Help Fight Spinal Muscular Atrophy in the UK
SMA (Spinal muscular atrophy) is known as SMA is a life alternating and often fatal genetic disorder that attacks motor neurons. Children with Type 1 have limited movement, trouble breathing and feeding. Unfortunately if left untreated, babies suffering from SMA may not make it to their second birthday.
Although there are treatments available on the NHS to fight spinal muscular atrophy in the UK, at present there is no cure. However, a ground-breaking treatment has recently been approved by the FDA. The drug known as Zolgensma can significantly improve a child’s chance of survival. It is one of the world’s most expensive drugs and costs upwards of $3M (£2,293,065). Because of this huge price tag, many parents are turning to GoFundMe to help cure SMA in their child.