Our Recovery Fund

Hi Everyone kind enough to read this...
My name is Amanda. I'm 29 and the mother of 2 beautiful Boy's, Jhet(7) and Connor(3). Jhet is Autistic. 
After the birth of Jhet's little brother Connor; We were stuggling to cope with the changes and how Jhet was responding. Connor began to look yellow at 6weeks old. I had done my research and I knew it was bad. Connor was flown to Brisbane the day after he had his first blood test. We were told "he'll need a Liver Transplant" but a Big operation (called a Kasai proceedure) was scheduled in a few weeks time and may give him some time (yrs) before Transplant is needed. We took him home a few days later and prepared for the Opreation. The big day came. We prayed for success but.. It failed.
Connor was on borrowed time.....

We took him back and forward from Home and hospital (365km away) over the next 6 weeks. It was during our time at home that BUNDABERG (our home) was flooded for the second time in 3 yrs. This year, it reached our house. I had just finished a night shift at the hospital where I work as a Nurse. I could see the water coming over the road at the bottom of the hill near our home. Soon it had climbed the hill and was lapping at our driveway and within an hour or so had tore through the house. We lost more than half of our belongings and one car but we had all the medications, photo's, my new lougne suite and fridge and the kids toys/beds and our clothes. So I actually felt grateful at the time. We were together and safe, for now.
Six weeks past and I found a new home. It needing air-con so I paid to have it installed (no choice, connor needed it). We were there our first night and Connor came down with a fever the following morning. We spent the next 9 months in Hospital 365kms away from home. Connor was in the final stages of his disease (BILIARY ATRESIA), he was dying. He needed the transplant. (Connor before transplant, hospital days)
The months were filled with horrors. I watched children die in intesive care, one was a Transplant recipient. She was only 17. The errie and beautiful rendition of a old irish song that Ed Sherian covered was playing as she passed away. Her beautiful family, I will never forget.
There were many friends I had made and some of thier children died.
I  watched my son bleed out on average once a week, and prayed when they took him to theater that I would not join those parents in thier grief.(Connor in ICU, one of many bad days)

I remember the pokes the prods...endless beeps in the night and children crying for thier mothers. I never left.. where would I go? In my mind I was there to provide continuity of care and to let him know he was not alone, I would never leave him. Connor was always brave and always smiled and laughed as if to say "It's cool mum, I got this" and he did in the end.. He recieved His gift of life from and anonymous donor on May 25 2013, he was 8 months old.
He is in good health today and so funny and so cute and sooooooo checky!! (Connor's 2nd b-day-Post TX)
I am trying to raise some funds because I have exhusted all of my own. My house deposit was chewed up while Connor was in hospital. The bill to school Jhet and provide therapy left a $360 a week gap to pay. Travel expenses so either 'the ex' or my mother could bring Jhet to visit on the week ends really added up. Fuel, hotels, parking, food. Plus the rent and bills back at home. I had to buy new belongings after the flood and needed speical equiptment for the kids.
As soon as we got home after Transplant, the boy's Dad left and returned to England where he was originally from. I have recieved no support or money from him since.
I work hard, yet I have not been able to really get back on my feet. With on going therapy and medical expenses pilling up every month. (Weekend visit from Jhet, mothers day 2013)
At the time, family and friends suggested that I should do a go fund me page, but it didn't feel right as I still had funds of my own. I need to buy our first home. Rental's don't allow for all the modifications I need for my children. It's just not safe or practical. I do earn enough for a modest morgage but I just can't save any money anymore with all these expense's and nothing left behind me. 
My next goal for my little family is for us to have our own home, with locks where I need them and such.. If I can get on top of the daliy expense's I can start to save up our deposit again. 
I want to prove to my kids that people care. That we are not alone in this and to be thankful always even if it's not perfect at least we are together. 
I plan to give back once I am able. 

Thanks for reading our story,

Yours Thanfully,

Amanda, Jhet and Connor.(Every year we let go ballon's so our Donor will see our thanks from heaven) 
PS: Please support BILIARY ATRESIA Awareness and Research Australia and the AEIOU Foundation (Jhet class of 2012).