliminated from the body. Ozone therapy also stimulates white and red blood cells, and it blasts holes in the bacteria, yeast, and viruses, killing the Lyme disease.  

Lyme disease is becoming an epidemic in Oregon, particularly in the Shady Cove area where I live. I have now met several local people who have been through the ozone treatments. They have come back to the US Lyme free and they are heroes to me. They are an inspiration because they dared to go to a foreign country where they didn’t speak the language to take a cure they did not know much about. I am fortunate: I have the benefit of their experience.

I am scheduled to start ozone therapy on January 11th 2016. It is expensive (but not nearly as expensive as years and years of questionable treatments with antibiotics).  I need to raise about $25,000, because I have to go for 12 weeks, at least. So, I am asking for your help. Every bit helps – I am collecting spare change in jars at local businesses – and it does add up. So, anything you could contribute would be significant.

Thankyou,

Jonny

An arrow can only be shot by pulling it backwards. When life is dragging you back with difficulties it means that it’s going to launch you into something great, so just focus and keep aiming.

 

 


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Today Jonny started his IV treatments. He had no reactions and reported having a burst of energy for an hour and a half. I will take that any day even if just for a short time!!! He has been extremely positive and has a good attitude towards his healing. His service dog Cassius is doing well and helps a lot. The walk over to the clinic is very beautiful which lifted jonnys spirits and I took some photos. We don't have a car . The walks will help him build stamina. Once again thank you for support.
Jonny is so grateful to Be here getting treatment.
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Jonathan is beginning his treatment in Germany for Lyme disease. First appointment went well which was mostly assessments. During the scanning process Jonny 's body systems turned the color yellow which implies inflammation throughout his body. The most concerning areas at this time are his heart, lungs, hormones, and immune system. All of his joints and organs are effected by Lyme disease and its co infections. Thankyou for your continued support.
Body scan showing areas of where Lyme disease is present.
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Wow wow wow wow!!! Thank you such blessings!! Kind of speechless !
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I am overwhelmed with all the support we have received from the community. We are set to drive to Portland and fly from there to Germany on 1/8/16 for treatment. I have been closed mouth about my younger son trey, but he also has this dreaded disease and we are taking him for treatment as well. It is 12,000 a piece for each child totaling 24,000. The air fare and apartment are another 12,000. Total costs are approximately 36,000 not including food and incidentals. Thus far Germany is the most efficient, highest efficacy rate for a cure rates, and is still the least expensive. It is a atrocity that families such as ours have to forge fourth with no insurance coverage ( Lyme treatment is not covered ) and the burden lies within the family to find a way to facilitate the means for therapies for their loved ones. All the while the medical community scoffs at the idea of chronic Lyme disease. During our stay in Germany , there will be four other families from southern Oregon that will be receiving treatment. All family members , and close non - relative family members have come together to help raise money and awareness to this dreaded disease. I personally know 10 other persons suffering from this disease and meet more all the time. Thank you for your continued support. Requesting shares and prayers for both of my children . There is no such thing as a small donation if it is in your ability to do so. Once again , thank you from the bottom of my heart. Blessings to you and yours!!
Jonathan 26, Trey 13
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Read a Previous Update
Mary Doherty Harper
31 months ago

So agree..would love to see this young man make his GOAL $$!! Bless you Johnny..Fight On!!

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Kristina Lloyd
35 months ago

I really hope donations pick up. Jonny is too young to be this debilitated. Glad you started fundraising early!!

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$7,773 of $25,000 goal

Raised by 94 people in 36 months
Created August 7, 2015
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KL
$25
Kristina Lloyd
28 months ago (Monthly Donation)
KL
$25
Kristina Lloyd
29 months ago (Monthly Donation)
AB
$60
Avamere swimmers bedortha
29 months ago

This donation is from some of the women in my water fitness class. Good luck diahanne bedortha

KL
$25
Kristina Lloyd
30 months ago (Monthly Donation)
KL
$25
Kristina Lloyd
31 months ago (Monthly Donation)
$100
Anonymous
31 months ago
IM
$100
Irene Mields
31 months ago

Like Jennifer Toplitz, my first-born daughter, I consider the Brussats, whether by marriage or by birth, as family. We hope the very best for Jonny.

Mary Doherty Harper
31 months ago

So agree..would love to see this young man make his GOAL $$!! Bless you Johnny..Fight On!!

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Kristina Lloyd
35 months ago

I really hope donations pick up. Jonny is too young to be this debilitated. Glad you started fundraising early!!

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