Fighting for Amanda & family
Donation protected
This is the hard part...so please bare with me! The only way I know to do this, is to tell you a little about me..
My name is Amanda Mullins. I'm 29 years young.. I'm married to the most incredible man and my best friend, Tim. I have 2 beautiful children, Rem 9 and Oli 7! I have had 22 surgeries, countless health issues, and a lifetime full of laughter, smiles, and love! Recently I received 3 different diagnosis that have rocked my world and changed my family forever. I have been diagnosed with end stage Lymes Disease, a severe auto immune disease, and a very rare and very severe form of dysautonomia. My dysautonomia does not fall neatly into any of the categories that are given for the disease... Mine spans them all. A generalization of my form of the disease is that my central nervous system is dying. The central nervous system controls everything in your body that happens automatically. All of your organ functions are one of the major things. Because of the severity of my diseases, they are NOT curable. They are not really treatable... The best the doctors can do is try to control some of my symptoms and hope for the best. My disease is killing me. I have been told multiple times that I am dying, and that my heart could stop at any moment...along with my other organs malfuntioning or failing when they feel like it. My doctor is trying to get me to Denver (2+hrs away) to the University Hospital so that I can undergo clinical trials and become a guinea pig...hopefully to prolong my life and possibly give me a better quality of life. I experience immense amounts of pain, a heart rate that can reach 200bpm at any moment, times of partial paralysis..taking away my ability to walk, extreme edema until my skin rips open and my feet weep fluid, gastrointestinal paralysis, neuropathy issues, hypersensitivity, along with a multitude of other debilitating symptoms. With so many areas of my body affected by my many health problems, I have accrued quite a few thousand dollars in medical debt. To be completely honest, I am refusing multiple medical tests, medications, specialists, and hospitalizations because we can no longer afford them. See, my husband is the only one working...picking up extra shifts constantly...and even with insurance, it's still too much to handle. I have been denied any assistance and SSI bc my husband and I choose to be married and because he has a regular, blue collar-middle class, federal corrections job. He's constantly caring for me, my sick mother who lives with us, and our 2 beautiful babies. Who also both have asthma and other pulmonary issues. So, he can't get a second job. Every one of his days off consists of doctor's appointments or my hospitalizations. We're trying to stay afloat and just can't any longer. My kids spend a lot of time missing out on the fun things in life bc we just can't afford them. To not even have the money, to take them to a simple movie, is devastating... Bc that money is spent playing catching up on medical bills...with no end in sight. I have turned down the trip to Denver for the time being, the only chance that I have at raising my quality of life...and possibly giving me more time... More time to be around to be the mother my children deserve...bc we can't afford the travel expenses (hotel, food, gas, unpaid time off work for Tim, and basic needs) that go into something like that. I'm a very prideful person, and I can't justify having a test done or getting a new medication, when other bills need to be paid. I want nothing more than to be able to make lifelong memories with my babies... Things that they can look back and remember me by, smiling; not just a childhood of caring for their sick mommy and hearing 'no baby, I'm sorry, we just can't afford to do that' from me. Needless to say I spend a lot of time crying, praying for relief, and wondering what type of life I am giving my children. My diseases are taking so much from my family and I... And I would give ANYTHING to be able to give them something to remember and smile about... But that's just a little too hard right now, and I have to first focus on being able to get the medical help that I need...to be able to be around long enough to make that happen. If I could ask anything of you, it would be to take a moment and think of my babies...to please send strength and love our way. Thank you, I know I've written a short novel about myself...but you should know that I am EXTREMELY grateful for the time you have taken to understand my situation... I am strong! I will never stop fighting to give my children the mother and life that they deserve most in this world... And I will NEVER STOP SMILING! For without the ability to love, laugh, and smile...then I have already lost my battle.
My name is Amanda Mullins. I'm 29 years young.. I'm married to the most incredible man and my best friend, Tim. I have 2 beautiful children, Rem 9 and Oli 7! I have had 22 surgeries, countless health issues, and a lifetime full of laughter, smiles, and love! Recently I received 3 different diagnosis that have rocked my world and changed my family forever. I have been diagnosed with end stage Lymes Disease, a severe auto immune disease, and a very rare and very severe form of dysautonomia. My dysautonomia does not fall neatly into any of the categories that are given for the disease... Mine spans them all. A generalization of my form of the disease is that my central nervous system is dying. The central nervous system controls everything in your body that happens automatically. All of your organ functions are one of the major things. Because of the severity of my diseases, they are NOT curable. They are not really treatable... The best the doctors can do is try to control some of my symptoms and hope for the best. My disease is killing me. I have been told multiple times that I am dying, and that my heart could stop at any moment...along with my other organs malfuntioning or failing when they feel like it. My doctor is trying to get me to Denver (2+hrs away) to the University Hospital so that I can undergo clinical trials and become a guinea pig...hopefully to prolong my life and possibly give me a better quality of life. I experience immense amounts of pain, a heart rate that can reach 200bpm at any moment, times of partial paralysis..taking away my ability to walk, extreme edema until my skin rips open and my feet weep fluid, gastrointestinal paralysis, neuropathy issues, hypersensitivity, along with a multitude of other debilitating symptoms. With so many areas of my body affected by my many health problems, I have accrued quite a few thousand dollars in medical debt. To be completely honest, I am refusing multiple medical tests, medications, specialists, and hospitalizations because we can no longer afford them. See, my husband is the only one working...picking up extra shifts constantly...and even with insurance, it's still too much to handle. I have been denied any assistance and SSI bc my husband and I choose to be married and because he has a regular, blue collar-middle class, federal corrections job. He's constantly caring for me, my sick mother who lives with us, and our 2 beautiful babies. Who also both have asthma and other pulmonary issues. So, he can't get a second job. Every one of his days off consists of doctor's appointments or my hospitalizations. We're trying to stay afloat and just can't any longer. My kids spend a lot of time missing out on the fun things in life bc we just can't afford them. To not even have the money, to take them to a simple movie, is devastating... Bc that money is spent playing catching up on medical bills...with no end in sight. I have turned down the trip to Denver for the time being, the only chance that I have at raising my quality of life...and possibly giving me more time... More time to be around to be the mother my children deserve...bc we can't afford the travel expenses (hotel, food, gas, unpaid time off work for Tim, and basic needs) that go into something like that. I'm a very prideful person, and I can't justify having a test done or getting a new medication, when other bills need to be paid. I want nothing more than to be able to make lifelong memories with my babies... Things that they can look back and remember me by, smiling; not just a childhood of caring for their sick mommy and hearing 'no baby, I'm sorry, we just can't afford to do that' from me. Needless to say I spend a lot of time crying, praying for relief, and wondering what type of life I am giving my children. My diseases are taking so much from my family and I... And I would give ANYTHING to be able to give them something to remember and smile about... But that's just a little too hard right now, and I have to first focus on being able to get the medical help that I need...to be able to be around long enough to make that happen. If I could ask anything of you, it would be to take a moment and think of my babies...to please send strength and love our way. Thank you, I know I've written a short novel about myself...but you should know that I am EXTREMELY grateful for the time you have taken to understand my situation... I am strong! I will never stop fighting to give my children the mother and life that they deserve most in this world... And I will NEVER STOP SMILING! For without the ability to love, laugh, and smile...then I have already lost my battle.
Organizer and beneficiary
Amanda Murphy Mullins
Organizer
Cañon City, CO
Timothy Mullins
Beneficiary
