Ellis-j To Euro Disney Fund

Ellis-j has Dravet syndrome which is a rare , catastrophic, lifelong form of Epilepsy that causes seizures , problems with her balance , behaviour, eating , drinking , learning and sleeping xx It also has caused problems with her chest and has spent a lot of time over her short life in hospital with 2018 being her first time not seriously ill in hospital so will be able to leave the country for the first time xx Last year a very special lady contacted us after hearing ellis-j had been in intensive care and asked us if she could run the great north run to raise money and awareness and send Ellis-j to euro Disney to meet the characters The run was completed and Catherine is still on a mission to raise more funds to get Ellis-j on her way to the magical world of Disney xx