Walker's Mended Heart

$17,495 of $30k goal

Raised by 133 people in 42 months
Ashley Robinson Sherrard   KAUFMAN, TX
On the outside Walker looks like a normal 18 month old, but his heart tells a different story. Walker was born on 1/4/13 and a day later was diagnosed with several congenital heart defects. He has Coarctation of the Aorta and right side dominant AV canal. Without intervention and surgery he would have passed away at just a couple of days old. Because Walker's left ventricle is so small he is considered to have a single ventricle heart and will undergo three major surgeries to reroute blood flow so his heart can function as a single ventricle. He had his first open heart surgery at six days old. After feeding issues it was discovered that he had a paralyzed vocal cord due to nerve damage from the first surgery. At two weeks old he had a g-tube (feeding tube) placed. Walker went home for the first time at four weeks old and planned to have his next surgery around six months of age. After a short stay at home Walker was in heart failure and back in the hospital at seven weeks old. At nine weeks old he underwent his second heart surgery. Walker was the smallest and youngest patient at Medical City to have the Glenn operation and spent another four weeks in the hospital and went home on continuos feeds through the feeding pump and on oxygen.

After arriving home he started physical, speech and developmental therapy to help catch up to others his age. After 10 weeks Walker was taken off oxygen.
Through a lot of networking and research Walker's parents sought out a second opinion from the top doctors at Boston Children's Hospital. The new plan is to give Walker a staged bi-ventricular repair. This will consist of two surgeries over the next year. These surgeries will give Walker two full size ventricles! The first surgery will be September 23. Walker will spend a minimum of two weeks, but could be up to three months in the hospital in Boston. Six months to a year later he will undergo the second operation giving him a whole heart!
This page is to first and most important ask for prayers but if you feel led to help with the financial burden of this expensive journey it would be greatly appreciated. All money donated will go to medical bills, co-pays and traveling expenses to and from Boston. Thank you so much for all the prayers and support!
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Update 8
25 months ago
Thank you so very much for all your donations and support! So many have asked how much we need to raise. Walker will have 2 surgeries and 2 cardiac caths at Boston's Children's Hospital over the next year. Traveling, housing, and medical bills will cost us around $30,000. We are a single income family since I (Mom) had to resign from my job to take care of Walker and his medical needs. Family and friends are helping us raise money with several benefit events and we are doing all we can to make enough money to cover this very expensive year. Brad has picked up a part time job on our friends farm on his days off from his full time job and I am making all kinds of arts and crafts to sale. This page was originally set up last year and the total amount raised you see here is not all from this year. So far we have raised $3,605 on this amazing site! We want to thank all of you for helping us make this possible! You all are apart of giving Walker a whole heart! Thank you!
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Update 7
25 months ago
Thank you so much for all your prayers and support. It means so much to us! We have raised $2,110 so far for our trips to Boston! We will have a total of three trips to Boston over the next year. One in September for a cath and the first open heart surgery, one around March for a cardiac cath and then one more for another open heart surgery. If all goes well with these surgeries we will then go back in six months to a year for follow up caths. With congenital heart defects, very rarely do you only have the surgeries you plan for. Most of the time you have to have more than what's planned. We pray Walker will only have 2 more surgeries and will be done!
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Update 6
25 months ago
We just had a phone conference with our cardiologist in Boston. We discussed the pre cath on Sept 19th, complications and follow ups. The MRI Walker had two months ago showed high collateral pressures. They need to coil any collaterals before surgery and check pressures in all chambers. Once we come home from Boston we will have follow ups with our cardiologist here and then will go back to Boston in six months for a cath to double check pressures and growth of the left ventricle. Depending on the left ventricle size at that time they will decide when the next surgery will be. Walker's left ventricle has actually grown over the last year and a half and just needs to be bit bigger to have the full bi-ventricle repair! During this first surgery, Dr. Del Nido will close the big ASD with a patch made from Walker's own tissue and will partition the common valve to two seperate valves. These valves will become the mitral and tricuspid. Doing all this will cause more blood to be forced into the left ventricle causing it to grow and hopefully it will be big enough to work on it's own in six months to a year. We will trust in God's plan to give Walker a whole heart!
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Update 5
25 months ago
It's time for another heart surgery! This is much sooner than we had planned. Originally Walker's next surgery was going to be when he was 4-5 years old. But after test and consults with doctors at Boston Children's Hospital Walker will undergo 2 surgeries over the next year. The first will be September 24. This is the first of his complete biventricular repair. After these surgeries Walker will have a 2 ventricles!! A whole heart! We can't wait to say he has 4 a chamber heart! First and most important we ask for your prayers! Second we ask that if your able to, would you please help us out with medical bills and traveling/housing. Walker will be in the hospital for a minimum of 2 weeks but could be there up to 3 months or longer. No donation is to small. We thank you all for your prayers and support!
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$17,495 of $30k goal

Raised by 133 people in 42 months
Created February 24, 2013
Ashley Robinson Sherrard     Medical   KAUFMAN, TX
$1,000
Anonymous
19 months ago
AC
$110
Allen Cousins
23 months ago
$150
Anonymous
23 months ago
$1,000
Anonymous
23 months ago
AG
$100
Arlene Giddings
23 months ago

I was so touched by your family at Children's Hospital and will remember Walker in my prayers. God put us together in that waiting room for a reason!

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$100
Anonymous
23 months ago
BH
$200
Bob & Gail Harris
23 months ago
MM
$100
Mick and Angela Milde
23 months ago
HJ
$100
Herb & Karla Jones
23 months ago

We will remember Walker, and his family, in our prayers. May God continue to bless you.

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$100
Anonymous
23 months ago
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