Help Alia Grace
Alia Grace is a happy and smart 3 year old little girl. She is an affectionate and beautiful child inside and out. She frequently asks her mommy, "Can we run?" Alia loves to sing "Happy Birthday" to her Daddy (no matter what day of the year it is) and smothers her dog Puggie and cat Belle with kisses. Until recently, she was a seemingly perfect and normal developing 3 year old. Her sudden impaired walking, frequent falling and pain caused her parents great concern. On March 25th of 2016, she was diagnosed with Metachromatic Leukodystrohpy. MLD causes extensive damage to the Central Nervous System and Peripheral Nerves. This is a rare disease, so rare in fact that Alia Grace is the only documented case in NH, according to the MLD Foundation.
Alia and her family need your help to make a difference, so please join this precious little girl and her loved ones in this fight against every parent’s worst nightmare as they cope with not only this devastating news but also the pain and frustrations that Alia faces each day as she loses each milestone that she so successfully gained.
There is just no possible way to thank each and everyone of you for all you have done for us. The show of love and support for us and our little girl has been so amazing and very heartfelt. I wish there was a way to show you all how much we really appreciate what you all have done. We have been so busy focusing on caring for Alia as well as showing her love and happiness like we always have. This has changed our lives so much, I can tell you all that MLD really sucks! Thank you all so very much for all you have done and please continue to pray for Alia. We love all of you very much and always will. God bless you all!!