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Sienna Homan

$18,329 of $20,000 goal

Raised by 178 people in 22 months
On Monday, October 16th, 2017, our 3 year old daughter, Sienna, was diagnosed with ALL (Acute Lymphoblastic Leukemia). Her diagnosis was abrupt, unexpected, and took us by surprise. Quite frankly, it has broken our hearts.

We spent the first week after diagnosis in the hospital enduring many procedures and tests, as well as starting chemotherapy. This was very hard on her, as she understood very little of what was going on, why she needed to take so many medications, or why she required a multitude of tests and have an abundance of nurses and doctors around her day and night.

She's in the best age group and has all the right circumstances, so she falls into the best-case scenario for her diagnosis. If she responds well within the first month of therapy, her prognosis is very positive. We're hopeful her prognosis will remain positive as we continue to receive ongoing test results.

As many may imagine, this has been both life altering and devastating to us. We expect the first month post-diagnosis will be the most difficult as our family adjusts to tightly-controlled schedules, medication regimens, and countless trips to the hospital. We've been told that the first 6-8 months is by far the hardest! Overall, Sienna will be in treatment and ongoing chemo for at least the next 2.5 years.

Our sweet girl is strong, happy and full of life! We know that with these attributes - and the support of her family and friends - she'll make it through this.

Please help us keep our beautiful little spitfire as healthy as can be and in good spirits. We welcome any healing thoughts you can send our way, as we're determined to find the joy in each day!

All donations will go toward Sienna's ongoing medical costs and helping to keep her parents at her side.

Thank you for following along with us on this painful journey. We're so thankful for all your support!

- Sandra, Aaron, Sienna and Vander
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Good morning family and friends!

It’s well overdue for an update on our little warrior. Our lives, as you may imagine, have been a bit chaotic over the last couple of months! Sienna is staying as healthy as could expected! She was able to go back to school and be with her friends and teachers, which she loves! She has managed to avoid any unforeseen trips to the ER or unexpected hospital stays during this cold and flu season!

Most of what we do for treatment is now in the comfort of our own home. Sienna takes daily oral chemotherapy, is down to once monthly IV chemotherapy and only every 3 months for chemotherapy into the spine (these are by far the worst days for us!) To keep her healthy we provide her with nutritional support, plenty of detox, she takes 13 pills a day, but she ROCKS IT!

We got some GREAT NEWS! Sienna’s expected end of treatment is December 28th, 2019, of course this little warrior has earned a party! Her team at CHW will line up her last spinal tap with the removal of her Port. They will then follow her closely over the next 5 years to make sure she does not relapse. We are elated to have a glimmer of light at the end of this tunnel!

As a child who has gone through chemotherapy, we know that Sienna has a long road to recovery which will continue for the rest of her life. We plan to continue to work with a naturopath to support her body and decrease the long term effects of all the toxic chemicals that have been given to her. Thank you for supporting her along the way, the ongoing prayers, positive energy, and to those who periodically reach out to make sure we are okay, we’re getting there! We do know that as a family we have a lot of healing to do and plan to make that a priority in the near future, keep the good vibes coming!!
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Today is the one year anniversary of Sienna being diagnosed with Acute Lymphoblastic Leukemia and our lives, forever being altered. Sandra and I just wanted to extend our deepest thanks and gratitude towards everyone that has helped us get this far. It’s arguably the most difficult year of our lives and certainly Siennas. Without a doubt, we would not be here without all of you.

Yesterday, we went for her spinal tap and found out that her central line is broken and that she will need to have surgery to replace it along with having her rescheduled spinal tap in the same visit. To see the look of pure terror on her face as she begins to understand, to make more sense of what is happening will break any adult. In the past, we have heard the word “remission” and it used to have a positive connotation. But the day to day battles and pure uncertainty during remission is petrifying and will stop anyone in their tracks. Sienna is and always has been a force to be reckoned with and what she has persevered through is nothing short of amazing. She remains “cancer-free” and a positive little lady that is going to swimming classes and eagerly awaiting Halloween.

There are 15 months until Sienna can be medically cleared to be off of her medicines. We stay patient and breathe each breath with her as if we didn’t have another. We have a friend who beautifully stated-“Find the joy, take a breath, face the sunshine, I’m here for you friend.” As a reminder, hold your kids tight, learn about them, love them, but mostly hear and listen to them. Stay fascinated by the brilliant, empathic, amazing humans. Love to all-

Aaron, Sandra, Sienna & Vander (townes too)
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We are so sorry for the lack of updates! It’s been nice to forget about life for a while. September is childhood cancer awareness month, there is no better awareness then watching your baby fight for her life! We feel like we are finally getting over the pure adrenaline and survival mode of this diagnosis. We know we’re not out of the woods yet and bad news can come at any time. Three weeks ago, we received a call indicating that Sienna had RELAPSED!

If being diagnosed with cancer once wasn’t scary enough, having it come back seemed ten times worse. With the fear that this could take her life, ours stopped as we held our breaths and waited for her test results to come back and it was terrifying!!! Thankfully, her results came back negative. But as we roll into this next month, it was a startling reminder that we are never SAFE! It reminds us that although this time her prognosis is 90%, her long term is also 90%. Lifelong she will now have a 90 % chance of encountering another life threatening illness before she is 40 years old and 80% of the time that will be CANCER! The medications that she is given daily, monthly and injected into her spine every 3 months will cause her body to fight her for the rest of her life! The prognosis that is given to our child is slapped with a 5 year guarantee and that just does not help us sleep at night!

Our kids, kids fighting cancer, deserve more than 4% of funding to help make these outcomes better!

We educate ourselves and we do our best to help her body heal along the way. She is thriving and loving life right now and we love to watch it! FINALLY… We have hit the maintenance phase of treatment! What does this mean? It means a little bit of a normal life again. Sienna will do daily oral chemotherapy at home and only need IV therapy once a month, even better spinal taps every 3 months rather than every 29 days. She feels good and is starting to get back some hair! We loved that curly mane and can't wait to see it again. Sienna officially starts school next week, she’s so excited! We are so excited to get back our little girl!
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We apologize for the delay in updates.

To be honest, this last month was somewhat ordinary and we were overjoyed to have our energetic little girl back!

About 2 weeks ago, we started our most intense phase of treatment and now we are reminded of how hard this disease can be. Sienna is not tolerating this phase well. We have had daily bouts of nausea, emotional breakdowns, lots of physical and emotional pain and most nights are sleepless. She has had countless spinal taps and so many toxic chemicals given to her it's hard to watch her go through it all.

Currently, we are admitted into the hospital for high fevers and low blood counts. Basically, she has no immune system and she is unable to fight off any offender that crosses her path. She won't eat, doesn't feel like much of anything and really does not understand what's happening which paralyzes her.

We don't blame her and to be honest it terrifies us as well! We have been told that this hospital stay is likely to be for the next week but may be longer depending on what happens along the way.

Sienna is strong and we are certain that she will get through this phase as well. We knew this journey was going to be hard but had very little understanding for just how heartbreaking it really is.

We feel like we are on a steep climb up a mountain with no sherpa to carry the heavy burden. We are not sure what the weather will be as we make the climb but we know the air is thin. We hope that we will be blessed with the sun but know that a storm can hit at any moment and the wind may become fierce.

Do we have enough supplies, do we have the oxygen to breathe, are we prepared for emotional strength it takes? We know many die along the way and we are sure this is not us. No matter the outcome we have accomplished something that is not for the faint of heart and our spirits will never be the same. Our souls are forever changed, even now and with each day that passes.
Please send us strength as we make this journey. Please hope that this is the biggest mountain this sweet tender soul will ever have to climb again. Believe that we are courageous enough and wish for a safe return. We continue to thank you for all of your support. We will try our best to keep you informed.
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A CaringBridge campaign

$18,329 of $20,000 goal

Raised by 178 people in 22 months
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