Help Fix ME Boyfriend!
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We aren't after massive donations, just as little as £5 and a share on your social media. Help us to spread Sam's story to as many people as you can. A little donation that you won't notice going out of your bank could really help us to achieve our goal of not only getting Sam the treatment he needs, but also spreading awareness of ME.
Basically, very long story short, my boyfriend is broken and I really want to fix him. His body just doesn't work! He has what is known as "Myalgic Encephalopathy" AKA M/E or CFS a very common, often misdiagnosed illness due to its very complex nature. ME is not just one thing - it's so many different things.
There are so many symptoms, each time you see a new doctor you sound like you're just reeling off every symptom you've ever heard of, because it is quite literally a combination of everything but in it's most aggressive form.
By everything I literally mean, severe aches and pains both muscular and boney all over your body; sensitivity to light, sounds, touches, smells; chronic stomach cramping with no release; brain fog; memory loss; mood swings; dry eyes; headaches; immobility... The list goes on.
I have created a list of some of the tests Sam has to have and are shown as an update. Check it out if you want to know what your contribution would be going towards.
The Long Story.
Over the 5 years I've known Sam we have been in and out of the doctor’s surgery more times than anyone I've ever met. He's taken a zillion different tablets and followed umpteen million different methods trying to "fix himself" only to always be told his illness is in his head. Which is very frustrating to hear as I have seen & Sam has felt the very physical side of what we now know to be ME. (Chronic fatigue syndrome) which is a very real, very physical illness. Not something your head makes up.
Sam has been having these mild symptoms pretty much constantly for around 5 years, by mild I mean he still had excruciating pains which would take most to A&E (which it did a few times), he had been struggling to get through a whole day at work or college since 2012 and relied heavily upon a combination of caffeine, chocolate, lemsips, paracetamol / ibuprofen and what ever drugs the doctors had him on just to get through life.
But in October 2015 at 27 years old, his body had enough and shut down. Sam had to quit the college course (he was 1 of 6 students on a Swiss Watch Making Course which he had been awarded a grant to attend) which he loved, quit road biking and found him self bed bound. His hypersensitivity went to a whole new level, light was so painful, he could hear the electricity buzzing in the air, if I so much as even touched the bed it would cause his whole body to tense up for hours, so for a very large amount of time he spent his days and nights alone in a pitch black room with me trying to be as quiet as I could around the flat, coming home from work to feed him his dinner at lunch time and sleeping on the sofa. We would spend hours and hours every single day trying to get Sam comfortable or to calm him down when the pain got too much. Nothing we did could relieve the pains and left me feeling completely helpless and Sam felt like he was quite literally dying. After 2 months, Sam had to leave Manchester and move back in with his mum. I was struggling to care for Sam on my own and it was better for him to move out of our basement flat in the city into his mum’s home in the country.
Since the beginning of 2016 we have pretty much given up on the NHS for finding a cure, after years of misdiagnosis, wrongly prescribed drugs and lack of compassion or interest for finding the root of Sam's problem. When Sam was at his absolute worst his mum and I would go to the GP with Sam, in tears, trying to get the doctors to see what we could. At one point they almost convinced me I was going mad too & maybe between us we had made it up.
Since then we have seen a lot of different people who all have claimed to be able to cure ME. Well, nothing has worked for Sam. Anyone who knows Sam will know he gives 110% into anything, especially something that will help give him his health back. But nothing worked - in fact Sam got worse.
We thought we had exhausted every avenue trying to privately find (and fund) someone to cure Sam. It turned out there was still one stone left unturned - until December this year where we flipped it over and had our first consultation at a specialist Medical Centre, which was very successful and promising BUT - there's always a big but in the way when something good is about to happen right?
All of this success in finding someone who can help comes with a rather large price tag and bank of mum is pretty exhausted - step in you lovely people. We are asking for your help to give Sam his life back. To give Tracy her Son back. And to give me my boyfriend back!
Thank you for reading Sam's story & please, help me fix ME boyfriend!
Toyah xx
We aren't after massive donations, just as little as £5 and a share on your social media. Help us to spread Sam's story to as many people as you can. A little donation that you won't notice going out of your bank could really help us to achieve our goal of not only getting Sam the treatment he needs, but also spreading awareness of ME.
Basically, very long story short, my boyfriend is broken and I really want to fix him. His body just doesn't work! He has what is known as "Myalgic Encephalopathy" AKA M/E or CFS a very common, often misdiagnosed illness due to its very complex nature. ME is not just one thing - it's so many different things.
There are so many symptoms, each time you see a new doctor you sound like you're just reeling off every symptom you've ever heard of, because it is quite literally a combination of everything but in it's most aggressive form.
By everything I literally mean, severe aches and pains both muscular and boney all over your body; sensitivity to light, sounds, touches, smells; chronic stomach cramping with no release; brain fog; memory loss; mood swings; dry eyes; headaches; immobility... The list goes on.
I have created a list of some of the tests Sam has to have and are shown as an update. Check it out if you want to know what your contribution would be going towards.
The Long Story.
Over the 5 years I've known Sam we have been in and out of the doctor’s surgery more times than anyone I've ever met. He's taken a zillion different tablets and followed umpteen million different methods trying to "fix himself" only to always be told his illness is in his head. Which is very frustrating to hear as I have seen & Sam has felt the very physical side of what we now know to be ME. (Chronic fatigue syndrome) which is a very real, very physical illness. Not something your head makes up.
Sam has been having these mild symptoms pretty much constantly for around 5 years, by mild I mean he still had excruciating pains which would take most to A&E (which it did a few times), he had been struggling to get through a whole day at work or college since 2012 and relied heavily upon a combination of caffeine, chocolate, lemsips, paracetamol / ibuprofen and what ever drugs the doctors had him on just to get through life.
But in October 2015 at 27 years old, his body had enough and shut down. Sam had to quit the college course (he was 1 of 6 students on a Swiss Watch Making Course which he had been awarded a grant to attend) which he loved, quit road biking and found him self bed bound. His hypersensitivity went to a whole new level, light was so painful, he could hear the electricity buzzing in the air, if I so much as even touched the bed it would cause his whole body to tense up for hours, so for a very large amount of time he spent his days and nights alone in a pitch black room with me trying to be as quiet as I could around the flat, coming home from work to feed him his dinner at lunch time and sleeping on the sofa. We would spend hours and hours every single day trying to get Sam comfortable or to calm him down when the pain got too much. Nothing we did could relieve the pains and left me feeling completely helpless and Sam felt like he was quite literally dying. After 2 months, Sam had to leave Manchester and move back in with his mum. I was struggling to care for Sam on my own and it was better for him to move out of our basement flat in the city into his mum’s home in the country.
Since the beginning of 2016 we have pretty much given up on the NHS for finding a cure, after years of misdiagnosis, wrongly prescribed drugs and lack of compassion or interest for finding the root of Sam's problem. When Sam was at his absolute worst his mum and I would go to the GP with Sam, in tears, trying to get the doctors to see what we could. At one point they almost convinced me I was going mad too & maybe between us we had made it up.
Since then we have seen a lot of different people who all have claimed to be able to cure ME. Well, nothing has worked for Sam. Anyone who knows Sam will know he gives 110% into anything, especially something that will help give him his health back. But nothing worked - in fact Sam got worse.
We thought we had exhausted every avenue trying to privately find (and fund) someone to cure Sam. It turned out there was still one stone left unturned - until December this year where we flipped it over and had our first consultation at a specialist Medical Centre, which was very successful and promising BUT - there's always a big but in the way when something good is about to happen right?
All of this success in finding someone who can help comes with a rather large price tag and bank of mum is pretty exhausted - step in you lovely people. We are asking for your help to give Sam his life back. To give Tracy her Son back. And to give me my boyfriend back!
Thank you for reading Sam's story & please, help me fix ME boyfriend!
Toyah xx
Organizer
Toyah Emily
Organizer
