Life with AMC and Too Tuff Timmy

$3,313 of $7,000 goal

Raised by 43 people in 50 months
Carolyn Miller  CARMEL, ME
Tomthy was born with Micrognathism syndrome which is a underdevolped chin so his tounge is to big for the smaller lower jaw falls back in his throat and hampers his breathing and its part of his  Arthrogryposis Mutiplex Congenita syndrome which is a rare congenital disorder that is characterized by multiple joint contractures and includes muscle weakness and fibrosis. It is a non-progressive disease. Due to his low muscle tone through out his body he is unable to swallow so he is fed by a mickey-button through his abdominal wall into the stomach.
Without being able to swallow makes his acid reflux and any upper body secretions hard for him to handle at times and we have to suction him or he can choke or aspirate into his lungs and cause phenomena. He has physical therapy daily and has AFO (ankel foot orthodics ) he has to wear on his legs daily to keep them straight. He has three major specialist appointments in Portland November 20th and the 21st is very important appointments for him. GI to figure how to stop the reflux and tube problems ,neurologist for 6 month follow up ,and pulmonary to help with breathing issues in the cold win
+ Read More
Update 76
Posted by Carolyn & Brandon Miller
19 months ago
So last night he came down with a fever of 100 . Hea had xrays of his chest done and they show that his right lung still has fluid and his left lungs has gotten worse. He picked up a roto virus along with all of this . He is back off food and back on pedialyte and he can have limited visits today due to the new virus .He is also back on oxygen during the day and night . We currently still have no vehicle and have the other boys down here with us so expenses are piling same with bills at home . If u cant donate please place Timothy in your prayers during this time
+ Read More
Update 75
Posted by Carolyn & Brandon Miller
20 months ago
Timothy is off oxygen and waiting to be moved from the Picu to the main PEDs floor. He is still considered failure to thrive. We have lots of tests in the near future to make the quality of life for him easier . please pray for our boy as he's in the Lords has now to help him heal .
+ Read More
Update 74
Posted by Carolyn & Brandon Miller
20 months ago
Timothy has had a rough day getting back to his feeding schedule .He not handling his secretion s well at all he has no strength to cough . No new awnser kind of a low key let Tim sleep kinda day. Please pray for our boy if u can't donate please pray we can purchase a vehicle by the time he can come home. He has a long road ahead
+ Read More
Update 73
Posted by Carolyn & Brandon Miller
20 months ago
Timothy was life flighted by helicopter to Maine Medical center children's ICU . He was discharged from Eastern Maine Friday in good spirits . But as the weekend progressed something wasnt right. Timothy had aspirated into his lungs from vomiting in his sleep. He had a temp of 106.2 upon arrival at the er and had to be placed on a cooling mat. He had a siezure while they were trying to place a central line. Timothy is currently stable , he had double pneumonia in both lungs and something going on with his kidneys. Dad is going back home in the next day or so and returning the car we were using. Please put timothy im your prayers if u can't donated. Every penny will go for a vehicle to be able to bring him home when time does come. Thank u to all u team Timmy follower's
+ Read More
Read a Previous Update
Help spread the word!
 502 total shares
Joanna Stockbridge
50 months ago
Brandon Miller
50 months ago

Thank you to all those who have donated and those that will. We thank you immensely from the bottom of our hearts!! Please keep Timothy in your hearts and prayers!!

+ Read More

$3,313 of $7,000 goal

Raised by 43 people in 50 months
Created October 09, 2012
$25
Anonymous
20 months ago
$20
Anonymous
20 months ago
CM
$50
Connie Mussari
20 months ago

Prayers for you all

$10
Anonymous
20 months ago
$50
Anonymous
20 months ago
$50
Anonymous
21 months ago
$20
Anonymous
21 months ago
RM
$10
Ryan Marquis
21 months ago

Wishing you all the best.

CH
$300
Chris Hoppe
27 months ago

We are so proud of all you have done and are doing for Timmy. I love how God uses our struggles in life to "grow" us. Love from Aunt Chris and Uncle Dick

CM
$25
Connie Mussari
30 months ago

Continuing prayers for a speedy recovery

Joanna Stockbridge
50 months ago
Brandon Miller
50 months ago

Thank you to all those who have donated and those that will. We thank you immensely from the bottom of our hearts!! Please keep Timothy in your hearts and prayers!!

+ Read More
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now
 Share on Facebook