Chiari warrior

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.  This is emilie story she is 9 yrs old with a big heart she has chiari malformation with Srinx it is a every day battle with lots of doctors appt she has just 5/16/18 gone througj her 2 nd chiari decompression ( brain surgery) alot of work time has been missed for the parents trying to take care of her and watching over her, any help work be appreciate the other thing that is being worked on is a service dog for her as well as it is very expessive but yet very needed thank you