My name is Delia Wilson Lunsford. I am on Medicare which simply cannot take care of my needs at the moment. After managing my conditions throughout my 70 years, I now have too many conditions and not enough money. I was diagnosed with Myasthenia Gravis a few months ago. This is a rare neuromuscular autoimmune disease. I experience daily fluctuating symptoms since my first major excacerbation In October. I don't know from day to day what I will be able to do - sometimes I can't read, sometimes I have difficulty walking.
I have lived with a rare genetic syndrome, Ehlers-Danlos (EDS) for my entire life. Having a connective tissue disorder like EDS gives rise to other conditions such as Mast Cell Activation Syndrome (MCAS-diagnosed a year ago), autonomic neuropathy, sleep apnea, osteoporosis, scoliosis, gastroparesis, colonic inertia and the resulting ostomy. I have had 18 surgeries with another upcoming. I have had a life of pain.
I've never asked for help before though both siblings have been kind enough to loan me money to cover 2 surgeries.
We have no vehicle that can transport a motorized wheelchair and Medicare won't pay for one until I am completely wheelchair bound. I will be buying a foldable powerchair which will make it possible for me to get out and about no matter how much muscle weakness I experience. The one I've chosen costs $2295 - https://www.1800wheelchair.com/category/lightweight-electric-wheelchair/
I also need more genetic testing; again Medicare will not pay for that. The approximate cost for that is around a $1000.
My disabled husband needs hearing aids - possibly $4000.
And I'm starting renovation of my bathrooms to accomodate our disabled needs so I've set a total target amount of $10,000.
Deciding to do a fundraiser like this is possibly the hardest thing I've ever had to do but I can no longer put off expenses or just do without as I have over the years.
Thanks to all my friends who have agreed to help spread the word of this fundraising attempt. And my eternal gratitude to those who choose to help.
*picture above was taken about 6 years ago before multiple surgeries and new diagnoses. Even when pleading for help, I prefer not to post a picture of me now as I have aged terribly in the ensuing years. One tiny bit of vanity left to me!