Faith for Johnny
With that being said, I would like to extend a hand for help once again. We didn’t intend on making another Gofund me, but several friends encouraged us to do so. So here we are again asking for your help. I Daisy( Johnny’s sister) am pouring my heart out. Johnny didn’t want me to make this go fund me because he wants to find another way to pay for his physical therapy but at the time we don’t have a way to do so this is what we have to do for now. There’s no one more than me that wants to see my brother rise out of that chair, and breathe on his own. I want to see him get up to be an even better version of himself. I cry at night at times because I look at how far we have come, and how much more we have to go. & I just want it SOO BAD. I want my little brother to live the life he’s always dreamed of having. I haven’t left his side since this happend to him. I’d be failing him, failing his promise if I gave up now. I promised him I would do what ever it takes to help him recover and get back on his feet. That’s exactly what I’m tryinf to do. I want to keep fighting keep. In order to do so we need resources, so if there’s any way you can help through prayer or monetary donation we appreciate it SO much! We love you all so very much! God bless you all, and let’s keep the faith for Johnny, help me see him rise.
The rise up...
Also an update on Johnny, when this whole situation occurred we were told by doctors they suspected of Guillan Barré syndrome. However, when we got transferred to UCLA MRI results displayed an infrarct. Doctors diagnosed my brother with a spinal stroke starting from the upper C1 area down to T2. They told us he would no longer eat, talk, and be bed ridden. By the grace of God he is talking, eating, and is up in a wheel chair. Finger flexion on his right hand, more neck control, and movement in his right toes. He is a miracle who is fighting this good battle in hopes of inspiring others along the way. He is now at rancho Los amigos where he has been getting rehabilitated for a month now, but the next step is to go to totally kids sub acute for more family training and rehab. Then follow onto going home.
So all we ask is for donations. My mom and I are still unemployed and will be out with Johnny at totally kids for possibly another month. If you have anything To give we would appreciate it from the bottom of our hearts, and if not just bless us with your thoughts and prayers! God bless you all!
I hope its not the Carlos I think it is .If it is you, I find it really unnecessary of you to be spreading information about my brother when you have not been here to see how it all happend or let alone see how I'll he is. My brother is on a ventilator, can't move,and is on a feeding tube. Its the hardest thing to go through. Our family is having to make a lot of sacrifices to help my brother get better. And Just a heads up, ectasy didn't cause this. But if it did, what does it matter to you we are asking for help so that my brother and my family and I can overcome this. I know you come from a good family I even know your brother and parents so if you posted that comment, I'm just beyond dumbfounded that you wouldn't have more consideration. You pray for people during these troubling times not knock them down more.
I'm so sorry your family is going through this daisy. My dad passed away in April this year after he was diagnosed last September with this Guillen Barre syndrome. He too had a breathing tube and a feeding tube then had to have a tracheotomy as well. He had a sore on his back that he piced at and then woke up paralyzed. After numerous hospital stays he had to be flown to San Francisco that is where he got diagnosed at because it was out of Marians hands. Well he then had to go into a care facility to be taken care of down south and they didn't take care of him. Never cleaned his sore on his back and he ended up getting another sore that was the size of a serving dish. He came back to santa maria after my family brought him home from that horrible place and passed away a few days later. So like i said I'm so sorry your family is going through this I know this pain all to well how you are feeling. I'm keeping your family in my thoughts and prayers and hope Johnny gets better soon.
This happened to my husband. Started with breathing then paralysis. Initially the Drs thought it was GB syndrome but fortunately for us a young intern suggested Eosinophilic Granulomatosis with Polyangiitis or Churg -Strauss Syndrome. They started my husband on steroids and he survived. Took a long time to learn to write and walk again but he's been well for 10+ years since. Churg Strauss syndrome is rare and our Drs told us that it can be often missed by Drs when diagnosing. Best wishes with it all.
Do any of you people know why he had this? Why dont they tell you the truth? He used "exstacy" on gradnight, probably not what you were told
Carlos wow! I hope and pray for you! I pray one day you family your mother father sister or brother! Don’t be the curse of your words that’s all! God Bless!!
Continued from my other comment my family was also told my dad had a spinal stroke I'm so glad that Johnny is doing better my dad never got that chance so I'm so happy that Johnny is doing better. Still keeping your family in my thoughts and prayers
You are totally right im sorry that your brother is in that situation and i hope he really gets better no one deserves this, no matter what he did and hes a strong kid he will make it theough this ordeal but one thing i wont do is pray because "god" doesnt fix anything medical science does, and no you dont know me, have faith in your brother because he can overcome anything no need to pray, btw im sure your brother is a great guy so sorry if i offended you but i like to hear the truth before i donate money and you didnt include the real truth