Medical equipment and home adaption
Donation protected
This is the eighth time we have started to write this letter. It is so hard to put into words what we are going through, and ask for help, we never ask for help.
Steve Jepson, was diagnosed with ALS, also known as Motor Neuron Disease or Lou Gehrig’s disease in January 2015. He had been struggling with symptom’s for 2 years. with muscle cramps, and loss of strength in his hands.
On that cold dark day in New Haven CT, the neurologist gave us the diagnosis, we fell apart, What do we do now? How do we tell our family? How do we tell our beloved children? Do we go home to England? To say we were reeling is an understatement, our whole world, our whole solid foundation we had built for 20 years was completely shook to the core.
After a river of tears, and time to think we started to get back to some sense of normality, Steve was not progressing too quickly, but there were and still are changes every day. We joined the Connecticut ALS Chapter, who were incredible to us, so warm and understanding, giving us resources that we had no idea we’re out there. Why would we? The biggest been a referral to the Hospital for Special Care in New Britain CT. We could not have got through the last 20 months without the care and support from these two places, and the wonderful people who work there.
Our family back in the UK and Denmark, have been amazing, the support they offer to us even though we are 3000 miles away is incredable, it's a tough diagnosis for everyone to take on board: Parents, Sisters, Brothers, Nephews, Nieces, in-laws, Aunts, Uncles, best friends. Where does the support begin or end.
Steve has progressed so quickly over the last few months, it's hard to see "Jepo" decline each week. Steve aka "Jepo" is the hardest working person I know, I am proud to be his wife, he is a wonderful father to our sons Ben & Sam. A wonderful friend to his mass of friends all over the world, a wonderful Camp Director and role model to all the campers and staff we see come through the summer camp we run each summer www.awosting.com . Hard to watch, but also amazing to see him cope with every stage with a smile, with such positivity, we often wonder where he gets his strength from. You never know how strong you are, until you have to be I suppose.
Steve just wants his independence, to be able to still get to work, and do his job. To drive to watch the boys play soccer, to go to NYC on the train and watch his beloved Manchester City play, and meet his friends in the supporters club. Simple thing we all take for granted every day.
By writing this we hope you realize how hard it is for us to ask for help, Steve's world cannot become any smaller, we need to be able to get him out and about. By donating, you will help us lease, or purchase a wheel chair accessible Van. Make modifications to our home, and let Steve try and live a semi normal life.
Thanks for reading our story
Steve & Pauline Jepson
Steve Jepson, was diagnosed with ALS, also known as Motor Neuron Disease or Lou Gehrig’s disease in January 2015. He had been struggling with symptom’s for 2 years. with muscle cramps, and loss of strength in his hands.
On that cold dark day in New Haven CT, the neurologist gave us the diagnosis, we fell apart, What do we do now? How do we tell our family? How do we tell our beloved children? Do we go home to England? To say we were reeling is an understatement, our whole world, our whole solid foundation we had built for 20 years was completely shook to the core.
After a river of tears, and time to think we started to get back to some sense of normality, Steve was not progressing too quickly, but there were and still are changes every day. We joined the Connecticut ALS Chapter, who were incredible to us, so warm and understanding, giving us resources that we had no idea we’re out there. Why would we? The biggest been a referral to the Hospital for Special Care in New Britain CT. We could not have got through the last 20 months without the care and support from these two places, and the wonderful people who work there.
Our family back in the UK and Denmark, have been amazing, the support they offer to us even though we are 3000 miles away is incredable, it's a tough diagnosis for everyone to take on board: Parents, Sisters, Brothers, Nephews, Nieces, in-laws, Aunts, Uncles, best friends. Where does the support begin or end.
Steve has progressed so quickly over the last few months, it's hard to see "Jepo" decline each week. Steve aka "Jepo" is the hardest working person I know, I am proud to be his wife, he is a wonderful father to our sons Ben & Sam. A wonderful friend to his mass of friends all over the world, a wonderful Camp Director and role model to all the campers and staff we see come through the summer camp we run each summer www.awosting.com . Hard to watch, but also amazing to see him cope with every stage with a smile, with such positivity, we often wonder where he gets his strength from. You never know how strong you are, until you have to be I suppose.
Steve just wants his independence, to be able to still get to work, and do his job. To drive to watch the boys play soccer, to go to NYC on the train and watch his beloved Manchester City play, and meet his friends in the supporters club. Simple thing we all take for granted every day.
By writing this we hope you realize how hard it is for us to ask for help, Steve's world cannot become any smaller, we need to be able to get him out and about. By donating, you will help us lease, or purchase a wheel chair accessible Van. Make modifications to our home, and let Steve try and live a semi normal life.
Thanks for reading our story
Steve & Pauline Jepson
Organizer
Pauline Devaney Jepson
Organizer
Goshen, CT
