PEI Marathon for MS.

$1,400 of $2,000 goal

Raised by 24 people in 10 months
On November 14th 2017, I received a stem cell transplant at the General campus of the Ottawa Hospital to treat MS. On my birthday, October 14th, this year I plan to run the PEI Marathon. As I’m in Ontario, I need to secure travel and race arrangements which should be between $500 and $600. Anything raised beyond that, I plan on donating to the MS society or the MS clinic at the Ottawa Hospital directly. The doctors at the Ottawa Hospital basically saved my life last year. I owe them something. So others can receive the same treatment I did. Thank you for your support.
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Thank oh so much to Liz Payne for writing a great piece. And to Julie for making everything about the video and photos so easy. Those things are not my strong suit.

https://ottawacitizen.com/news/local-news/running-man-in-less-than-a-year-ms-patient-goes-from-barely-crawling-to-running-a-marathon
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The MS Warrior Fund is now an official entity that will focus its efforts toward assisting MS patients with the things they need to live a life of dignity, and hopefully, mobility. MS can be a devastating disease in so many ways that most people simply do not understand. Providing them with the means to fight the disease in the ways they need is absolutely paramount to providing a better future for MS patients.
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This is a big week for setting up the fund. Obviously something like this needs to be done right so I’m meeting with a good friend who’s a business advisor. In fact, while I’m off work, she’s using my office. Apparently her office broke down or something. We’re going to go over the best and most effective way to set up the MS Warrior Fund. As it’s a long term project and fundraising goals at this point are minimal, we need to make sure that we get as much growth out of donations as possible without compromising the long term health of the fund. Thanks again to everyone who has donated. Please spread the word so we can do more to help MS patients with what they really need.
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With setting up the MS Warrior Fund, I have slightly changed my fundraising tactics. Symbolically, me running a marathon is a huge accomplishment. Not just for me. For the team of doctors and nurses across several fields that work hard treating patients like myself. Patients with lymphoma or leukaemia. For anybody on my Facebook, you get to see me post about progress over months at a time and it seems less dramatic as a result. But consider that 18 months ago I couldn’t even crawl to the bathroom. I had to drag myself around my house. Slide carefully out of bed or down the stairs if I felt really daring. A year ago, chemo was already robbing me of my hair. 8 months ago I was basically a human shell.

What I’ve decided though, is that this is a long term project. I’m not going to solve the many problems of MS patients overnight. As a result, I’m going to run more often. And I’ll fundraise for smaller runs as well. Large runs like marathons will have larger goals and longer campaigns. Shorter runs will have much more modest goals and shorter campaigns. And ME running is just the start. It’s great if I run. That’s fantastic. It’s a pretty amazing accomplishment that I now get to complain about running gear that cant keep up to my schedule. But it would be much better to have other MS Warriors running or walking too. And that’s ultimately what will happen in time.

I’d like to create a program where MS patients basically have a pension fund. Most MS patients don’t meet the requirements for tax benefits. Most don’t meet the requirements for an RDSP. Most don’t meet the requirements for CPP disability. Since there is no existing safety net for MS patients, it’s up to MS patients to create one.
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$1,400 of $2,000 goal

Raised by 24 people in 10 months
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$100
Anonymous
7 months ago
$25
Niki Stevens
8 months ago
$100
Anonymous
8 months ago
$200
Anonymous
8 months ago
LC
$20
Lisa Couch
8 months ago
MP
$25
Mark Purcel
8 months ago
MG
$100
Mark Gawargy
8 months ago
$25
Anonymous
8 months ago
KO
$50
Kelly O'Regan
8 months ago
RK
$20
Rick Kenny
8 months ago
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