Surgery expenses for Jen Tongay
Jen is having surgery for a spinal tumor. We won't know whether the tumor is benign or not until it is out and biopsied. Jennifer didn't want any help while she was laid up after surgery because she said she really won't need it...that is until she found out her co-pay will be over $1800.00 (this is just for the surgery and hospital stay. If there are complications then the co-pay will go up). I, as her mother, can't sit by and watch her worry about such a huge bill without trying my best to get her some help.
That's where you come in, my friends. If you can help that will be such a huge blessing to us. If you can't then your prayers are also a huge blessing to us.
Please, do not give what you do not have!
Thank you so much
So, if anyone has anything they wish to donate to our yard sale (going to try to stay away from clothing items) please let me know. I'd like to get things that are in good working order or in good condition. We can arrange pick up of items.
And, of course, every dime goes to Jen. Thanks in advance
It went well! She is now a patient of Mayo and will go every three months for an MRI. We found out some troubling things, though, about what her previous surgeon had told us and what is actually true. Without going into too much detail let's just say that he wasn't completely honest when he said he was able to remove (debulk) half of the tumor. It seems he took out about enough to biopsy and, according to Mayo, didn't even send them enough to get a complete diagnosis from. They are pretty sure that it is pilocytic astrocytoma but her new neurosurgeon will not say for sure because of the lack of biopsy material. What I can't figure out is...how can that man walk out of cutting my daughter open and look her father and I in the eyes and say that he was able to get half of that tumor out when, in fact, he only took a small biopsy? You can't know how disheartening this was to Jen and I. Her new team at Mayo is convinced that they could have removed most (if not all) of the tumor had she been to them first. But since she's had the surgery already and radiation there is too much damage to her spinal cord to do anything further. It's just hard for us to fathom why he would say he did more than he did. The only thing I can think of (purely speculation on my part) is that his arrogance got in the way. This was the first tumor of this type that he had ever seen. Did he get in there and fool around (maybe mess something up) just to boast that he had finally worked on this type of tumor? The one thing that I keep coming back to is his insistence on her NOT getting a second opinion. Yup...he told her he'd rather she not seek a second opinion because he was afraid someone else would think they could do more and mess her up. Does that make sense??
Well...Jen has moved past that disappointment and is happy with her new team at Mayo. Her pain is getting worse and spreading up the leg but her new doctor said that that was to be expected. He told us more about her condition in 10 minutes than her previous doctor did in five visits.
The long and short of it is this-she will continue to be monitored every three months. If the tumor grows then they will have to go back in or she will be paralyzed...no questions about that, it's a fact. If she chooses to do nothing more she will be paralyzed...that, too, is a fact.
The one bit of good news that we did get is that what she is experiencing now could go away...poof...instantly! What a blessing that would be! Her doctor told her that he's pretty sure that the radiation caused the damage that is causing some of the pain she's in now. Once the nerves begin to heal she may find some comfort. Of course, the tumor is huge and is also pressing on the nerves so any relief may be short lived but she will take what she can get.
So, we are off to Mayo again in July. Jen is facing the new copays for the new year now and is so blessed that she was able to pay off those from her surgery thanks to your help and generosity. She's working from the office about 6 hours a day and does the rest from home. I love sitting and watching her work..she amazes me with what she knows and how well she does her job. She is going to try to work some eight hour days from the office to see how it goes but I have my doubts. When she gets struck with a bad pain (it feels like acid under the skin) it literally stops her in her tracks. If she thought she wouldn't upset me with it I'm sure she would scream from that pain. It tears my heart out and it's happening with more frequency. But..whatever she decides I will be right where she needs me to be when she needs me.
I hope you all are doing well and that God is blessing your lives with love and laughter.
Will update again when I have any news...:)
Today I am asking for help to get her to and from Mayo. Your previous donations have helped ease the burden of her co-pays so much and we thank you for that. Jen is trying very hard to manage her money but with so many trips to Des Moines for her appointments and with me taking her to work and picking her up (in her car) she is continuously putting gas in her car. It's draining her bank reserve quickly. So...any help you can provide will be highly appreciated. You all have been so wonderful with your thoughts, kind words, and support. God bless you...:)