Please help baby Kynslee
I am asking for your prayers, love and support again for our precious granddaughter,Kynslee Lydia Rayne Mullins. It’s hard to believe it’s been 16 very long months since our sweet baby girl got so sick virtually overnight. 15 days at Children’s Hospital in Richmond, VA, 3 months at Johns Hopkins in Baltimore, MD, 4 trips to Children’s Hospital in Philadelphia, PA, MANY trips to Children’s National Medical Center in Rockville, MD and Washington, DC and soooo many appointments with other medical professionals and even a Holistic Doctor and STILL NO DIAGNOSIS or TREATMENT for this beautiful baby girl!! This strong little girl has endured multiple MRIs, Spinal Taps, EEGs, sooo much blood work and so many different medicines! Kynslee and her mommy, daddy and big brother have been through much more than ANY family should EVER have to endure!
I am asking for your help to send Kynslee and her mommy to The Children’s Hospital in Wisconsin next month. This hospital specializes in undiagnosed cases in children! They have reviewed Kynslee’s medical records and have seen videos of her and THEY HAVE ACCEPTED HER into their program!! How wonderful!!! We are PRAYING so hard that they will finally be able to give us some answers but MORE IMPORTANTLY heal this beautiful baby!
Although she has medical insurance, (Mary literally works so that Kynslee will have insurance to be seen by doctors outside of Virginia) this VERY IMPORTANT trip will be an additional overwhelming strain on their finances. The airfare, the time missed from work, etc.
We are THANKING YOU from the bottom of OUR HEARTS for any help you can provide!! Thank you all again for your previous love and support! May God Bless Each of You! Much love to all, Kathy and Family
If you have not already you might want to join Momatopia which is a Facebook group for SN moms. They can help you negotiate this special world!
Sweet face is being transferred to in patient rehabilitation today. We have to wait 3 weeks for genetic test results to hopefully provide a diagnosis. No clear answers and a very uncertain future at this time.
We are currently at John Hopkins. They admitted us last night for lack of nutrition and dehydration. We have a co-workers daughter that has been great. She got the top neurological team on this before we arrived. We met Dr. Oakley today and he seems to think if the "ADEM" treatment didn't work yet than it may be metabolic in nature(her genomes). More blood work drawn. MRI being scheduled and another lumbar puncture. We believe we are here for a reason. Please continue to SHARE. All the help thus far has been a miracle in its self. The next miracle will come in gods time.