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Sienna Homan

$16,834 of $20,000 goal

Raised by 172 people in 11 months
On Monday, October 16th, 2017, our 3 year old daughter, Sienna, was diagnosed with ALL (Acute Lymphoblastic Leukemia). Her diagnosis was abrupt, unexpected, and took us by surprise. Quite frankly, it has broken our hearts.

We spent the first week after diagnosis in the hospital enduring many procedures and tests, as well as starting chemotherapy. This was very hard on her, as she understood very little of what was going on, why she needed to take so many medications, or why she required a multitude of tests and have an abundance of nurses and doctors around her day and night.

She's in the best age group and has all the right circumstances, so she falls into the best-case scenario for her diagnosis. If she responds well within the first month of therapy, her prognosis is very positive. We're hopeful her prognosis will remain positive as we continue to receive ongoing test results.

As many may imagine, this has been both life altering and devastating to us. We expect the first month post-diagnosis will be the most difficult as our family adjusts to tightly-controlled schedules, medication regimens, and countless trips to the hospital. We've been told that the first 6-8 months is by far the hardest! Overall, Sienna will be in treatment and ongoing chemo for at least the next 2.5 years.

Our sweet girl is strong, happy and full of life! We know that with these attributes - and the support of her family and friends - she'll make it through this.

Please help us keep our beautiful little spitfire as healthy as can be and in good spirits. We welcome any healing thoughts you can send our way, as we're determined to find the joy in each day!

All donations will go toward Sienna's ongoing medical costs and helping to keep her parents at her side.

Thank you for following along with us on this painful journey. We're so thankful for all your support!

- Sandra, Aaron, Sienna and Vander
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We are so sorry for the lack of updates! It’s been nice to forget about life for a while. September is childhood cancer awareness month, there is no better awareness then watching your baby fight for her life! We feel like we are finally getting over the pure adrenaline and survival mode of this diagnosis. We know we’re not out of the woods yet and bad news can come at any time. Three weeks ago, we received a call indicating that Sienna had RELAPSED!

If being diagnosed with cancer once wasn’t scary enough, having it come back seemed ten times worse. With the fear that this could take her life, ours stopped as we held our breaths and waited for her test results to come back and it was terrifying!!! Thankfully, her results came back negative. But as we roll into this next month, it was a startling reminder that we are never SAFE! It reminds us that although this time her prognosis is 90%, her long term is also 90%. Lifelong she will now have a 90 % chance of encountering another life threatening illness before she is 40 years old and 80% of the time that will be CANCER! The medications that she is given daily, monthly and injected into her spine every 3 months will cause her body to fight her for the rest of her life! The prognosis that is given to our child is slapped with a 5 year guarantee and that just does not help us sleep at night!

Our kids, kids fighting cancer, deserve more than 4% of funding to help make these outcomes better!

We educate ourselves and we do our best to help her body heal along the way. She is thriving and loving life right now and we love to watch it! FINALLY… We have hit the maintenance phase of treatment! What does this mean? It means a little bit of a normal life again. Sienna will do daily oral chemotherapy at home and only need IV therapy once a month, even better spinal taps every 3 months rather than every 29 days. She feels good and is starting to get back some hair! We loved that curly mane and can't wait to see it again. Sienna officially starts school next week, she’s so excited! We are so excited to get back our little girl!
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We apologize for the delay in updates.

To be honest, this last month was somewhat ordinary and we were overjoyed to have our energetic little girl back!

About 2 weeks ago, we started our most intense phase of treatment and now we are reminded of how hard this disease can be. Sienna is not tolerating this phase well. We have had daily bouts of nausea, emotional breakdowns, lots of physical and emotional pain and most nights are sleepless. She has had countless spinal taps and so many toxic chemicals given to her it's hard to watch her go through it all.

Currently, we are admitted into the hospital for high fevers and low blood counts. Basically, she has no immune system and she is unable to fight off any offender that crosses her path. She won't eat, doesn't feel like much of anything and really does not understand what's happening which paralyzes her.

We don't blame her and to be honest it terrifies us as well! We have been told that this hospital stay is likely to be for the next week but may be longer depending on what happens along the way.

Sienna is strong and we are certain that she will get through this phase as well. We knew this journey was going to be hard but had very little understanding for just how heartbreaking it really is.

We feel like we are on a steep climb up a mountain with no sherpa to carry the heavy burden. We are not sure what the weather will be as we make the climb but we know the air is thin. We hope that we will be blessed with the sun but know that a storm can hit at any moment and the wind may become fierce.

Do we have enough supplies, do we have the oxygen to breathe, are we prepared for emotional strength it takes? We know many die along the way and we are sure this is not us. No matter the outcome we have accomplished something that is not for the faint of heart and our spirits will never be the same. Our souls are forever changed, even now and with each day that passes.
Please send us strength as we make this journey. Please hope that this is the biggest mountain this sweet tender soul will ever have to climb again. Believe that we are courageous enough and wish for a safe return. We continue to thank you for all of your support. We will try our best to keep you informed.
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We are sorry this update has taken so long.

Sienna is now in her 3rd phase of treatment and she blissfully sailed through phase 2 without much of an issue. She received 3 back to back spinal taps and daily doses of oral chemotherapy along with IV in clinic. She felt good and we were happy to have our energetic funny little peanut back.

We just began phase 3 and were hoping to sail through it and into the near year with a healthy out look but as fate would have it, the start to this new year has been anything but delightful. We instantly started our new year with 3 visits to the ER for high fevers and are now admitted in the hospital to rule out an infection in the bloodstream. So far, her test results have come back somewhat positive and she looks better and hopefully this hospital stay should be short. However, she's not eating much and has dropped 6 lbs in the last 2 weeks and will likely need a feeding tube so we can keep her healthy and strong.

We're hoping that with such an awful start to the new year this little kiddo will catch a break. Last year we started out good and ended bad, so maybe the opposite will be true. If we're starting out with this much turmoil there is nowhere to go but up, we will believe with all our hearts that this is true.

I must say that Sienna has been quite the warrior and continues to show us what true strength looks like. Even through her tears and ours she has met every challenge. This little girl is a true super hero in the flesh, line up at the door folks (not if you're sick)!
We are all changed in this journey, some of it is for the better and some of it just is. None of us asked for this and she absolutely did not deserve this but none the less, we digress... Sometimes it feels like the universe is telling us to slow down and rethink this life but asking us to race through at the same time.

Our family is humbled by our community, thank you for the ongoing prayers, positive energy and support!
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This last week we got our final results back and we are thankful that Sienna will stay “standard risk”. We finished up our long steroid road and are starting to see our funny, sweet, energetic little girl again.

Today, she had surgery for a port placement and her 4th spinal tap with chemotherapy. She tolerated all procedures well and is in recovery.

We thank everyone who has kept us close to their hearts and those who continue to do so.
The next 2.5 years will be long but with all of the love and support that surround us we know that we will continue to power through this.
Our sweet angel.
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A CaringBridge campaign

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Raised by 172 people in 11 months
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