Little James's medical fees
The surgery will cost hundreds of thousands of dollars. Unfortunately, Kathy has a $10,000 deductible on her health insurance plan and stands to pay out of pocket costs that are estimated at three times that amount. James is going in for the first of a series of surgeries this week and paying tens of thousands of dollars in medical expenses is a hardship for anyone, especially a hard working single mother of three young children.
Please keep Kathy and James in your prayers and give whatever you can to support their urgent need. Just giving up a daily coffee for one week and giving that amount would make a world of difference.
Thanks for your generosity!
IF YOU NEED TO KNOW MORE ABOUT KATHY, PLEASE EMAIL ME (via the link below, under "Have Questions?") AND I'LL PROVIDE DETAILS PRIVATELY.
Thanks so much for your continuing generosity. There IS light at the end of this tunnel, and I have faith that James will come through it healthy, happy and whole.
My best wishes for a Merry Christmas and Happy New Year!
The tumor has grown back about 1/3rd. The growth is now blocking the "drain" so he is showing signs of encephalitis. Therefore "“ they want to do a second surgery to remove the blockage. It isn't urgent right now as long as he isn't showing signs of the encephalitis (sleepy, nausea, vomiting, behaving oddly). If that happens she is to get to the ER as soon as possible.
After the surgery they want to follow up with radiation treatment. She had previously been told they didn't want to do radiation on him because he is so young and it could cause further issues.
Please keep Kathy and her children in your thoughts and prayers.
I received James' results from his lab tests and it is confirmed that he does have diabetes insipidus. In addition to that diagnosis, he also has an underactive thyroid. Both are being treated with medications.
We have a 3-year well-check visit this week and I hope the new pediatrician has received all our medical records this time. I've had to postpone several times due to the ongoing medical records issue with all three kiddos. Medical records, what a nightmare!
The neurosurgery appointment is coming up next Monday. Next steps will be the scheduling James' MRI and CT Scan for November. After we get the results, we can schedule the appointment with Hematologist/Oncologist.
And, it just doesn't stop there... :) James continues to wear his eye patch like a trooper even though he fights me putting it on. We'll be marching on to his ophthalmology appointment on Nov. 4th.
On a lighter note, James' hair is finally back. He is participating more at school and at home. I'm glad to see he is now defending himself from his twin sister, who is a little spitfire and also known as the "˜boss.' He is eating better, but not using utensils as he should be. We'll keep working on that though. As for his sleeping habits, a little improvement with the meds. James now only gets up 3-4x per eve. He also has a new routine of needing to eat around 3:30 am. I'll have to talk to the doc about that...
As always, thank you for keeping us in your prayers.
Kathy, James, Thomas & Elenaki
I'd like to start by saying THANK YOU to everyone who continues to ask for updates and offers words of encouragement and support for James and me.
The new normal for my family seems to be "waiting for results." We (& doctors) are still waiting for medical records and test results before determining what's next. It took a couple difficult trips but the lab was finally able to draw blood for the latest series of tests, with more lab work coming next week. The doctor seems convinced that James has diabetes insipidus, which would explain his intense thirst that began nearly a year ago, but it has not yet shown up in his lab work.
Besides the unquenchable thirst, James still struggles with getting a good night's sleep. On a brighter note, his hair is growing back so he can recognize himself, and he is eating a bit better. His sweet smile would melt your heart!
The ophthalmologist has determined that James has sustained optic nerve damage in his left eye, requiring him to wear an eye patch a couple hours a day for the next two months. Fortunately his vision has not been impaired in his right eye. The neurosurgeon is pleased with how James' wound is healing. However, my son's journey to full recovery is not over for a long while. James will need additional MRIs to assess the growth of the tumor every three months.
Thank you so much again for your continued prayers and support. I feel very blessed and thankful for my supportive, generous colleagues, friends and family members during this very difficult time.