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Help Milo Get To Philadelphia 50000$ Need It !

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For the mother, there is no more painful sight than the face of her own child, who’s grimacing in terrible suffering. Boy reflexively turns his head, closes his eyes, because this image pierces the heart throughout. I must show you this picture, because it is at this moment that I am fighting for my son's life. A cruel and extremely rare disease wants to rob him brutally, and we must do everything to save him. The rescue is waiting in the States, but it costs huge amounts of money ...

Milo was born as a healthy child and received the magic 10 points on the Apgar scale. I was overjoyed, but after a few o hours the drama began. A shrill cry, no food intake. The doctors did not know what was going on. The baby was sent to the incubator for three months. We were in a huge shock, it can not be said in words. All the joy, turned into bitter dust. After a few days, they were transported to another hospital, and I arrived only after some time. There’s a waterfall of tears on the keyboard when I have to refresh those memories again.

The first suspicions were in the direction of epilepsy. Milo took very strong drugs and was virtually unconscious for six weeks. It was not supposed to look like that. Finally, a MRI resonance was made to my son, who suggested to the doctors a villain - Leigh syndrome. Fatal and incurable disease. Children dont get to live to adulthood. Darkness appeared before my eyes ... As if this wasn’t real.


I did not know how much time was left to us. Year, month, week? Doctors studied this disease with us, that’s how rare is this disease. Milo, despite being 8 years old, does not walk, talk, he stopped eating independly , because the disease caused food to land in his lungs. Any infection can end tragically for him. This winter, we nearly said goodbye to him ...

In Europe, children with this disease live 8-10 years. In the States where medicine stands at a much higher level, even 16-18, and still this age is prolonged. That's why we started looking for help and Milo was qualified for research in Philadelphia. For many years, we have been fighting an uneven fight with the disease and finally some light appeared. We must take advantage of this opportunity, it is our duty in the aid of our son. Therefore, we ask you for help, because such a trip is a cosmic expense ... We know that we can not do it alone, and we have to pay the money even before we appear in the clinic, on July 13!

We fight a mitochondrial monster that attacks unexpectedly and sucks energy out from from our son. How much strength does he have left ? The worst are those abdominal pains that hurt him. The child should not go through such agonies ... Please help us go to the US for help. Help us save my son.

Alicia - mother

Organizer

Alisa Es
Organizer

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