Mateo Meyer Daley
Mateo has been an incredible fighter, but he finally needed a break and now the machines are doing the work for him. They continue to run test after test to see what is going on internally as it is apparent his lungs are not in the best condition, and he may have ILD (Interstitial Lung Disease). There is no better place for him to be than Children's Hospital. We know he is getting the best care possible with the superior staff we have all heard so much about. With only one week in, we have already seen a difference.
Brooke and Matt, as most of you know, are truly angels from God and have faced this head on. Their strength and courage is admirable, to say the least, and an inspiration to all of us.
Now I believe it is our time to help them as best we can. Brooke and Matt have both taken Family Medical Leave (FMLA) from their careers to focus on Mateo and their 4 year old daughter, Brookelyn. We, as their friends and family, would like to do anything we can to help keep their focus strictly on the health and well being of their family and nothing else.
This is going to be a long journey and we want to thank you for all of your help and continuous prayers for our beautiful Mateo Meyer Daley.
What amazing things can happen in a year? Other than being immune suppressed (to keep Mateo’s autoimmune disorder in check), one could say he has made a full recovery. Since his trache tube was removed a few weeks ago, Mateo is trying to talk more and more. Mom & Dad have been able to take him to a lot of Brookelyn’s soccer games, where he likes to chase her teammates (already after the ladies, oh boy), trying to wrestle with boys and loves playing on new play grounds. The best and worst is when anyone tries to discipline him, Mateo gives you a wink/grin and you can’t help but smile back at him, which gets him going even more. He’s a riot. With the help of therapy, mom and Camika (his nurse), the goal over the next year is to try and get him ready for pre-school next fall. Watch out teachers!!!
Again what amazing things can happen in a year???
We could not have gotten through this past year without all of you, love and God. Although it is unlikely Mateo will live to the next 175 years, he is back on the right path to living a long, lovely, meaningful life…
We love you all, thank you all and one day Mateo will meet you all.
A side note:
A great Man, Friend, Mentor, Brother and Son, Ken Daniels (the man at Dellwood) has been called to his eternal home. Please pray for his family and friends, as grieve through this difficult time.
* October 25th, Doors open at 6pm Trivia will begin promptly at 7pm (JFK Community Center - Koch Park)
* 160 a table, 8 players per table
* Soda and Beer provided, please feel free to bring any food and outside drinks you want
* Please send Checks to the below address and make payable to MateoStrong:
3 Concord Court
Florissant, MO 63033
* Please do not hesitate to contact me or any of the other hosts for anymore questions you may have!
Looking forward to seeing you all there and creating yet another magical night for our Mateo!!
Before this happens Mateo will go to a smaller trach size and try breathing with a cap over his trach tube. This is the final phase of rehabilitation to breathing like we all do. We know he can do it. As Mateo has shown us all along, slow and steady each day. All they will do is take the trach tube out put a bandage over his stoma and then we wait for the hole to heal on its own.
Also over the past month (from the help of mommy, Camika and speech therapy) his words are becoming clearer and his vocabulary increasing too. As with most kids, he likes to hear himself talk.
Big boy finally got his third haircut; Little Laura came over Tuesday night to give him a haircut. At one point he was rockin the mullet before she was done. Very 80’s soccer stylin… As you can see she transformed him into one handsome little boy.
Twice this month Mom and Dad were able to take Brookelyn and Mateo on a bike ride around Creve Coeur Park. Brookelyn was thanking mom and dad “Thank you mommy for the surprise today”. Even though mom and dad’s toosh got sore, we wanted to stay on the bike trail all day.
Mateo is becoming more interested in how things work or move. You will find him sometimes at ground level moving cars or moving his toy lawnmower back and forth to watch the wheels move. More about cars, big boy has a collection that he brings to bed now…If Mateo starts making car sounds like his Uncle Chad, well let’s just say this time those sounds will be music to daddy’s ears.
Last week we made a rare exception to take Mateo to the St. Louis Galleria to get a new pair of tennis shoes….. Boy did Mateo think going to the mall was like entering a new world Of course his sister had to go into the Disney Store, and as we were in there we ran into one of Mateo’s PICU doctors. Mateo was running around the store kicking a ball and his doctor looked at him and said “now that is what I like to see, I told you traching Mateo would be the best decision you guys could ever make”! Look where we are now, a little over a year later and Mateo is scheduled to be decannulized in a month! THANK YOU Children’s Hospital!
As always, today and forever more, we are MATEOSTRONG!!!!
We love you all, have a great weekend!!!
So glad to hear he is progressing well! My thoughts and prayers are with everyone. Happy Anniversary Brooke and Matt, you two are the most amazing parents a kid could ever hope for!!
Please keep us updated on your adorable Lil man. Sending prayers!
Thank you for setting this up. We all want to help, however we can.