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#DIFD

$58,472 of $50,000 goal

Raised by 631 people in 10 days
Created March 13, 2019
This page was created for the Poet family to show our love and support!  So many have asked how to help Drew and his family.  This will help support comfort  measures for Drew and his family. 

We will also provide updates on this page as well.
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Update from Mary :

Drew Update: Stranger Things...

Drew's hospice nurse came to the house Monday afternoon to draw labs. As suspected his counts could barely go lower so a transfusion was scheduled for yesterday (2 blood, 1 platelet). Since both Nick and Matt are home right now, we trekked out as a family knowing the better portion of the day would be spent in an infusion room at Levine. Makes my heart happy to hear both of his brothers say they wanted to go - and it was good. A strangely good day. The guys had not experienced a day in infusion before; the hospital stays, yes, but not transfusions.
Cramped in chairs, each with laptops in hand, battling whatever was happening in the virtual world they chose to spend the next 6+ hours in. Strange sight it was...even an upbeat mood in the room.
Staff heard Drew's brothers were both there and just about everyone stopped by to meet them, to their mild chagrin. I mean, they were interrupting the flow of the game...
Back home at 5:00pm, everyone was strangely upbeat. Drew said he was glad "that" was over and was actually feeling a bit better already (headache was gone!). We are praying he feels even better as the week goes on, just in time for March Madness to begin (Michigan, can ya help a mom out here...)?
It was a difficult day, yet a strangely good day. Family: there is no better medicine.
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WOW ! We are completley blown away. The amount of support Drew and the Poet Family have received is amazing. I know that there are some people that wanted to donate and havent had the chance so I am going to keep this going! Keep praying for Drew. They deserve this !
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We are blown away by the amount of love and support the Poet Family is receiving in just 24 hrs. I decided to up the goal because so many still want to donate and we already passed the original goal ! #DIFD

-Deanna
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Update from Mary.

UPDATE: We met w Drew’s medical team on Tuesday and increased his baseline (extended release) morphine dose to get better coverage (this is the 3rd adjustment in as many weeks). We stopped "pain management" radiation treatments Tuesday as well. Radiation helps but the pain simply finds a new place to show up and he is spent. We are
concerned doctors believe Drew will eventually need 24 management in a hospice facility. This is unacceptable and Drew would be distraught. We want him and he wants to be in his own home. Meeting with medical team again tomorrow to find out what equip we would need and if RN or LPN would be required. That is not covered by hospice care. They are "on call 24/7" but they do not remain in the home. Thus my cave in on the GFMe page. My friend Deanna and many, many friends in Michigan have been asking for a way to help and asking for over a year (a book, a meal, a giftcard, a comfort measure for Drew). This fund will help fill those increasing needs and in-home care if needed. Any remaining funds will go to the Pediatric Ewing's Sarcoma Research Fund. We NEED A CURE OR BETTER TREATMENT options for this cancer. This disease is taking our son. And in the worst possible way.
I HATE the GFMe page. But it will help. It has been a long, rough year.
#DIFD
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$58,472 of $50,000 goal

Raised by 631 people in 10 days
Created March 13, 2019
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CB
$10
Carter Buck
1 day ago
AF
$75
Adler Family
1 day ago
JF
$150
John Fred
1 day ago
$1,000
Anonymous
1 day ago
$25
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2 days ago
$20
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2 days ago
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$50
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SM
$90
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2 days ago
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$100
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$200
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2 days ago
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