Helping Kaity-Bug Purchase Equipment

$1,130 of $3,000 goal

Raised by 25 people in 47 months
Becka Linton  Winnipeg, MB

Kaitlyn Diane was born on August 25, 2011 at 31 weeks Gestation. She was immediately taken to the NICU where she was doing AMAZING and expected to need just a few weeks to learn to eat and grow a bit. The next day our world turned upside down.

 

Kaity needed a nutritional supplement until she learned to eat. This supplement, called TPN, is supplied through an IV.  When she was 30 hours old her nurse was changing her TPN bag. These bags are set up to run through an IV machine over a 24 hour period. Kaity's nurse set the machine up incorrectly. Her full bag of supplements ran into her tiny body in 40 minutes.  It sent her body into full organ failure. It shut down everything. It caused a full cardiac arrest and she had to be resussitated. It caused a massive bleed in her brain. She had to be placed on life support.

 

This 'mistake' has had detrimental effects on Kaity. We were told she would not live. When she was 3 days old the EEG showed she had no brain activity. She was clinically dead. They asked us to remove life support.  We refused. 3 days later another EEG started to show brain activity.... not great, but it was there!

 

She spent 63 days in the NICU before she was miraculously able to come home. Her discharge brain scans were not good. We were told she would have cognitive issues, behavioural issues, no speech, and likely very limited use of her limbs. She also has 'diffuse brain volume loss' and pockets/holes throughout what parts of her brain are there.

 

Kaity had to have a shunt placed in her brain at 6 months old. 10 days later it failed and she had to have it removed, an external drain placed, and then 5 days later a 3rd brain operation to place another shunt. We spent another month in the hospital.

 

As of 31 months old Kaity has made much more progress than expected, but everyday is a struggle.

 

She has been offically diagnosed with Spastic Quadriplegic Cerebral Palsy Level 4, Periventricular Leukomalacia, Diffuse Brain Volume Loss, VP Shunt dependent, Speech Delay, Globally developmentally delayed. She will likely never sit on her own. She will likely never walk independently and will be wheelchair dependent.  

 

Kaity is the happiest little girl you will ever meet. She smiles even through all her therapies, and she has a LOT of them.

 

She loves watching her big sisters (3.5 yr old Madison and 10 yr old Sierra) playing and trying to reach for her with her left hand (her limb with the most function).

 

Daddy lost his job during the stay in the hospital for her brain operations, and then stayed home with her for a little while to help her recover. He has had difficulty finding a job to return to.

 

Mommy had to return to work when Kaity was 9 months old. Financially this was the only option :(

 

The family is currently struggling.  Kaity's disability papers were approved at the same time as the government decided to reassess tax papers because Mommy and Daddy got married a couple months ago. Her disability payments took a long time to come in. The family is still playing catch up financially for everyday living, and trying to provide for all the equipment to enhance Kaity's development. 

 

Donations would be used for many reasons.  So far we have used funds to help Kaity with a safer carseat for her muscle tone and most recently for her Upsee Walking Device. We are now collecting for the cost of her First Pediatric Wheelchair. We will also be adapting the 'Potty' for her use, and making adaptations needed to the home. 

 

We do not like to ask for help, so instead will say that if GOD inclines you to help financially then we would appreciate and use every penny in a way that helps Kaity.  And if you are unable to help financially, Prayers (and page shares) are also graciously accepted.

Thank You

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Update 9
Posted by Becka Linton
32 months ago
We are extremely excited to say that we raised enough to order Kaity's Upsee tonight. The total you see on the page is the amount that has been raised over a 16 month period. I'd like to be clear that all funds have been used solely for equipment for Kaity.
At this time her paypal account now sits at $6 USD (after paying for the Upsee). That amount will remain in her account and hopefully donations will continue to go towards her next purchase of her first pediatric wheelchair. I will likely not post as many donation request reminders for the next little while. My heart is just so overwhelmed with the love we received from family and friends to help with the Upsee. However, I will ask that you continue to share Kaity's story, and occasionally recommend her page so we can continue our fundraising efforts towards her wheelchair.
Once again, THANK YOU!
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Update 8
Posted by Becka Linton
32 months ago
Its been a whirlwind of a week. We've gained some great donations and some great spread of Kaity's story. We are currently sitting at $312 in donations (after conversion between USD and CAD) going to Kaity's Upsee purchase. We can't wait to reach our goal.
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Update 7
Posted by Becka Linton
32 months ago
Hi Friends! We thank you for your support in raising money for Kaity's equipment. We are very excited right now to be funding specifically for an Upsee. You can see a description at www.fireflyfriends.com/upsee
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Update 6
Posted by Becka Linton
44 months ago
We are so excited to announce that we were able to arrange a Pummel Walker for Kaity. She received her walker on Friday and is starting to learn how to move her feet. She is also increasing her vocabulary. And we have such a polite baby.... she says Thank You everytime we hand her something. Truly Blessed
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Read a Previous Update
Help spread the word!
 262 total shares
Sierra Linton
32 months ago

I can't wait to walk with kaity

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Sierra Linton
32 months ago

Thank you everyone for helping my baby sister

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$1,130 of $3,000 goal

Raised by 25 people in 47 months
Created January 13, 2013
$20
Lindsay Galley
21 months ago
AM
$100
Ainslee McLaughlin
28 months ago

Hope this helps!

LM
$50
Lana Moore
32 months ago

From Melody

AM
$50
Ainslee McLaughlin
32 months ago

Good luck Kaity, can't wait to see pictures in your new UPSEE!

CB
$100
Carm Buffone
32 months ago

😊❤️

TB
$20
Tracy Baldwin Boling
32 months ago (Offline Donation)
PB
$100
Peter Biesheuvel
32 months ago

Best wishes to you and your family.

$25
Anonymous
32 months ago
$20
Anonymous
32 months ago
C(
$5
Claire Ricketts (Boersma)
32 months ago

It's not much, more a gesture to wish you luck with your fund raising. It will be great to see Kaity in the Upsee.

Sierra Linton
32 months ago

I can't wait to walk with kaity

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Sierra Linton
32 months ago

Thank you everyone for helping my baby sister

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