Medical Fund for Mario (Juju)
Donation protected
This campaign has been created to help our Hatch team member Mario Duran and his family with their medical bills. Some of you may know and some of you may not but Mario's son Juju (8 years old) was diagnosed with High Grade/ Undifferentiated Sinonasal Carcinoma. A very rare form of cancer that formed on the roof of his mouth and grew at an exponential rate. Last week they operated on Juju to remove the tumor and in the process were forced to remove his top palate. While the tumor is now gone Mario and his wife Yesenia will have a long road ahead for their son's full recovery.
I encourage everyone to donate if you can and also to share this campaign outside of the Hatch office to help Mario and his family with their son's recovery and medical expenses including but not limited to: Prostises, Chemo, Radiation, and additional visits to the hospital.
Yesenia has put together Juju's story thus far below for those of you who would like to read more:
Juju's Story
Our son is 8 years old. He is a very happy child. He loves his family and friends. Juju always has a joke or some crazy come back to make everyone laugh.
But that changed:
Monday July 11, 2016 Juju started complaining that the roof of his mouth was bothering him. Juju was an eater and when we would cook him something even with us telling him the food was hot. He would always dig in. So when he complained about the roof of his mouth hurting we looked, nothing was there so we thought it may have been that he ate the hot food to fast.
Tuesday July 12, 2016 Juju came to us and told us he thought one of his teeth were loose. He showed us which one it was and it was one of his big boy teeth. Mom touched it but it wasn't loose and she looked at it but it seemed fine. We thought it may have been from the same pain he complained about the day before.
Wednesday July 13, 2016 Juju came to me with such a sad face and told us that his mouth was really bothering him. When we looked into his mouth there was a marble size mass on the roof of our sons mouth. We quickly knew something was wrong. So that evening we took him to the pediatric evening clinic. Unfortunately the doctor said that he recommended us taking Juju to an ENT provider. He gave us antibiotics for Juju just in case it was an infection and some pain medicine.
Friday July 15, 2016 Juju was given an appointment to see an ENT provider. After reviewing the mass in Juju's mouth the ENT provider recommended that Juju see an Oral surgeon immediately. The ENT's office called over and were able to squeeze Juju into the schedule of an oral surgeon across the street. The oral surgeons office was prepared for Juju when he walked in. They took an X-Ray and shortly after the surgeon came in and reviewed the mass in Juju's mouth. The surgeon informed us that he felt that a biopsy should be done of the mass.
Monday July 18, 2016 Juju was scheduled for the biopsy. It was so hard to see our baby boy trying to recover from being cut in the mouth. We felt so helpless that we were not able to relief the pain he was feeling.
Wednesday July 20, 2016 Juju was still trying to recover when we noticed that the mass was growing. They had taken a piece for the biopsy but it had grown back.
Friday July 22, 2016 the oral surgeon called and requested that I come in with Juju to see how Juju was recovering. After the surgeon checked Juju's progress he then requested to speak with me without the children. At that moment my heart rose up into my throat. The surgeon informed me that they received the preliminary pathology report and it showed that the sample that was send for the biopsy had come back cancerous. I had to sit down and process the information that my funny happy 8 year old son has cancer. I honestly had no idea how to tell him so we decided to wait for the finally pathology report to arrive before telling him. We knew he would have a million and one questions that we were not gong to be able to answer. So we waited. Over the weekend it was like a daze. Like we were going to wake up and it was going to all be a very bad nightmare. But the days continued. We felt like we were running on auto pilot. We did the grocery shopping, cleaned the house, washed clothes, cooked dinner and then we watched movies like we always do on the weekend. The waiting was horrible, the not knowing was even worse.
Monday July 25, 2016 Juju was scheduled to see an oral maxillofacial surgeon who would be giving us the final information from the pathology report. But we get to the clinic and the final results have not arrived. The surgeon reviewed the mass in Juju's mouth and suggested that we not wait for the results to start the work up for treatment. So that evening Juju was admitted into St. Joseph's Children Hospital at 5:31 pm. So the testing began and Juju was placed into the surgery calendar for Friday July 29, 2016. Juju had blood work, an MRI, a CT scan for the face, a CT scan of the chest and the abdominal. Thankfully everything came be fine.
Wednesday July 27, 2016 Juju was examined by the oral maxillofacial surgeon because she noticed that the mass just kept on growing telling her that it is very aggressive. Finally the final pathology report arrives. The diagnosis "High Grade/ Undifferentiated Sinonasal Carcinoma". We were informed that this type of cancer was very rare in adults but even more rare in children his age. The doctors looked everywhere and asked everyone they knew if anyone had seen a case similar to Juju's.
Thursday July 28, 2016 at 5:26 pm Juju was taken into surgery to have the mass removed. At 10:41 pm Juju was in recovery. The surgeons were able to remove the entire mass but in doing so his top pallet had to also be removed. With the top pallet needing to be removed we were informed that Juju would be fitted for a prostises. But we were okay with that as long as they where able to remove the entire mass from my Juju.
And now the treatment journey begins...
I encourage everyone to donate if you can and also to share this campaign outside of the Hatch office to help Mario and his family with their son's recovery and medical expenses including but not limited to: Prostises, Chemo, Radiation, and additional visits to the hospital.
Yesenia has put together Juju's story thus far below for those of you who would like to read more:
Juju's Story
Our son is 8 years old. He is a very happy child. He loves his family and friends. Juju always has a joke or some crazy come back to make everyone laugh.
But that changed:
Monday July 11, 2016 Juju started complaining that the roof of his mouth was bothering him. Juju was an eater and when we would cook him something even with us telling him the food was hot. He would always dig in. So when he complained about the roof of his mouth hurting we looked, nothing was there so we thought it may have been that he ate the hot food to fast.
Tuesday July 12, 2016 Juju came to us and told us he thought one of his teeth were loose. He showed us which one it was and it was one of his big boy teeth. Mom touched it but it wasn't loose and she looked at it but it seemed fine. We thought it may have been from the same pain he complained about the day before.
Wednesday July 13, 2016 Juju came to me with such a sad face and told us that his mouth was really bothering him. When we looked into his mouth there was a marble size mass on the roof of our sons mouth. We quickly knew something was wrong. So that evening we took him to the pediatric evening clinic. Unfortunately the doctor said that he recommended us taking Juju to an ENT provider. He gave us antibiotics for Juju just in case it was an infection and some pain medicine.
Friday July 15, 2016 Juju was given an appointment to see an ENT provider. After reviewing the mass in Juju's mouth the ENT provider recommended that Juju see an Oral surgeon immediately. The ENT's office called over and were able to squeeze Juju into the schedule of an oral surgeon across the street. The oral surgeons office was prepared for Juju when he walked in. They took an X-Ray and shortly after the surgeon came in and reviewed the mass in Juju's mouth. The surgeon informed us that he felt that a biopsy should be done of the mass.
Monday July 18, 2016 Juju was scheduled for the biopsy. It was so hard to see our baby boy trying to recover from being cut in the mouth. We felt so helpless that we were not able to relief the pain he was feeling.
Wednesday July 20, 2016 Juju was still trying to recover when we noticed that the mass was growing. They had taken a piece for the biopsy but it had grown back.
Friday July 22, 2016 the oral surgeon called and requested that I come in with Juju to see how Juju was recovering. After the surgeon checked Juju's progress he then requested to speak with me without the children. At that moment my heart rose up into my throat. The surgeon informed me that they received the preliminary pathology report and it showed that the sample that was send for the biopsy had come back cancerous. I had to sit down and process the information that my funny happy 8 year old son has cancer. I honestly had no idea how to tell him so we decided to wait for the finally pathology report to arrive before telling him. We knew he would have a million and one questions that we were not gong to be able to answer. So we waited. Over the weekend it was like a daze. Like we were going to wake up and it was going to all be a very bad nightmare. But the days continued. We felt like we were running on auto pilot. We did the grocery shopping, cleaned the house, washed clothes, cooked dinner and then we watched movies like we always do on the weekend. The waiting was horrible, the not knowing was even worse.
Monday July 25, 2016 Juju was scheduled to see an oral maxillofacial surgeon who would be giving us the final information from the pathology report. But we get to the clinic and the final results have not arrived. The surgeon reviewed the mass in Juju's mouth and suggested that we not wait for the results to start the work up for treatment. So that evening Juju was admitted into St. Joseph's Children Hospital at 5:31 pm. So the testing began and Juju was placed into the surgery calendar for Friday July 29, 2016. Juju had blood work, an MRI, a CT scan for the face, a CT scan of the chest and the abdominal. Thankfully everything came be fine.
Wednesday July 27, 2016 Juju was examined by the oral maxillofacial surgeon because she noticed that the mass just kept on growing telling her that it is very aggressive. Finally the final pathology report arrives. The diagnosis "High Grade/ Undifferentiated Sinonasal Carcinoma". We were informed that this type of cancer was very rare in adults but even more rare in children his age. The doctors looked everywhere and asked everyone they knew if anyone had seen a case similar to Juju's.
Thursday July 28, 2016 at 5:26 pm Juju was taken into surgery to have the mass removed. At 10:41 pm Juju was in recovery. The surgeons were able to remove the entire mass but in doing so his top pallet had to also be removed. With the top pallet needing to be removed we were informed that Juju would be fitted for a prostises. But we were okay with that as long as they where able to remove the entire mass from my Juju.
And now the treatment journey begins...
Organiser and beneficiary
Amy Abril
Organiser
Tampa, FL
Mario Duran
Beneficiary
