Sending an Ataxia Kit to Kenya

My neurologist had never seen an African person coming to his office to be checked for ataxia. He kept on staring at me as if I was a black ghost:)

"There's no ataxia in Africa," he kept on repeating.

He then told me I had ataxia and a further genetic blood test confirmed it was spino cerebellar ataxia 2. I was not completely shocked; my Dad had ataxia and my elder sister who died in 2011 as well.

I started investigating who else currently had it in my family. The numbers shocked me. Plus because they have no access to any ataxia care, their health had deteriorated fast. Meanwhile I am uber healthy in Sweden because of all the things I do and the careI am receiving.

Anyway, I need your help to end this ataxia scourge in my family and bring my paternal relatives back from the brink of death. I want to first send them a number of supplements I use, 3 balance vests and more. Sending them the kit is urgent because they have not had any hope for several years and have been isolated and stigmatized. 

They also don't seem to know how ataxia is spread to their multiple children. 

A more detailed breakdown is available on http://nyakarimaking.com/the-ataxia-kit/
More of my families ataxia story is available on the blog.

Please help me perform this seemingly impossible and unprecedented task.

Regards, Judy Njuki (#theafricanataxiagirl)