Brooke Chilton Fundraising for stemcells

 
Raised: £3,477.00
Goal: £40,000.00
 
 
 

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Dawn Turner

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Hello everyone,for those who dont know about Brookes condition,although most of you do.she has ONH which is optic Nerve Hypoplasia,which she was born with,she is blind from birth.Her optic nerves didn't develop properly,which means she has t... more

 
 
 
 
 
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Updated posted by Dawn Turner 4 months ago

Hi there,just thought I would give an update on Brooke.im so sorry its taken so long and your probably wondering why theres been no updates lately.Ive been meaning to get on here for ages,but with work and other members of the family being poorly ive had little time,im very sorry.Brooke is doing great,she is now at school,well,preschool should I say.she absolutely loves it and gets quite annoyed when Leah picks her up,she has a teacher called Nicola that she loves very much and has also made new friends,its a whole new world for her,she has also gained so much confidence with her walking and will soon get her cane,a bright pink one I believe.She has had a few setbacks as far as the treatment is going.she had a recent scan that showed her cyst in the middle of her brain has got quite big,we were worried that it may be putting pressure on her brain,as she is sick nearly every day,but she doesn't seem bothered by it bless her.Her anti sickness medicine helps her and the cyst may stay the same size,we were worried that she may have had to have a shunt put in to drain it,but fingers crossed this wont be happening,as long as the cyst doesn't get bigger or cause any problems.We have all been worried sick,but are at moment relieved that things are stable.She is still taking her hormones injections daily and seems to be growing on the right line,thank god.We haven't pushed the fundrasising as we actually have enough for her to go for her 1st op in Easter next year,we were hoping to go this year,but she has to be 100% healthy for the stemcells to work,which she hadn't been,and want them to work,so didn't want to take the risk of spending all the money raised to find out that it didn't work.Fingers crossed she will still be well enough by Easter.
We would also like to say another massive thankyou to Darren Cousins,landlord of Froth and Elbow,who gave a massive donation a few weeks ago for over £2300,this was a great surprise for us and we were once again overwhelmed.The money was raised by a boxing event,thankyou everyone who got bruised and battered for a gr8 cause lol,Steve Gittens charity golf day,thanks again to all you golfers,and money raised on st georges day golf tourney,we all are so over the moon,it was such a great gesture yet again.We also have had a charity quiz night last Saturday,organised by Bethany Bowler,her friend Ella and quizmaster Paul,a massive thankyou to all of them,it was a great night,with lovely fish and chip supper and great raffle prizes,thankyou for the donations for raffle they were excellent prizes.Not quite sure of end figure,but around £500,which was amazing,so again thankyou Bethany and friends.With money and pledged money,we have over 32k for Brooke now,and this wouldn't have been possible without all of your ongoing support,thankyou all and wish you all a very merry xmas and prosperous mew year.Will update again shortly on any mews and events for Brooke.Dawn xxxxx

 

 
 

Updated posted by Dawn Turner 13 months ago



Hi everyone.I thought I would give...



Hi everyone.I thought I would give an update on Brooke.she is doing very well.As you all probably know that Brooke is on daily hormone injections as her peturity gland is minute and one is non existant,the injections are working well,She is on the normal healthy growth line for her age,so we are happy about this.She is still singing and dancing,well wobbling should I say lol.She can recite words to songs within minutes,she is a very clever young lady.I think she takes so much in her little brain as being blind she listens to things so much more,where normal sighted children are distacted by seeing things around them.She is so happy and calls me Granny Groves,which is my fault lol.Brooke is now wearing glasses,due to her last eyetest,showing she has light perception,still totally blind but she can distinguish day and night.The Dr said she has nothing to lose by wearing them,it could enhance the optic nerves,so everything is worth a try.
Most already know,but Brooke will be going for her treatment in a few months.
We will now be traveling to Bangkok, Thailand. The reasoning for all of this is because the mayor of Guangzhou has declared that no more stem cell treatment be allowed in the city. It was motivated by the widespread abuse of the system by clinics and individuals there. It has been ongoing hassle. I think the Chinese government realizes that if its real scientific contributions are to be taken seriously by the international scientific community, it needs to weed out the many unscientific groups making claims about the present-day clinical efficacy of stem cells. So for now it's all been put into suspension until something more effective can be done.Its a total disgrace that people can abuse the sale of stemcells,lining their own pockets for under priveledged adults and children.
Anyway,we are in safe hands and am only too glad to be in touch with other familys who are presently and have been to Thailand for the treatment,so im totally satisfied that this is where she will be going.We will be carrying on with fundraising so she will be able to go for her 2nd lot of stemcells after her first.Leah and myself will be taking Brooke.We are so excited and can't wait to go.we are just in the midst of all relevant and important reports to the Hospital,like MRI scan reports,blood group,eye tests and so on.Everything has to be accounted for,to determine her treatment plan,she will have electric wave therapy and acupuncture too,although gruelling for her,im sure she will cope,bless her heart.We will be there for 3 weeks,but will have Saturday and sundays minimum to rest.She will need a break.I truly have every faith in the treatment,but had to be 100% positive that this was in the right hands of the right people,i have researched every way possible,and am confident this is her only way forward.Thankyou all again for your ongoing support.I will be updating on here when i get her treatment date.All our love Dawn,Leah,Lee and Brooke.

 

 
 

Updated posted by Dawn Turner 13 months ago

Hi everyone.I thought I would give an update on Brooke.she is doing very well.As you all probably know that Brooke is on daily hormone injections as her peturity gland is minute and one is non existant,the injections are working well,She is on the normal healthy growth line for her age,so we are happy about this.She is still singing and dancing,well wobbling should I say lol.She can recite words to songs within minutes,she is a very clever young lady.I think she takes so much in her little brain as being blind she listens to things so much more,where normal sighted children are distacted by seeing things around them.She is so happy and calls me Granny Groves,which is my fault lol.Brooke is now wearing glasses,due to her last eyetest,showing she has light perception,still totally blind but she can distinguish day and night.The Dr said she has nothing to lose by wearing them,it could enhance the optic nerves,so everything is worth a try.
Most already know,but Brooke will be going for her treatment in a few months.
We will now be traveling to Bangkok, Thailand. The reasoning for all of this is because the mayor of Guangzhou has declared that no more stem cell treatment be allowed in the city. It was motivated by the widespread abuse of the system by clinics and individuals there. It has been ongoing hassle. I think the Chinese government realizes that if its real scientific contributions are to be taken seriously by the international scientific community, it needs to weed out the many unscientific groups making claims about the present-day clinical efficacy of stem cells. So for now it's all been put into suspension until something more effective can be done.Its a total disgrace that people can abuse the sale of stemcells,lining their own pockets for under priveledged adults and children.
Anyway,we are in safe hands and am only too glad to be in touch with other familys who are presently and have been to Thailand for the treatment,so im totally satisfied that this is where she will be going.We will be carrying on with fundraising so she will be able to go for her 2nd lot of stemcells after her first.Leah and myself will be taking Brooke.We are so excited and can't wait to go.we are just in the midst of all relevant and important reports to the Hospital,like MRI scan reports,blood group,eye tests and so on.Everything has to be accounted for,to determine her treatment plan,she will have electric wave therapy and acupuncture too,although gruelling for her,im sure she will cope,bless her heart.We will be there for 3 weeks,but will have Saturday and sundays minimum to rest.She will need a break.I truly have every faith in the treatment,but had to be 100% positive that this was in the right hands of the right people,i have researched every way possible,and am confident this is her only way forward.Thankyou all again for your ongoing support.I will be updating on here when i get her treatment date.All our love Dawn,Leah,Lee and Brooke.

 
 
 
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Created by Dawn Turner on August 6, 2012

Hello everyone,for those who dont know about Brookes condition,although most of you do.she has ONH which is optic Nerve Hypoplasia,which she was born with,she is blind from birth.Her optic nerves didn't develop properly,which means she has thousands of less fibres to the nerve than normal sighted children.we are doing lots of fundraising events to help raise money for her to go to China for stemcell treatment,this is the only hope Brooke has to be able to see her Mummy,Daddy,the rest of her family and friends for the first time.The stemcells will hopefully perform regrowth so the signals will be sent to her brain for her to regain sight.so we are grateful of any donations great or small,we truely are thankful of anything.Thanks for spending time reading this,and thanking everyone for their support.Dawn.(Nan)Our grand total without this page added is £6776.67 .Thankyou so much.xx Cheques can also be made out to Brooke Chilton and sent to me,Please inbox me and i will give you my adress details.xx

 
 
 
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This really is a deserving cause. Brooke is a happy and beautiful little girl, it is heartbreaking that she can't see. Give if you can, every little helps.

posted by Loraine Burgess 18 months ago

Please help Brooke by giving what you can to enable her to have the Stem Cell treatment...This little girl deserves to be able to see just how beautiful she and her loving family all are.....xxxx

posted by Patsy Fuge 19 months ago

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Recent Donations (111)

£3,477 raised by 111 people in 20 months.

£25.00

Les & Dawn Cornish

4 months ago

 
 

£25.00

Les & Dawn Cornish

10 months ago

 
 

£65.00

Watling Street Truck Stop

11 months ago

 
 

Hi Dawn and Family This donation made up from Staff Tips and Driver's "keep the change". Will keep this going for the year - All the best for Brookes first spell of treatment.

 

£10.00

Kim Humphris

13 months ago

 
 

Best of Luck to you all

 

£20.00

Les & Dawn Crnish

13 months ago

 
 

£20.00

Karen Farrell

13 months ago

 
 

Best wishes :)

 

£10.00

Anonymous

14 months ago

 

£15.00

stevie allen

15 months ago

 
 

I know it's not much but we wish Brooke all the luck in the world x

 

£5.00

STEPHEN SCOTT

15 months ago

 
 

£10.00

Anonymous

15 months ago

 

1-10 of 111 donations

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