<div>Hola, soy Antonieta tía de Valentina,  ella tiene 16 años,  y le gusta cantar y el baile, aunque este último no lo ha podido practicar, te cuento porque.
</div>
<div>Nacío con una condición rara que afecta de 2 a 3 de cada 100,000 nacidos vivos.
</div>
<div>Se llama síndrome de Klippel-Trénaunay (SKT), es un síndrome de malformación vascular . Este síndrome también se conoce como malformación capilar-linfática-venosa (CLVM), lo que refleja los cambios observados en dichos vasos es una afección poco frecuente que afecta el desarrollo de los huesos, los tejidos blandos, los vasos sanguíneos, venas y a veces, el sistema linfático. Se trata de un trastorno genético que se diagnostica al nacer. 
</div>
<div>Características Hemangiomas planos, Crecimiento excesivo de huesos y tejido blando, Malformaciones arteriovenosas, Mancha en vino de Oporto (marca de nacimiento de color rojo o púrpura). 
</div>
<div>Le han realizado 6 intervenciones,  ablación de vena, escleroterapias, flebografia y 2 colonoscopias.
</div>
<div>Y le han trasfundido sangre en 5 ocasiones. Le han realizado resonancias, angiotacs, etc.Todo esto esto ha sido del año 2021 a este año 2025.
</div>
<div>A partir de principios de 2022 empezo con sangrado rectal y tiene anemia severa, es por esto que no ha podido bailar.  
</div>
<div>La  intervenieron este sábado 29 marzo de este año 2025 con una desarterilizacion hemorroidal guiada con Doppler que es una técnica quirúrgica que se utiliza para tratar las hemorroides. Pero tuvo complicación el domingo 30 por la noche, tuvo una hemorragia grave lo cual la llevo a un shock hipovolémico que es un problema médico grave que requiere tratamiento inmediato. Una pérdida importante de sangre o líquidos impide que los órganos reciban el oxígeno y los nutrientes necesarios para funcionar. Esto puede provocar una insuficiencia orgánica y ser mortal. El tratamiento oportuno aumenta las probabilidades de supervivencia. la ingresaron a terapia intensiva, sigue en riesgo; y estos son unos gastos muy grandes por día, y no contamos con seguro médico, ni con el recurso, pero no podemos sacarla por que podría ser fatal.
</div>
<div>Espero en la gracia de Dios se recupere y pueda nuevamente ser feliz con todos los que la aman.
</div>
<div>Por esto es que estoy pidiendo del apoyo de ustedes para poder solventar los gastos que conlleva la terapia intensiva (estudios, transfusiones, procedimientos quirúrgicos, medicamentos, honorarios médicos, etc)
</div>
<div><br />
</div>
<div>Agradezco tus oraciones y tu apoyo.
</div>
<div>Dios te bendiga grandemente...
</div>
<div><br />
</div>
<div>Hello, I am Antonieta, aunt of Valentina. She is 16 years old and loves singing and dancing, although she has not been able to practice the latter. Let me tell you why.
</div>
<div>She was born with a rare condition that affects 2 to 3 out of every 100,000 live births. It is called Klippel-Trénaunay Syndrome (KTS), a vascular malformation syndrome. This condition is also known as capillary-lymphatic-venous malformation (CLVM), which reflects the changes observed in these vessels. It is a rare disorder that affects the development of bones, soft tissues, blood vessels, veins, and sometimes the lymphatic system. It is a genetic disorder diagnosed at birth.
</div>
<div>Characteristics:
</div>
<div>* Port-wine stain (a red or purple birthmark)
</div>
<div>* Excessive growth of bones and soft tissue
</div>
<div>* Arteriovenous malformations
</div>
<div>* Venous abnormalities
</div>
<div>She has undergone six medical procedures, including vein ablation, sclerotherapy, phlebography, and two colonoscopies. She has also received blood transfusions five times and undergone MRIs, CT angiographies, and other medical exams. All of this has taken place from 2021 to 2025.
</div>
<div>Since early 2022, she has been experiencing rectal bleeding and suffers from severe anemia, which is why she has not been able to dance.
</div>
<div>On Saturday, March 29, 2025, she underwent a Doppler-guided hemorrhoidal dearterialization, a surgical technique used to treat hemorrhoids. However, on Sunday night, March 30, she suffered a severe hemorrhage that led to hypovolemic shock, a serious medical condition requiring immediate treatment. A significant loss of blood or fluids prevents the organs from receiving the oxygen and nutrients they need to function, which can lead to organ failure and be life-threatening. Prompt treatment increases the chances of survival.
</div>
<div>She was admitted to intensive care and remains at risk. The daily medical expenses are extremely high, and we do not have medical insurance or the financial resources to cover them. However, we cannot discharge her because it could be fatal.
</div>
<div>I trust in God's grace that she will recover and once again be happy with everyone who loves her.
</div>
<div>That is why I am reaching out for your support to help cover the costs of intensive care (medical tests, transfusions, surgical procedures, medications, doctors' fees, etc.).
</div>
<div>I deeply appreciate your prayers and support. May God bless you greatly.
</div>
<div><br />
</div>

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