izayahs battle

Izayah is 19 month old happy handsome little manthat we thought was battling retinoblastoma  he went for treatment in July an they removed two tumors an  after lots of testing we come to find out he is fighting a very rare disease that is not cureable that he will battle the rest of his life, coats disease  which effects 1in 100,000 it is extremely rare, when we went back for his 2 treatment they discovered another tumor so they removed it an discovered it had cancer cells, they also did some test an discover holes on his right lung which got the doctors by surprise so we will b seein a pulmonologist oncologist  the doctors are surprised an very unsure what exactly is goin on, we will now have to return to New York every 2/3 weeks for 7-10 day stay at a time, children’s hospital will not treat it So that is why we  Travel to memorial sloan Kettering cancer center in New York for his treatment the goal over all is to try an stop the cells from spreading an make him as comfortable as can be. The cells have spread since his first treatment an doctors say he has lost all vision to his right got eye. This is very hard not only for him but us as a family

Its gonna b a long and very hard battle especially with traveling monthly anything will help an b greatly appreciated.