Hey Everyone, This page and fundraiser is for AVA. Ava is the sweetest 6 yr old little girl who loves to play, laugh, share, and be silly with her friends and little sister Finley. Recently, Ava has been diagnosed with a brain tumor. Her family and her will fly to Pittsburg this Sunday (September 9, 2012). Surgery is scheduled for September 14, 2012. As you can imagine the costs of such an extensive surgery as well as time away from work, motels, gas, airline tickets, food, etc. A small donation would be greatly appreciated. I will try to keep everyone posted on Ava's progress. LOVE AND THANKS TO EVERYONE FOR HELPING OUT!!!!!!!
Hello family and friends,
We are very busy caring for Ava and feel that an email update is the best way for us to communicate with everyone for the time being. Please excuse the temporary widespread distribution; we hope to speak to everyone individually as soon as we can. Ava's endoscopic surgery was yesterday and it went very well, we were in the hospital at 8:00 am and the actual surgery did not happen until 4:00 and was completed at 5:45. Due to the small size of her nostrils she did receive some blood during the procedure, but she did not have to spend the night in ICU and we are hopeful that she will be able to leave the hospital in a couple of days. She is resting in bed without a tremendous amount of pain but her left eye is swollen shut and there is additional swelling around her left nostril and her right eye. Last night she also had swabs pushed up inside her left nostril to minimize the bleeding, which were thankfully removed this morning. She is in pretty good spirits, has walked around the hospital to see her surroundings, and is enjoying some cartoons with Finley. Mommy and I are also doing well but of course a little exhausted.
The surgeons on our Pittsburgh team performed the minimally invasive skull base procedure with the intent to perform an initial biopsy to determine the lesion type followed by either an attempted complete resection if the biopsy revealed a chordoma or to stop the procedure if the tumor was determined to be treatable without further surgery with chemotherapy or radiation. The surgery was stopped after the biopsy, which removed a third of the tumor, because the onsite pathologist concluded that it was not a chordoma. The results of the biopsy are not necessarily good or bad news, just another step towards understanding our next steps, and absolutely great news in that the surgery was much less dangerous. Complete resection is a very dangerous procedure with many potential complications and we are very thankful that her surgery was relatively minimal, with less healing time, and was much, much safer. Today she is undergoing additional CT scans because the doctors here feel strongly that we insure that there are no additional tumors in her body. In Dallas she received a complete series of skeletal x-rays and an ultrasound of her stomach which did not reveal any additional tumors but a CT of her chest and stomach will provide more accurate confirmation. After the CT she can finally eat which will make Ava very happy, she has not had solid food in several days from all of the tests and of course the surgery.
The pathologist will receive Ava's sample today and we are expecting to find out the results sometime next week between Wednesday and Friday. Depending on her condition, and the results of today' CTs we hope to be flying back to Dallas early next week. As we have more information as to the nature of her tumor and the treatment options we will update everyone.
Love Ava, Finley, Julie, and Scott
You posted a new update message:
FROM AVA'S MOM JULIE: Thank you so much for the donations. I am so speechless. We are so blessed! I just can't believe it. Alisha, I hope that you will help me by providing me a list of contacts so that when I get a moment I can thank them at least with a note. We are so blessed.
I Cannot Even Begin To Express The Grattitude of the Facebook Friends and Family who have Donated their money, their time and Prayers to Sweet Ava. To show your compassion for a little girl you dont even know. Thank all of you and your kindness...