Ezras Journey To Heaven
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Aloha,
My name is Jaylyn Lapinad and I am the mother of my beloved, Ezra Kahiapo Kaonohilani Manalo-Lapinad. My son was and will always be the love of my life. He brought meaning and joy to my life that no one else ever could and will never replace. He taught me to be strong and to face life head on with no fear or regrets and for that, I am forever and eternally grateful.
My son Ezra was born on June 3rd, 2013. At a glance he very much looked like a healthy baby boy weighing in at 7lbs 11 ounces and 21 inches long, but as the night went on we knew that something was just a little bit different about him. He wasnt eager to eat like most newborns would be and he also had a hard time maintaining his body tempurature so he had to stay in the nursery at Castle Medical Center in Kailua, Oahu over the next week or so. During that time he still had little to no change in his body temperature status so it was then decided that he had to be transfered over to Kapiolani Medical Center For Women and Children in Honolulu, HI.
There it was confirmed that he had a condition known as Septo Optic Dysplasia. It is a condition in which your Optic nerve is underdeveloped which in turn causes minimal eyesight. However, the major part of the condition is that the pituitary gland is also underdeveloped, a major part of the brain that controls your body to release hormones that are essential to daily life and more importantly maintaining good health. Due to that very fact his medical status would always remain fragile to ANY illness, virus or bug.
We remained in the NICU at Kapiolani for about 2 weeks before we were able to finally bring our Ezra home with us. When we did boy were we filled with so much emotions not only excitement and joy for being new parents but we were also very scared as to now knowing that our first son would be faced with many challenges and he was counting on us to help and protect him along the way.
The first few months as for any new parent were very trial and error and were filled with many sleepless and worry filled nights but Ezra never ceased to amaze not only us but everyone he came into contact with. He always had a smile on that would go from ear to ear, dimples that you could not go without complementing and eyelashes that every women would kill for. To say the least he defied many odds and always filled any room he entered with joy, happiness and memories.
In May of 2014, just a month shy of his first birthday our loving baby boy would now be fighting for his life and that was the most scariest, or at that moment I thought it was the scariest, night of my life. But by the grace of God and many prayers he pulled through and although it was a rough few nights he was still here with us and that was the moment that I knew that my son was a fighter and he was strong! We spent a total of 3 months in the hospital while he had to recover and let me tell you what a joy it was to again, bring our baby Ezra home. But like the first time it was scary and exciting all over again.
We had a whole new list of requirements for him, new specialists, a bunch of new medicines and because he had to get G-tube in place while he was in the hospital new feeding schedules and just trying to be familiar with the pump and everything was overwhelming to say the least. But like the first time Ezra overcame the odds and progressed as best he could and that always made me and Isaiah such proud parents to know that through everything that he had already faced he never ceased to amaze us.
After a few more hospital stays Ezra seemed to be stable out and we were hospital free for aout a year! We then welcomed our second child Urijah into the world on March 23rd 2016 and boy was that something that we all espicially Ezra had to get used to. The first few weeks was crazy but they became inseprable and as mother to see that I just felt like my world was complete. For six months they both loved and played with eachother. Ezra had started school, rode the school bus went to his first dentist appointment and made friends and I could not feel more excited for him.
Then on Saturday September 24th he, already fighting some kind of cold, took a turn for the worse. He'd been vommiting and having on and off fevers for the whole day so my mother in law rushed him to the ER at Kapiolani Hospital and to me it seemed like routine, they'll check him in, probably give him something to help with the fever and blood tests to check sodium levels. Yes in the beginning it was looking like it was going to be just the usual admission into the hospital stay a couple of days go home but by the next day Ezra again started to take turns for the worse.
He ended up getting transfered to the pediatric intensive care unit were he was postitive for a severe case of adenovirus which can cause and in Ezras case cause severe respiratory distress. My Ezra always had a fight in him that always gave me courage that he would get better but in my heart although I was trying to ignore it and deny it, I knew that this time was different.
By this time, in the past, Ezra always continuously got better or showed signs of improvement this time it was a different story. He progessively got worse and was eventually put on "life-support". The morning of Ezras passing I prayed and prayed to God asking him to please give me my son back and heal him and usually God shows my visions of Him healing my son physically of giving me hope in my heart that Yes your son will be back in your arms and get back to a healthy enough condition to be able to go home but this time He showed me visions of Him holding Ezra and Ezra going home with him.
So with that conversation with God I went to my sons bedside and I held his hand and I asked him, "Baby, mommy loves you so much and as much as I want you here with mommy on earth I cant see you in pain and you dont need to nor should you have to suffer like this anymore" and in my heart I felt like Ezra just told me, "mommy im tired". And I broke down. Throughout the rest of the day Isaiah and I called all of our closest family and friends to come a visit him because we ultimately knew the outcome and we felt like Ezra should be surrounded by those that loved him and thats what we could provide for him.
After 2 days of fighting our son, Ezra Kahiapo Kaonohilani Manalo-Lapinad, made his journey to the kingdom of heaven on Tuesday September 27th, 2016 and 6:55pm after his daddy told him, "Ezra you can let go boy". We stayed with him and cried with him for hours after his passing and it was and still is honestly the most painful thing that I will ever go through in life. My heart hurts everyday without my baby here with me, hearing his laugh, seeing his smile and feeling him in my arms is something that haunts me everyday. Yet, I still feel his presence everywhere around me and that is the only comfort that gets me through the days.
My Ezra may be gone physically but in the end I know this is temporary and I will be reunited one day with him and the gates iof heaven where we can live in peace for eternity.
I am asking for any and all help that we can get to finally lay my baby to rest financially. Its been hard enough trying to deal and mourne with his passing and with the added stress of funeral expenses any help we can get would be greatly appreciated. We thank you all in advance.
"Let the little children come to me and do not hinder them for the Kingdom of heaven belongs to such as these"
-Matthew 19:14
My name is Jaylyn Lapinad and I am the mother of my beloved, Ezra Kahiapo Kaonohilani Manalo-Lapinad. My son was and will always be the love of my life. He brought meaning and joy to my life that no one else ever could and will never replace. He taught me to be strong and to face life head on with no fear or regrets and for that, I am forever and eternally grateful.
My son Ezra was born on June 3rd, 2013. At a glance he very much looked like a healthy baby boy weighing in at 7lbs 11 ounces and 21 inches long, but as the night went on we knew that something was just a little bit different about him. He wasnt eager to eat like most newborns would be and he also had a hard time maintaining his body tempurature so he had to stay in the nursery at Castle Medical Center in Kailua, Oahu over the next week or so. During that time he still had little to no change in his body temperature status so it was then decided that he had to be transfered over to Kapiolani Medical Center For Women and Children in Honolulu, HI.
There it was confirmed that he had a condition known as Septo Optic Dysplasia. It is a condition in which your Optic nerve is underdeveloped which in turn causes minimal eyesight. However, the major part of the condition is that the pituitary gland is also underdeveloped, a major part of the brain that controls your body to release hormones that are essential to daily life and more importantly maintaining good health. Due to that very fact his medical status would always remain fragile to ANY illness, virus or bug.
We remained in the NICU at Kapiolani for about 2 weeks before we were able to finally bring our Ezra home with us. When we did boy were we filled with so much emotions not only excitement and joy for being new parents but we were also very scared as to now knowing that our first son would be faced with many challenges and he was counting on us to help and protect him along the way.
The first few months as for any new parent were very trial and error and were filled with many sleepless and worry filled nights but Ezra never ceased to amaze not only us but everyone he came into contact with. He always had a smile on that would go from ear to ear, dimples that you could not go without complementing and eyelashes that every women would kill for. To say the least he defied many odds and always filled any room he entered with joy, happiness and memories.
In May of 2014, just a month shy of his first birthday our loving baby boy would now be fighting for his life and that was the most scariest, or at that moment I thought it was the scariest, night of my life. But by the grace of God and many prayers he pulled through and although it was a rough few nights he was still here with us and that was the moment that I knew that my son was a fighter and he was strong! We spent a total of 3 months in the hospital while he had to recover and let me tell you what a joy it was to again, bring our baby Ezra home. But like the first time it was scary and exciting all over again.
We had a whole new list of requirements for him, new specialists, a bunch of new medicines and because he had to get G-tube in place while he was in the hospital new feeding schedules and just trying to be familiar with the pump and everything was overwhelming to say the least. But like the first time Ezra overcame the odds and progressed as best he could and that always made me and Isaiah such proud parents to know that through everything that he had already faced he never ceased to amaze us.
After a few more hospital stays Ezra seemed to be stable out and we were hospital free for aout a year! We then welcomed our second child Urijah into the world on March 23rd 2016 and boy was that something that we all espicially Ezra had to get used to. The first few weeks was crazy but they became inseprable and as mother to see that I just felt like my world was complete. For six months they both loved and played with eachother. Ezra had started school, rode the school bus went to his first dentist appointment and made friends and I could not feel more excited for him.
Then on Saturday September 24th he, already fighting some kind of cold, took a turn for the worse. He'd been vommiting and having on and off fevers for the whole day so my mother in law rushed him to the ER at Kapiolani Hospital and to me it seemed like routine, they'll check him in, probably give him something to help with the fever and blood tests to check sodium levels. Yes in the beginning it was looking like it was going to be just the usual admission into the hospital stay a couple of days go home but by the next day Ezra again started to take turns for the worse.
He ended up getting transfered to the pediatric intensive care unit were he was postitive for a severe case of adenovirus which can cause and in Ezras case cause severe respiratory distress. My Ezra always had a fight in him that always gave me courage that he would get better but in my heart although I was trying to ignore it and deny it, I knew that this time was different.
By this time, in the past, Ezra always continuously got better or showed signs of improvement this time it was a different story. He progessively got worse and was eventually put on "life-support". The morning of Ezras passing I prayed and prayed to God asking him to please give me my son back and heal him and usually God shows my visions of Him healing my son physically of giving me hope in my heart that Yes your son will be back in your arms and get back to a healthy enough condition to be able to go home but this time He showed me visions of Him holding Ezra and Ezra going home with him.
So with that conversation with God I went to my sons bedside and I held his hand and I asked him, "Baby, mommy loves you so much and as much as I want you here with mommy on earth I cant see you in pain and you dont need to nor should you have to suffer like this anymore" and in my heart I felt like Ezra just told me, "mommy im tired". And I broke down. Throughout the rest of the day Isaiah and I called all of our closest family and friends to come a visit him because we ultimately knew the outcome and we felt like Ezra should be surrounded by those that loved him and thats what we could provide for him.
After 2 days of fighting our son, Ezra Kahiapo Kaonohilani Manalo-Lapinad, made his journey to the kingdom of heaven on Tuesday September 27th, 2016 and 6:55pm after his daddy told him, "Ezra you can let go boy". We stayed with him and cried with him for hours after his passing and it was and still is honestly the most painful thing that I will ever go through in life. My heart hurts everyday without my baby here with me, hearing his laugh, seeing his smile and feeling him in my arms is something that haunts me everyday. Yet, I still feel his presence everywhere around me and that is the only comfort that gets me through the days.
My Ezra may be gone physically but in the end I know this is temporary and I will be reunited one day with him and the gates iof heaven where we can live in peace for eternity.
I am asking for any and all help that we can get to finally lay my baby to rest financially. Its been hard enough trying to deal and mourne with his passing and with the added stress of funeral expenses any help we can get would be greatly appreciated. We thank you all in advance.
"Let the little children come to me and do not hinder them for the Kingdom of heaven belongs to such as these"
-Matthew 19:14
Organizer
Jaylyn Lapinad
Organizer
Waimanalo, HI
